Elder Services of the Merrimack Valley Medical Advocacy Program

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United States

Based on analysis of the “Needs Assessment of People Aged 60+ in Massachusetts” that was conducted in 2001 and again in 2005 and which is one component used to evaluate how well current services are meeting community needs, “transportation to medical appointments” and “relief for caregivers” were both ranked has high unmet needs for elders in Massachusetts and in the Merrimack Valley. Transportation is one resource that allows the elderly to remain independent, and relief and flexibility for family caregivers is another resource that allows caregivers to help keep elders in the community for as long as possible. Further, many caregivers are unable to always consistently accompany elders to these appointments because of work or other responsibilities such as childcare. In order to address these issues and meet these needs in our community, Elder Services of the Merrimack Valley developed and implemented the Medical Advocacy program in November 2002.
Based on recent demographic information, there are close to 45 million caregivers in the US today; nearly 60% of caregivers are currently employed. Another recent study of caregivers concluded that reducing caregiver stress would reduce the number of nursing home admissions, which is especially crucial in an aging society where elders and adults with disabilities increasingly demand the desire to remain in the community for as long as possible.

About You

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Location

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Project Postal/Zip Code

Project Country

n/a

Your idea

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Focus of activity

Advocacy

Year the initiative began (yyyy)

2002

Positioning of your initiative on the mosaic diagram

Which of these barriers is the primary focus of your work?

Patients not empowered

Which of the principles is the primary focus of your work?

Democratize access

If you believe some other barrier or principle should be included in the mosaic, please describe it and how it would affect the positioning of your initiative in the mosaic:

Providing caregiver releief and advocacy for elders in an aging society, particularly for elders who often may find the health care system intimidating and overwhelming.

Name Your Project

Elder Services of the Merrimack Valley Medical Advocacy Program

Describe Your Idea

Based on analysis of the “Needs Assessment of People Aged 60+ in Massachusetts” that was conducted in 2001 and again in 2005 and which is one component used to evaluate how well current services are meeting community needs, “transportation to medical appointments” and “relief for caregivers” were both ranked has high unmet needs for elders in Massachusetts and in the Merrimack Valley. Transportation is one resource that allows the elderly to remain independent, and relief and flexibility for family caregivers is another resource that allows caregivers to help keep elders in the community for as long as possible. Further, many caregivers are unable to always consistently accompany elders to these appointments because of work or other responsibilities such as childcare. In order to address these issues and meet these needs in our community, Elder Services of the Merrimack Valley developed and implemented the Medical Advocacy program in November 2002.
Based on recent demographic information, there are close to 45 million caregivers in the US today; nearly 60% of caregivers are currently employed. Another recent study of caregivers concluded that reducing caregiver stress would reduce the number of nursing home admissions, which is especially crucial in an aging society where elders and adults with disabilities increasingly demand the desire to remain in the community for as long as possible.

Innovation

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Define the innovation

Based on analysis of the “Needs Assessment of People Aged 60+ in Massachusetts” that was conducted in 2001 and again in 2005 and which is one component used to evaluate how well current services are meeting community needs, “transportation to medical appointments” and “relief for caregivers” were both ranked has high unmet needs for elders in Massachusetts and in the Merrimack Valley. Transportation is one resource that allows the elderly to remain independent, and relief and flexibility for family caregivers is another resource that allows caregivers to help keep elders in the community for as long as possible. Further, many caregivers are unable to always consistently accompany elders to these appointments because of work or other responsibilities such as childcare. In order to address these issues and meet these needs in our community, Elder Services of the Merrimack Valley developed and implemented the Medical Advocacy program in November 2002.
Based on recent demographic information, there are close to 45 million caregivers in the US today; nearly 60% of caregivers are currently employed. Another recent study of caregivers concluded that reducing caregiver stress would reduce the number of nursing home admissions, which is especially crucial in an aging society where elders and adults with disabilities increasingly demand the desire to remain in the community for as long as possible.

Context for Disruption:

