Discapacidad

In our country, we are trying to change perception and attitudes towards cleft and craniofacial patients. Considering that they are not "urgent", care for them may be only scheduled periodically or during missions. Yet cleft and craniofacial patients need continuing comprehensive quality care. We also want that parents be pro-active and partners in the treatment of their children. As cleft and craniofacial cases are not mere mission cases: follow through at home and by the cleft team is very much needed. We envision that people could access care without restrictions of time or mere reliance on missions and educate people to work for this and not to depend on dole-outs. Patients and professionals will endeavor to help each other in a multidisciplinary care approach and not surgery only.

Technology: We see this as having the right means and methods in patient care. Hence equipment and instrument have to be available. The Patient Medical Record System has to be computerized completely to make services efficient and research including appraisal of treatment protocols accurate. This will enable us to sustain and share best practices.
Education and Training of Volunteers and Staff will redound to better care and services for the patients. At the same time, it would be ideal to impart empowering ideas for our patients to make all cure and healing synchronized in the person. Investing to enhance the volunteers expertise, and keep their interest to give their time and energy will realize the shared vision and is essential for sustainable collaboration of partners.

NCFPI envisions to make comprehensive and craniofacial care accessible to Filipinos by empowering Filipino professionals in the delivery of competent treatment that meets international standards for cleft lip, cleft palate, and craniofacial patients. With this, NCFPI aims to establish sustainable craniofacial centers in the Philippines led by teams of medical and allied medical specialists and professionals who are trained and equipped to provide world-class craniofacial services to Filipinos especially the indigents. This is done by strengthening all cleft programs of services and communicating the extension of their services to our target customers. This work has to be properly supported by effective administrative processes and internal organizational coherence.

The motto of the foundation is "Love makes whole".  NCFPI commits itself to the following core values:
Heartfelt Concern: compassionate, holistic care given to its beneficiaries including advocacy for their social acceptance in society
Committed Teamwork: specialists are consistently available and dependable to resolve medical problems faced by patients
Comprehensive & Continuing Care: patients receive cleft care and treatment in a multi-disciplinary setting from birth till adulthood
Competent Practice: professional treatment that meets international standards including critical assessment of results through research.
Family-oriented Approach: involves the family especially the parents in the treatment process of their children
Camaraderie: promotes cheerful, positive, collaboratio

Our customers are the cleft and craniofacial patients in the National Capital Region of the Philippines and all those who can come to us for treatement either for primary or secondary surgery and other ancillary care for cleft patients.

Noordhoff Craniofacial Foundation Philippines, Inc. (NCFPI) calls for an Integrated Marketing Strategy (IMS) that weaves together plans and activities at the national, regional and community levels. The objective is to increase market base and penetrate through effective (i.e., in cost and method) means of communication.
1. Associations/Outreach: Includes conferences, sponsorships, various networks and groups, businesses. 2. Web Presence: Information and resources. 3. Earned (Free) Media Coverage generation & publicity through promotional efforts & good public relation. 4. Paid Media-Direct Advertising or thru an Ad Agency - if there is a sponsor. 5.Direct Mail - Print/Electronic include newsletter & other marketing collaterals. 6. Face-to-face meeting- Relationship Cultivation

We provide Primary and Secondary Cleft Surgeries, Cleft Orthognathic Surgery, Craniofacial Surgery and other Ancillary Services like Orthodontic treatment (Pre-operative naso-alveolar molding or NAM, Quadhelix, Braces), Alveolar bone grafting, Pediatric and Genetic medical consult, Pediatric and General Dentistry, Speech Therapy, Prosthodontic works, Mothers' Class and other Social Services for the patients and their family. We also have transportation and food subsidy for indigent patients including board and lodging linkages during treatment. All these are done by linkages with individuals or charitable groups willing to help cleft patients.

Peers and competitors are those do the same surgical treatment. If their work is not done well, we can repair the work they did but the expense will be greater and this is more costly in all aspects for the patients. The solution to comprehensive and complete care is not fostered as people think that treatment is only for primary sugery.

