Expert Commentators: Patients | Choices | Empowerment
Meet the Patient | Choices | Empowerment Competition Expert Commentators - thought-leaders who will be sharing their insights, expertise, and feedback on the most innovative ideas that elevate patients' voice and their decision-making powers to improve health outcomes.
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Andre Blackman
Andre Blackman is an agent of change and innovation within the public health community. He is very passionate about the role of new media, mobile technology and other useful innovations as it relates to health communications and public health in general – resulting in Public Health 2.0. Andre feels that public health and new media are focused on the people, so there should be parallels to how they both interact.
His background consists of science and technology organizations, health nonprofits and traditional public relations. Through his consulting/advising vehicle, Pulse + Signal, Andre aims to educate and provide strategy for a variety of healthcare (public/community health, pharma, etc.) related organizations and initiatives that want to make use of the new socially interactive landscape; generating new ideas for greater impact.
Andre has been a featured speaker/commentator on a number of Public Health 2.0 related conversations around HIV/AIDS, mobile health, health disparities and new forms of health journalism. He has worked alongside organizations such as the Black AIDS Institute, Centers for Disease Control and Prevention, Dept. of Health and Human Services and the North Carolina Division of Public Health to educate and promote innovation around important health initiatives and opportunities.
You can find his thoughts on public health and innovation through his blog, Pulse + Signal and via Twitter
Ted Eytan
Ted's experience is in working with large medical groups and technologists to leverage health information technology to ensure that patients and their families have an active role in their own health care. Ted Eytan attended medical school at the University of Arizona, his master’s of public health degree from the University of California, Berkeley, and his master’s of science, health services degree from the University of Washington. He completed his residency training at Group Health Cooperative and his fellowship training in the Robert Wood Johnson Clinical Scholars Program at the University of Washington in 2000. Dr. Eytan is board certified in family practice. His clinical interests are preventive care and reducing disparities in health status among vulnerable populations. He is a regular user of social media tools to promote open leadership.
Dave deBronkart
“e-Patient Dave” deBronkart was diagnosed in January 2007 with Stage IV, Grade 4 renal cell carcinoma (kidney cancer) at a very late stage. His median survival time at diagnosis was just 24 weeks; with tumors in both lungs, several bones, and muscle tissue, his prognosis was “grim,” as one web site described it. He received great treatment at Boston’s Beth Israel Deaconess Medical Center: his surgeon removed the extensive mess (laparoscopically!), and the Biologic Therapy program helped him participate in a clinical trial for the powerful but severe High Dosage Interleukin-2 (HDIL-2). His last treatment was July 23, 2007, and by September it was clear he’d beaten the disease. His remaining lesions have continued to shrink. Today: Advocate and Activist An accomplished speaker and writer in his professional life before his illness, today Dave is actively engaged in opening health care information directly to patients on an unprecedented level, thus creating a new dynamic in how information is delivered, accessed and used by the patient. This is revolutionizing the relationship between patient and health care providers, which in turn will impact insurance, careers/jobs, quality of life and the distribution of finances across the entire spectrum of health care.
Christopher Schroeder
Christopher M. Schroeder is Chief Executive Officer and Board Member of HealthCentral, the highest quality collection of condition and wellness-specific interactive experiences focused on people finding and sharing real-life experiences related to their health needs. A veteran of online media, Schroeder served as CEO and Publisher of Washingtonpost.Newsweek Interactive, which hosts washingtonpost.com and newsweek.msnbc.com, among other leading news sites. During his tenure, the Company more than quadrupled in revenue and audience, and reached profitability. Previously, Schroeder was CEO and President of LEGI-SLATE, INC, a leading online provider of information on federal and state legislation and regulation for businesses, law firms, government and other organizations. After implementing significant reorganization and operational improvements, Schroeder successfully negotiated the sale of LEGI-SLATE in 1999. Schroeder is a member of The Council on Foreign Relations, serves on the board of the National Cathedral elementary school, and is active in several non-profits. He graduated magna cum laude from Harvard College and with honors from Harvard Business School. He is married to Alexandra Coburn, and has three children: Jack 12, Julia 10 and Ben 7.