The Medical Advocacy Program consists of a group of volunteers that provide transportation and accompany an elder to a physician appointment, treatment or other medical event, and act as an advocate and/or surrogate family member for that elder. Their role is to assist the elder in asking appropriate questions, record and organize information that the physician gives them, report to caregivers, and coach, support and empower the elder to be in charge of his/her health care during the visits and treatments. What is unique about this program is that it is “through the door” assistance. If an elder needs assistance putting on their coat or shoes, ambulating down the stairs to the curb, or carry oxygen our Medical Advocate can assist them. Medical Advocates meet with the elder, and a caregiver when possible, at least a half-hour before they are to leave for the appointment. At this time, the Medical Advocate reviews with the elder and caregiver any questions or concerns the elder may have and makes note of them in the elder’s Medical Advocacy record. This record becomes a reference and a health record for the elder. The Advocate provides transportation to the appointment and accompanies the elder throughout the office visit. During the visit, the Advocate will take notes for the elder and prompt and redirect the elder if necessary about any of the concerns that they had discussed earlier. The Medical Advocate will also take the elder to the pharmacy if there are any prescriptions that need to be filled. At the conclusion of each visit, the Advocate leaves the completed record with the elder so that they can review on his or her own or with the caregiver what transpired during the appointment. The Advocate is also able to provide relief for working caregivers who would otherwise need to take time off from work for medical appointments. The Medical Advocate can be another trusted voice in the care of the elder.

Delivery Model

To date we have trained close to 50 volunteers as Medical Advocates, including Advocates who are bilingual, speaking such languages as Spanish, Greek and Italian. Elder Services Medical Advocates receive specialized orientation training as well as other ongoing support and training during their tenure as Medical Advocates. Orientation training topics cover the following areas: “Overview of the Aging Process and Related Health Changes and Challenges”; “Infection Control and Hand Washing”; “The Role of the Volunteer Support Caregiver”; “Guidelines for Building Positive Relationships/Listening Skills”; “Assertiveness Training”; “Guidelines for Reducing Risk on Volunteer Assignments”; “Ambulating with an Elder and Preventing Falls”; “Transportation Safety”; “Emergency Guidelines”; “Confidentiality and Ethics”; and, “Procedures for Medical Advocacy”. Medical Advocates meet with the elder, and a caregiver when possible, at least a half-hour before they are to leave for the appointment. At this time, the Medical Advocate reviews with the elder and caregiver any questions or concerns the elder may have and makes note of them in the elder’s Medical Advocacy record. This record becomes a reference and a health record for the elder. The Advocate provides transportation to the appointment and accompanies the elder throughout the office visit. During the visit, the Advocate will take notes for the elder and prompt and redirect the elder if necessary about any of the concerns that they had discussed earlier. The Medical Advocate will also take the elder to the pharmacy if there are any prescriptions that need to be filled. From December 2002 through December 2005, the Medical Advocates have filled approximately 1076 requests and completed almost 3500 hours of medical advocacy time. Approximately 35% of those visits were primarily to provide caregiver relief. Currently, the program provides an average of 25-30 rides per month for elders throughout the Merrimack Valley.

Key Operational Partnerships

The essential partnerships that make this program so effective are the caregivers and the Medical Advocates, who work together to assist the elder in a health care system that may be intimidating and in which the elder may not feel empowered. The other key partners in this program are the primary care physicians and other health care providers who are supportive of the Medical Advoacte and her/his role with the elder.

Impact

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Financial Model

The annual cost of the program is approximately $40,000 a year (Medical Advocacy budget attached). Most of the cost would go toward the salaries and fringe of 5 hours/week of the Volunteer Services Program Manager and a part-time Program Coordinator (20 hours/week). The remaining expenses are for mileage reimbursement for the Medical Advocates and other program support costs such as printing, copying, postage, telephone, etc.

When Elder Services implemented Medical Advocacy in November 2002 we were able to secure funding through the National Family Caregiver Support Program. Due to budget constraints Medical Advocacy is no longer funded through this program and is supported by other corporate funds and is coordinated by existing Elder Services staff and a Senior Aide assigned to the agency.

What is your annual operating budget?

$26M

What are your current sources of revenue? (please list any sources that are foundation grants)

Elder Services manages a range of programs and services that offer choices for older people and receives funds through various public and private funding sources including the state and federal government, foundations, corporations and individual contributions.

Effectiveness

From December 2002 through December 2005, the Medical Advocates have filled approximately 1076 requests and completed almost 3500 hours of medical advocacy time. Approximately 35% of those visits were primarily to provide caregiver relief. Currently, the program provides an average of 25-30 rides per month for elders throughout the Merrimack Valley. In federal fiscal year 2006 (October 1, 2005 - September 30, 2006) Medical Advocates provided 350 one-way trips for 62 elders in the Merrimack Valley.

Which element of the program proved itself most effective?

The most effective element of the Medical Advocacy Program is the relief that is provided to the family caregiver of the elder. The value to the community with this program is almost immeasurable. The support of medical advocates has helped many of our elders live safely in their homes longer. This lengthening of time in the community has decreased the dollars spent in a nursing facility. Elders have less confusion about medications ordered and their purpose, assistance with picking up prescriptions, getting to treatments and better communication with their physician and health care provider. Further, this program model can be easily replicated by any agency working with elders, people with disabilities or other groups in need of long-term supports in the community.