On Resources. In a short span of time, NCFPI became more known and has more patients. It found itself in need of these four types of capital: environmental, in-kind, financial, and human. Environmental resource refers to the current environmental setting (in the hospital, community, or political climate) affecting the patients and the foundation.We emphasize that human capital is the most important asset in the collaboration. Personnel need more management training and systems in the organization have to be institutionalize. Need for more space and facilities was seen.

(1) Real People Impacts: the actual number of more lives changed by the treatment.(2) Policy Development. Pursue cooperation with government in terms of instituting policies supportive of the collaborative efforts for cleft care(3) Systems Development. Services have expanded beyond primary surgery and the organization’s systems are developing.(4) Resource Development. Get more volunteers /donors

We can say this is the case if the volunteer professionals could treat patients anytime. This means having dedicated venues of services that our solely ours and not shared with the hospital's other departments. Then, the presence of adequate volunteers to help patients and the readiness of the administrative staff to support the growth of patients cared/treated.

1. We endeavor to treat 600 patients by 2013 where each surgeon can operate 150 per surgeon.
2. Increase in the Ancillary Services by:
a. Having a volunteer dentist and orthodontist daily
b. Having Speech Pathologists daily
3. To establish Well baby programs for malnourished/sick children
4. To have more personne & bigger facilities for the Administrative unit the foundation

Growth for one to two years: NCFPI Operating 2 craniofacial centers
Growth for three to five years: Expanding advocacy in the Philippines through linkages with new volunteers and expansion for additional 2 centers in Luzon.

Even in a developed country like the Netherlands, 50% of stroke patients who are admitted to the hospital while having AF, are not previously known with and treated for the arrhythmia. Early identification and treatment of these patients can prevent thousands of strokes. In developing countries, limited access to health care results in even more underdiagnosis of AF and preventable strokes.
We want to address the epidemiologic global growth of AF and subsequent strokes. In the developed countries, screening programs will identify patients with silent (asymptomatic) AF. In developing countries, both symptomatic and asymptomatic AF needs to be diagnosed. Increasing awareness of the importance of diagnosing AF and treatment with anticoagulation will prevent thousands of strokes

Unique technology developed for very easy, fast and reliable screening. No infrastructure needed in order to diagnose AF
Automatic build-in ECG based algorithm. Storage of more than 140 ECG recordings. The AF ECGs are not overwritten, unless all non-AF strips are replaced by AF recordings. This allows for long-term autonomous use of the device without the burden of loosing relevant ECG data. Up to 1000 datasets of diagnosis will be stored.

We want to start screening programs in developing countries such as Russia, Ukrain, India, Turkey, China or Brazil by training of primary health care providers on how to use the MyDiagnostick in which patients and when to start anticoagulation by prescription of one of the new oral anticoagulants (and how to control the ventricular rate).

To dramatically improve AF detection and start therapy in order to prevent ischemic strokes (and heart failure), both in the western society as well as in developing countries

Easy and fast AF detection and start of anticoagulation by primary health care providers will reduce unnecessary strokes and costs. This will increase Qualy's at a low price.

In developed countries the MyDiagnostick is used by general practitioners, neurologists (in case of cryptogenic stroke), geriatricians, internal medicine specialists, and cardiologists. At present, several pharmaceutical companies recognized the importance of this tool for detection of new AF patients which need anticoagulation and have purchased MyDiagnostics devices.
In developing countries our main customers will be primary health care providers.

In the developed countries, we increase awareness of the importance of AF detection by educational programs. Furthermore, 2 large screening programs in the general practitioners office are planned in The Netherlands and the UK. Several cardiology departments have purchased MyDiagnostics to follow-up treatment on their AF patients. Also clinical programs are under way in the area of the geriatric population and patients with cryptogenic strokes.