Edith Grynszpanchoolc
Edith Grynszpancholc sufrió la muerte de su hija de 9 años a raíz de un osteosarcoma. A partir de allí, se enfocó siempre en tratar de mejorar la calidad de vida y el acceso al tratamiento adecuado de los niños enfermos de cáncer. Los ejes son el apoyo a la Salud Pública, el trabajo en red multisectorial, la defensa de los derechos del paciente y la concientización de la Comunidad. Ha logrado que las Organizaciones de argentina y de Latinoamérica trabajen en Red, apoyando la Salud Pública en cada país y las ha empoderado para que puedan exigir el cumplimiento de los derechos de los niños. Pone a disposición de los implicados herramientas tecnológicas que facilitan la atención de los beneficiarios , otras que permiten el trabajo en red y que mejoran la defensa de los derechos de los beneficiarios. Su modelo es reconocido en otras enfermedades. Es Fundadora y Presidente de la Fundación Natalí Dafne Flexer. Fundadora y Directora del Capítulo Psocosocial de la Sociedad Latinoamericana de Oncología Pediárica, Miembro del Comité Ejecutivo y Representante latinoamericana de la Confederación Internacional de Organizaciones de Padres de Niños con Cáncer, Fellow de Ashoka, y Promotora de Paradigma XXI, Alianza de Pacientes para la Incidencia Colaborativa
Regina Holliday
Regina Holliday is a DC-based patient rights arts advocate. She is currently at work on a series of paintings depicting the need for clarity and transparency in medical records. She placed her first mural in the series in May of 2009. After the death of her husband, Fred Holliday II, on June 17th 2009, She began a large Mural Titled “73 cents.” This piece can be viewed at 5001 Connecticut Ave. Washington, DC 20008. This piece depicts Holliday family’s nightmare journey through the medical system during Fred’s cancer care. The painting became part of the national healthcare debate and was covered by the BBC, CNN, CBS, AOL, VOA, NPR, The Washington Post and the BMJ. Regina Holliday can be found on Twitter as ReginaHolliday and on Facebook as Regina Holliday, Wash DC. She speaks at medical conferences providing the patient voice in discussions about HIT. She presented the patient voice at the Meaningful Use Announcement at the Department of Health and Human Services on July 13th, 2010.
Javier Contreras
Javier Contreras desarrolla su trabajo como médico alergólogo en el sistema público de salud, centrando su atención en áreas de autocuidados, educación sanitaria y psicología de la salud. Su formación como psicólogo le permite incorporar nuevas perspectivas que posibilitan una atención integrando ambas disciplinas. Ha participado en proyectos de cooperación internacional con organizaciones no gubernamentales en África y Centroamérica. En los últimos años ha focalizado su interés en el campo de la educación de personas alérgicas y el asma, produciendo para ello vídeos y otros materiales audiovisuales educativos (http://medicablogs.diariomedico.com/educasma/videos/) en colaboración con asociaciones de pacientes, sociedades científicas y otras organizaciones no lucrativas. Coordina el grupo multidisciplinar EDUCASMA que pretende crear, divulgar y compartir recursos de educación para la salud en asma y alergia. Recientemente se ha ido adentrando en la aplicación de las nuevas tecnologías de información y comunicación al campo de la salud-enfermedad (Web 2.0), con el objetivo de poner a disposición de pacientes y profesionales sanitarios, información, documentación y recursos educativos.
Dianne Yamashiro-Omi
Dianne Yamashiro-Omi joined The California Endowment as a program officer in 2000. She currently serves as the Foundation’s Program Manager for Diversity and Equity.
Prior to joining The Endowment, she served as a foundation consultant with a number of organizations including the Levi Strauss Foundation, the Evelyn and Walter Haas Jr. Fund, the Civil Liberties Public Education Fund, the Asian Pacific American Community Fund and the San Francisco Foundation. Yamashiro-Omi also served as a program officer with the Koret Foundation and the Gap Foundation. In addition, she served as executive director, Board member and volunteer for a number of non-profits in the Bay Area.
Yamashiro-Omi holds a bachelor’s degree in Social Science from U.C. Berkeley and a teaching credential from the University of San Francisco.
Hylton Sarcinelli Luz
Médico homeopata há 30 anos, integralmente dedicados à clínica privada e serviço público como voluntário, na educação e assistência à população. No Brasil não se formavam homeopatas, fui estudar na Argentina. Ao retornar reuni colegas com igual percurso e fundamos um curso de especialização em homeopatia. Nestes anos como homeopata consolidei a convicção nos resultados clínicos e atuo para fortalecer a representação de classe profissional, a educação formativa e para institucionalizar a homeopatia como prática pública. Foram alguns milhares de pessoas atendidas, 18 anos como professor e diretor de escola de formação de médicos homeopatas, 16 anos como coordenador de Educação da Associação Médica Homeopática Brasileira e, os últimos 12 anos, como dirigente da Ação Pelo Semelhante, fundada para prover assistência homeopática à população em desvantagem social e econômica e garantir o direito de acesso à Homeopatia. Em 2002 participei do processo de redação do texto técnico da Política Nacional de Práticas Integrativas e Complementares. Em maio de 2006 ao vê-la publicada, identifiquei a omissão de fontes de recursos e critérios de monitoramento, elementos essenciais ao compromisso de implementação. Consultei o Ministério Público onde fui orientado a redigi a petição que originou campanha Homeopatia Direito de Todos. Assim, desde 2006 estou inteiramente dedicado a promoção desta campanha de defesa de direitos, de promoção de equidade e democratização na saúde. Foi nesta experiência de promover a campanha que identifiquei a comunicação como ponto central e desenvolvi o Ecomedicina que estou trazendo para o Desafio. Uma proposta que reúne saúde individual e coletiva, humana, animal e vegetal, com saúde planetária. Sem equilíbrio, sem preservação dos recursos e tradições, sem educação para a participação, não haverá um mundo melhor amanhã.