Number of clients in the last year?

In federal fiscal year 2006 (October 1, 2005 - September 30, 2006) Medical Advocates provided 350 one-way trips for 62 elders in the Merrimack Valley.

What is the potential demand?

In a society where people are living longer and the numbers of people aged 65 and older is ever-increasing, and where the numbers of family caregivers and the demands are also ever-growing, the demand for the Medical Advocacy program model is expected to grow in the Merrimack Valley and across the state of Massachusetts. The potentail for the demand of this program model in other parts of the United States is also great given the growing needs and demands of our aging society.

Scaling up Strategy

To better meet the needs of a society that is now seeing the youngest "Baby Boomers" turn 65 and currently has close to 45 million family caregivers, our main priority is to increase the Medical Advocacy Program in the Merrimack Valley and expand and replicate the program across the state of Massachusetts. This will involve increasing our volunteer recruitment and training efforts and increasing the outreach and awareness of the program to elders and ceregivers.

Stage of the initiative:

1

Expansion plan:

Working in partnership with the other 26 Aging Services Access Points (ASAPs) agencies in Massachusetts and with Mass Home Care, the statewide association for the state ASAPs, Elder Services plans to replicate the Medical Advocacy Program across the state. We will work together on volunteer recruitment and training strategies, and develop concerted efforts for outreach and awareness.

Origin of the Initiative

The Medical Advocacy Program was started in December 2002 to fill the need many of our elders have with transportation and advocacy. As our elders’ age increases, many of them become too frail to descend a stairway alone or ambulate to the curbside independently in order to access other modes of transportation. The case managers and nurses in our agency would express this as the number one unmet need with our elders. We utilized one of our own nurses to develop this program. She started the first training with 8 volunteers from the community who expressed an interest in assisting elders to doctor’s appointments.

This Entry is about (Issues)

Sustainability

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What are your two main challenges to finance the growth of your initiative

The annual cost of the program is approximately $40,000 a year. Most of the cost would go toward the salaries and fringe of 5 hours/week of the Volunteer Services Program Manager and a part-time Program Coordinator (20 hours/week). The remaining expenses are for mileage reimbursement for the Medical Advocates and other program support costs such as printing, copying, postage, telephone, etc. The primary challenge is in securing guaranteed funding for the personnel and operational costs associated with the program.

How did you hear about this contest and what is your main incentive to participate?

Elder Services was made aware of the competition by one of our colleagues at one of the other Aging Services Access Point agencies in Massachusetts.

The Story

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Do you have an annual financial statement?

Yes. This may be made available upon request.

Do you currently have an annual financial statement that tracks profit/loss?

Year 1: $40,000
Year 5: $1.08M

Please describe the amount (and/or type) of funding you need to implement your initiative, at year 1 and at year 5.

Olga Yulikova said: At Ethos we have a number of medical escort volunteers who help frail elders go to medical appointments. As the Volunteer Coordinator, ... about this Competition Entry. - 1666 days ago read more >
Helen Kerschner said: I am pleased to have the opportunity to comment on the “Medical Advocates” program developed by Elder Services of the Merrimack Valley. ... about this Competition Entry. - 1667 days ago read more >
Mary Ann Dalton said: Last year volunteers for Somerville-Cambridge Elder Services escorted frail elders to 777 medical appointments. While the primary ... about this Competition Entry. - 1667 days ago read more >
Elaine Massery said: As director of an organization which provides services to elderly persons, I am very interested in the model for medical advocacy as ... about this Competition Entry. - 1667 days ago read more >
Daniel OLeary said: As the director for an Area Agency on Aging for over 20 years and a primary caregiver for my 88 year young mother, I have seen first ... about this Competition Entry. - 1668 days ago read more >
dianadld said: We learned about the program developed by Elder Services of the Merrimack Valley at a recent association conference. How intrigued we ... about this Competition Entry. - 1668 days ago read more >
Charles N. Sisson said: I want to say that in my opinion, both personally and professionally, transportation is one of the major impediments in acccessing ... about this Competition Entry. - 1669 days ago read more >
Jane Hardin said: The Medical Advocates Program is a nationally recognized model for its innovative and creative use of senior volunteers to provide ... about this Competition Entry. - 1669 days ago read more >
kathysiemionko said: Research indicates that taking an active role in your health care is critical to making informed decisions. One highly recommended way ... about this Competition Entry. - 1676 days ago read more >
Al Norman said: Most consumers are overwhelmed by their own medical information. They rarely do research on their own health encounters beforehand, and ... about this Competition Entry. - 1679 days ago read more >