Development, sales and marketing of the MyDiagnostic.
We recently received CE approval. Next year we plan to enter the US market and will file for 510k FDA-approval in 2013

Perceived competitors are manufactures of event-recorders, blood pressure monitors with build-in AF algorithms, and an iPhone application. At present, none of the perceived competitors combine automatic AF detection and ECG recording on an off-line basis, without the need of a special infrastructure, with a 100% sensitivity, while maintaining 96% specificity. Furthermore, the price of the MyDiagnostic (appr. $660) is highly competitive.

We expect a boost in the demand for MyDiagnostick devices, This will require a larger responsive organization to serve al customers. This organization should be properly linked to local networks supporting the availability of MyDiagnostick in the various health care settings and parts of the world. These local networks might include profit and non-profit health organizations, distributors, pharmaceutical companies.

We invited clinical key opinion leaders from several countries to initiate clinical trials and screening programs for AF. We plan to gain evidence in order to become incorporated in future guidelines on the management of AF.

The MyDiagnostic was developed and tested in close collaboration with cardiologists. The validation study provided excellent results (100% sensitivity and 96% specificity). As the device is CE marked, we can produce and distribute devices to customers at this moment.
Results from the first studies with the MyDiagnostic were received well by the medical community and led to increased demand.

We plan to sell 2000 devices in 2013, and doubled in 2014, approaching 10.000 devices/year within 3-4 years.
We plan to derive new opportunities for other diagnostics each 2 years
We plan to extent service with online expertise support

See above

Disability, facing 1/7 of the world’s population is an important development issue with an increasing body of evidence showing that persons with disabilities experience worse socioeconomic outcomes and poverty than persons without disabilities. With these ever-increasing volumes, access to care is limited and the quality of care resources are archaic. The most commonly reported tools used by clinicians are hand-written notes and sketches to communicate ‘accurate’ instructions to the patients and caregivers. In order to increase access to care and improve communication between patients and clinicians, there is a need for tools which provide access to quality content in an engaging and meaningful way.

In line with world community-based rehabilitation guidelines, our suite of mobile applications, the first being StrokeLink, are designed to empower patients facing disability and their family members throughout their care journey by providing them with access to information and tools to help them regain their independence. With StrokeLink, in addition to providing a digital library of information relating to stroke, the app works with patients to set goals, provide access to therapy programs and monitor their progress over time. Using StrokeLink Capture, a specialized tool that allows clinicians to build custom therapy programs with ease, patients leave the hospital with highly personalized therapy programs communicated effectively to them and those helping them with therapy.

Our vision is to improve access to rehabilitative care and reduce global disability. Our objectives are to improve patient outcomes as well as improve the utilization of healthcare resources throughout the care continuum. We are doing this by empowering patients and family members with high quality tools to effectively manage their own health while at the same time providing clinicians (therapists) with an efficient way to prescribe therapy programs.

Addressing the problem of global disability involves the development of unique and strong value propositions for each stakeholder involved:

For healthcare providers who face the challenge of providing services for a growing population of individuals facing disability, mobile apps, like StrokeLink, allow for the optimization of healthcare resources by better enabling patients and their families to take on an active role in therapy. Clinicians are better equipped to effectively and efficiently communicate and monitor therapy plans while patients benefit from an enhanced understanding of the steps needed to regain independence through engaging independently in therapy in a community based setting.

Our primary customers are individuals affected with a disability and their family members. Ultimately, in order to create positive change in rehabilitative care, it is important that we engage all key stakeholders involved which include clinicians, healthcare providers and healthcare associations in addition to patients and their families.

A channel partnership strategy will be taken to reach our customers and facilitate growth into new markets. This strategy entails partnering with the leading patient advocacy organisation representing a form of disability in a geographic region. For example this could mean the MS Society of Canada, to reach MS patients in Canada, or the Mongolian Stroke Association, to reach stroke patients in Mongolia. This partnership provides us with key suppliers of validated content and strong existing channels to reach patients. In return we provide a white-labelled mobile platform to improve access to specialized rehabilitation resources and a proportion of the revenues generated.