Pedro Chana
De profesión medico Neurólogo. En el año 2001 junto a un grupo de profesionales funda una organización no gubernamental llamada Corporación CETRAM (centro de trastornos del movimiento). Su trabajo individual se ha centrado en la atención clínica de alta especialidad, pero su vida como emprendedor social se inicia luego de alcanzar un alto desarrollo académico y profesional, llegando a ser dirigente de diferente entidades gremiales y académicas, además de ser un reconocido experto latinoamericano en el tema.
Hoy la Corporación CETRAM es el máximo reflejo de su liderazgo. CETRAM es entendido como una comunidad constituida por sujetos con diversas motivaciones, creencias y culturas, unidos por un ideal común, “trabajar en conjunto para una participación social plena de todos y todas”. En este lugar se problematiza el deseo de una sociedad mejor, la cual sin embargo frente a un problema de salud, tradicionalmente apunta a la solución mediante estrategias centradas solo en la persona que presenta una enfermedad, sin considerar la necesidad de generar un cambio social para lograr un real bienestar. Quien presenta un trastorno del movimiento inicia un proceso que pone a prueba su estructura física, psicológica y social entrelazándose e intrincándose con la comunidad a la que pertenece, generando un impacto en múltiples ámbitos personales y colectivos. Esta Comunidad CETRAM nace del respeto y la comunión entre lo medico y lo social, en la relación de quien vive con una condición de salud diferente, su familia y su comunidad, en profundo diálogo horizontal y colectivo. El abordaje lleva a un terreno inexplorado, una nueva forma de organización y práctica, con un equipo de trabajo comprometido y en constante transformación de acuerdo a las necesidades que se produzcan.
La educación es una de las principales herramientas de esta comunidad, en donde personas líderes de los diferentes grupos sociales, estudiantes de carreras de la salud, medicina, post grados y artes, dialogan y aprenden mutuamente, desde la práctica y la teoría, en un enfoque que tiene como eje central una salud de calidad respetando los derechos humanos.
Hoy forma pareja con Daniela Alburquerque su compañera de vida y trabajo y los hijos de ambos, en una vida comunitaria y diversa.
Kim Thiboldeaux
Kim Thiboldeaux joined The Wellness Community in 2000 as President and CEO. In November 2009, the headquarter offices of The Wellness Community and Gilda’s Club joined forces to become the Cancer Support Community, the largest provider of psychosocial cancer support worldwide, where Kim has maintained her role as President and CEO. The combined organization is also likely the largest employer of psychosocial oncology support professionals, advancing the idea that psychosocial care is as important as medical care in the face of a cancer diagnosis. The Cancer Support Community provides social and emotional support through a network of nearly 50 local affiliates, more than 100 satellite locations and online at www.cancersupportcommunity.org.
Formerly the director of Patient Relations for Oncology & Transplant at Hoffmann-LaRoche, Inc., she brings to this position a wealth of experience in health care, patient education and national patient advocacy. Kim serves in numerous leadership roles in the cancer and health care communities including: founding board member of ENACCT (Education Network to Advance Cancer Clinical Trials) and member of the National Advisory Board of the American Psycho-Oncology Society (APOS). Prior to joining Roche, she served as the director of corporate relations at Whitman-Walker Clinic, a Washington, D.C.-based clinic that provides comprehensive services to people with HIV and AIDS.
Kim co-authored The Total Cancer Wellness Guide, which was published by BenBella Books on June 1, 2007. This timely book is a roadmap for all people affected by cancer and offers helpful tips on treatment decisions, side effect management, social and emotional issues and more. She is also the host of Frankly Speaking About Cancer with the Cancer Support Community, an award-winning Internet talk radio show that airs weekly on VoiceAmerica.com and is aimed at informing and inspiring listeners to live well with cancer.
Terry Lowe
Terry Lowe is Director of Development, Communications & Special Projects with the UCLA Global Center for Children & Families. Her first experience with Changemakers was as a member of the team that produced a winning entry in the 2007 Disruptive Innovations in Health Care competition. This led to a grant from the Robert Wood Johnson Foundation that resulted in the opening of The UCLA Family Commons in Santa Monica, CA. The Family Commons is the first in what will eventually become a network of family wellness centers providing evidence-based preventive health care in a context that engages and empowers families and communities.
Terry has been fundraising, writing, and developing and managing programs for over 20 years. Before her participation in the start-up of The UCLA Family Commons, she worked with Juma Ventures on raising the funds to launch and grow a series of pioneering businesses and programs providing employment and support to at-risk youth. She worked with Asian Pacific Islanders for Reproductive Health to make possible a major growth initiative that helped the organization double its budget and achieve stability. Terry has also worked on the other side of the fundraising fence, serving as Director of Philanthropic Services for The Sierra Fund and Executive Director of the Shalan Foundation. She has provided philanthropic consultation to the Tides Foundation, Common Counsel Foundation, and the Environmental Justice Fund, among others. She holds a Ph.D. in philosophy from Cornell University.
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