Software Development - Building our platform and suite of mobile applications.
Partnership Development - Creating content and distribution partnerships with national patient advocacy organizations.
Relationship Development - Marketing to Healthcare Professionals and securing endorsement from experts in each field.

Our main competitor in the market is the most commonly reported method for the prescription of rehabilitation plans: the hand drawn stick figure! There are also substitutes for our technology including the multiple web-based exercise prescription tools, but these ultimately lack the flexibility that clinicians require and are removed from the patient-clinician interaction. Both these processes reinforce a highly prescriptive environment while our tools seeks to foster a more personal and collaborative care model whereby patients are incorporated into the exercise prescription process.

The biggest challenges we are currently facing relates to geographic growth and working with hospital timelines and budgets. Entering new markets requires both strong channel strategies as well as a clear understanding of the unique regulatory environments that exist in the region. Our partnership channel strategy will help us overcome both of these by utilizing existing channels to reach patients as well as connecting us with local experts to ensure compliance with regulations.

Our clinician-users are passionate about the possibilities that our platform can create in terms of more collaborative care models, but often lack the authority to make purchase decisions. Moving forward, we plan to empower a large network of clinicians as key stakeholders in our change process.

In order to capture a larger portion of the market our partnership strategy is critical to grow both geographically and across disease states. This strategy will provide us with capital up-front, from licensing our technology, in order to facilitate additional development across technology platforms to increase global accessibility.

Our numerous pilot studies in different stages of the care continuum have provided key insights into the incentives and objectives of all our major stakeholders. We have learned what engages patients and families most, we have iterated on our technology so that it integrates seamlessly within a clinician’s workflow, and we have identified a payer whose objectives are aligned with ours.

In the next 3 years we will meet the following objectives:
1) Develop 15 jointly developed applications with partner organisations from different disease states and geographic areas.
2) Increase membership in clinician network to over 10,000 clinicians from 25 countries
3) Expand our technology to operate on the iOS smartphone and all Android devices in order to improve accessibility

Short Term (2nd & 3rd Quarter 2013)
- Release of StrokeLink 2.0 to continue to measure the usability and effectiveness of our technology
- Private testing of web based management portal
- Develop two channel partnerships to accelerate growth into new markets
- Begin engaging clinicians in the United States, Australia and the UK through social media, conferences and tradeshows

Mid Term (4th Quarter 2013 & 1st Quarter 2014)
- Launch of first two applications with partner organizations
- Establish two new channel partnerships, and continue to fill partnership pipeline
- Expansion to the iOS Smartphone
- Development of a professional certification program to identify key champions in our professional network

In Italy 20-25% of hospitalizations for acute (equivalent as expenditure in euro to 1% of the nation GDP) relates to elderly chronic patients that is inappropriate hospital admissions. As a result, no unique information point which describes all the existing services couldn’t be found. Families related with an elderly component need to know all the alternative solutions. If ill-informed they have to contact a number of structures offering a similar organization of services. The Case Manager coordinates various professionals who can offer home assistance when it appears necessary.

We try to offer support in the decision making process to all those families who contact the Foundation by offering an additional home care service for frail elderly people. Health care at low load to be achieved with no more than 8 accesses/month (nurse, occupational therapist and professional educator)
Patient transportation in the health care facilities for execution of specialist services / rehabilitation / assistance can not be executed at home
Tele-Aid for activation of requests for assistance
Counceling services to the patient's family.
GP interface and control of the therapeutic compliance in the event of relevant chronicity.

Help inhabitants of our region finding the appropriate service by enabling them stay at home in the event of health problem wherever possible.

Improving the quality of life of elderly people and offering high standard quality services accompanied by social sustainable costs.

The customers are elderly people along with their families. We offer a special support to those people who contact the Foundation to meet other needs and after the hospital stay are likely to be alone and are not fully recovered from a chronic disease. The Case Manager designs customized plans for all the elderly people requesting it.

The approaches that will be taken to reach our customers consist of contacting general practitioners, voluntary associations operating in the area and local health agencies.

Health care for disable and elderly people in nursing home and day care communities. Rehabilitation for elderly people post injury and clinic for outpatient.

In our region a wide range of services in favor of elderly people is being provided and all our peers will benefit from this information system. At the present time any other organization is offering specific home care services for elderly people.

The aim of the project is overcoming of fragmentation between competence and structures that provide services. Considering the growth of the elderly population in the area, our project will produce other initiatives to improve the quality of life of older people in their own homes.

By validating a successful model the Foundation will be able to test it in the other Centres distributed over three Italian regions: Lombardia, Piemonte and Liguria.

There is a high demand for continued assistance from families related with frail elderly people. The National Health Service has been cutting off investments and and definitely savings in hospital costs would free up resources for other services. The burden of cost for nursing home admission which currently falls on family can be postponed in time and partially prevented.

Meeting the demand of home care in favor of elderly people and their families.

This project is intended to assess the state of feasibility of this new service on about 30 patients involving two Case Managers. After a year of operation the project outcomes will be evaluated. During the second year the Foundation will be able to double the staff to manage up to 60 patients.

According to the official report China Disabled Persons’ Federation taken in 2006, there are approximately 80 million people with disabilities living in China, 38.56% of which have needs for assistive devices and services, but only 7.31% of them have received the services. Thus nearly 31% people’s needs are not satisfied, that is to say 24 million people have no access to assistive devices. This number will go higher due to the fact that many people with temporary disabilities are not registered as officially disabled. Furthermore, elder people represent another unsatisfied market for assistive devices. The number of people in China over 60 years of age is expected to increase 90% by 2020.

RELAY seeks to address visibility and availability of assistive technologies in China at the Individual, Organizational, and Community level. Through case-based consulting, community purchasing, and online community support and outreach activities we seek to stimulate the emerging market for AT in China. We connect with patient network as well as various professional groups and offer educational and training opportunities to patients and volunteers. We introduce the concept of barrier-free tourism to bring special needs to the mainstream and attract more attention from the public and corporate sectors. We create employment opportunities for people with special needs at the same time.

To improve access and increase public understanding of Assistive Technologies in China, and to make Chinese societies more inclusive. In order to do this, we focus on people and aspire to offer better services to elder people and people with special needs by promoting a human-centered approach in education, workplace, and daily life.

We want to liberate people with special needs and help them gain independence and freedom by improving access to assistive technology and barrier-free tourism. Further more, we want to gradually change the social mind, which conceives of people with special needs as different and poor, and to create employment opportunities to them, where they can transform their weakness to strength.

1. Patients need to use AT
2. Hospitals/rehab centers, and other medical centers
3. Tourism related venues where AT would be needed- scenic spots, airports, hospitals, etc
- international tourists who need assistance
4. Volunteer organizations/schools/non-profit organizations that train people to assist people with special needs (such volunteer organizations are common in Chinese universities and senior high schools)
5. Communities
6. AT manufacturers

First, we closely work with patient network, communities and hospitals. By collaborating with these groups, we can obtain sources of customers. We directly hire people with special needs, who can easier reach potential customers and understand their needs better.

We reach out to other segments by social media, sending out representatives to visit sites, organizing campaigns in tourist spots and inviting public to our creative design studio, which we will collaborate with AT manufacturers.

We advertise/market AT in a more appealing and acceptable way, sell and deliver AT products, and provide professional consulting and designing services to individuals, communities and organizations.

We promote barrier-free tourism by providing accessibility information, and persuading tourist spots to place assistive devices on sites to the tourists.
We report tourism from a human-centered perspective, which can generate ad fees and consult domestic and international travellers.

We plan outreach activities and provide workshops to patients, training sessions to institutions and STEM education specifically on AT to schools.

Some main AT manufacturers and certain medical care providers may compete with us, but we don’t operate solely on a medical model and actually we give more attention to people’s social needs, and thus we invest more in inclusive activities for people with special needs and take full advantage of communities.

There are numerous tourism agencies and websites, which target to mass market however, we focus on a niche market that attends tourists' special needs.

To improve access and increase public understanding of Assistive Technologies in China, and to make Chinese societies more inclusive will be difficult. As a participative organization which is evolving according to clients needs, we intend to adapt to such challenges in their many different forms.

We will expand our mobile offices to more regions in China and exploit patient network to grow.

We recognize the importance of social media and will make it as our growth accelerator.
Our website is a window opened to China and foreign countries, for both our clients and the companies we work with ( our suppliers producing Assistive technology products, hotels, universities)

The unsatisfied market for 24 million people, the improving medical insurance system, and the booming market for tourism, especially for international tourists.

We will change China into a more inclusive and supportive society to face the challenge of accessibility.

In the short term, we improve lives of individuals with disabilities and reduce the loss of productivity for society of if they were otherwise to remain in low-employment or unemployed. In the long-term, we hope to stimulate the emerging market for AT in China thus increasing availability and reducing costs through improving individual, organizations, and community understanding and utilization of technologies needed to improve accessibility at home, in transit, in schools, in workplace, and in recreation and travel.

Actualmente no existe un método objetivo para medir la cantidad de movimiento y detectar patrones específicos de pacientes neurológicos con trastornos del movimiento, como parkinson y distonía.
Los pacientes deben acudir a la consulta del médico para hacer el seguimiento, y su enfermedad hace de este sencillo acto un reto de grandes proporciones.
Los médicos no disponen de una herramienta que les ofrezca, en base a criterios únicos, una puntuación del diagnóstico de este tipo de enfermedades (por ejemplo parkinson y distonía) y deben de invertir mucho tiempo en cada visita de seguimiento.
El sistema sanitario no ofrece alternativas para el seguimiento domiciliario, y por tanto debe soportar el coste del tiempo del personal médico investigador para realizar el seguimiento en consulta.

mememtum es una herramienta de análisis del estado de un paciente con parkinson y otras enfermedades con trastornos del movimiento para:
- Medir su estado actual y su evolución a lo largo del tiempo.
- Complementar y ayudar en el diagnóstico cualitativo del médico especialista.
- Analizar datos de tratamientos y poblaciones de pacientes con similares características.

Los componentes principales de la solución son:
- Aplicación Móvil: Diferentes tipos de sesiones a grabar con asistentes (wizards)
- Procesamiento de Vídeos en la nube: se analizan para devolver estado y medidas en cada tipo de sesión.
- Aplicación Web: Permite revisar las sesiones, compartirlas y gestionarlas.
- Portal Web: centro de operaciones del producto y los pacientes en Internet y contenidos eHealth

El objetivo de principal de mememtum es proporcionar una aplicación móvil para medir, analizar y ayudar a la evaluación del estado de pacientes con movimientos no controlados (parkison, distonía ...), permitiendo ahorrar costes y molestias a los pacientes, familiares y al personal médico.
Con el uso de tecnología y algoritmos específicos se puede conseguir una evaluación y diagnóstico totalmente objetivo, permitiendo además la supervisión del médico especialista de forma remota y en tiempo real.

Mememtum es:
- Preciso (medidas clínicamente probadas)
- No intrusivo
- Uso de tecnología al alcance de cualquiera (smartphones)
- Uso a distancia (por personal no experto)
- Bajo coste: un smartphone, un trípode, una conexión a internet y un aplicación móvil
- Escalable: su uso se puede extender a un porcentaje elevado de la población afectada
- Complejidad oculta: El usuario o el médico no necesitan preocuparse de toda la tecnología subyacente, sólo verán los resultados

Médicos, pacientes de enfermedades neurológicos con desordenes del movimiento, familiares, sistema sanitario, empresas de salud y farmacéuticas.

Podemos obtener un diagnóstico de alta calidad de forma muy barata, sencilla y rápida.
Los pacientes ven mejorada su calidad de vida
Los médicos pueden atender a más pacientes en menos tiempo y llamarlos a consulta sólo cuando lo crea indispensable. Más tiempo para investigación. Pueden calcular de forma más precisa la cantidad de medicamento y tratamiento necesarios.
Los familiares se ven descargados de las obligaciones de acompañar al paciente al hospital tan frecuentemente, pueden obtener el mismo resultado con un móvil desde casa.
El sistema sanitario soporta menos cantidad de tareas rutinarias consumidoras de recursos.
Las farmacéuticas podrían obtener datos estadísticos en tiempo real de la eficacia de sus productos en los pacientes.

Desarrollo de la plataforma y aplicación móvil.
Implementación de la infraestructura y tecnología necesarias.
Colaboración con centros de investigación médica para conseguir los mejores algoritmos.
Colaboración con centros de investigación informática para innovar tecnológicamente.
Colaborar con el sistema sanitario, farmacéuticas y empresas de salud para adaptar el producto a sus necesidades, generando un negocio sostenible.

Podemos considerar como competidores a iTrem, Kinesia, Rempark, Tremortracer, Dexteria.
Podría plantearse el problema de que alguna de ellas se convirtiera en una gran empresa y que nos saque del mercado. Para ello tenemos ya en marcha la gestión de las patentes en que se basa nuestra tecnología.
También puede que alguna farmacéutica grande, implicada mediante sus productos con este tipo de enfermedades, desarrolle un sistema similar y haga uso de sus canales para distribuirla. A este respecto somos una empresa muy ágil con experiencia en el sector eHeath y TIC, desarrollamos una solución universal y llevamos ventaja puesto que ya hemos desarrollado el análisis, plan de negocio, colaboraciones con centros médicos y de investigación, pruebas de validación y deasarrollo.

Existe la posibilidad de las siguientes amenzas:
- No ser capaces de crear una aplicación “creíble”. Para ello, trabajaremos con expertos del ámbito médico, con experimentos controlados y con certificaciones de calidad y con un enfoque de co-creación con los usuarios potenciales (“customer discovery”) para comprender la manera de aumentar su confianza y el valor que le reporta.
- Que las instituciones médicas y de seguros no confíen en el valor de esta aplicación. Para ello, se está ya contactando con estas instituciones para comprobar este punto y asegurarnos de su valor.
- No ser capaces de explicar claramente la manera en la que manejamos información médica de los pacientes. Será crucial eliminar cualquier cualquier miedo de los actores a nivel técnico y legal

Fase I.- Desarrollo y Lanzamiento de MPV de mememtum (2013 Q1 y Q2)
Fase II.- Crecimiento de producto. Aplicación web, I+D de señales e imágenes, posicionamiento.
Fase III - Ampliación: Nuevos grupos de pacientes, mememtum para centros médicos, mememtum para investigadores, internacionalización

1.- Las enfermedades son iguales en todos los sitios. Si la aplicación es aceptada en un país, puede ser aceptada en cualquier parte del mundo.

2.- La aplicación se desarrollará desde el primer día con un enfoque internacional. En cuanto a la localización e internacionalización de sus textos e interfaces gráficas, pasando por su imagen de marca, tipos de experimentos y planes de marketing.

Conseguir la mayor parte de usuarios en pacientes con parkinson y distonía en España
Trasmitir al colectivo de médicos neurólogos de España los beneficios de Mememtum, y que lo difundan entre sus pacientes.
Obtener el apoyo de instituciones médicas, farmacéuticas, de empresas de salud ...
Internacionalización
Aumentar el número de enfermedades diagnosticables

En el primer semestre de 2013 tendremos la aplicación disponible para su compra en los principales markets de smartphones. El objetivo es alcanzar los clientes necesarios para validar el negocio y pasar a la siguiente fase.
El resto de 2013 y 2014 estará focalizado en conseguir más clientes, aumentando el numero de enfermedades diagnosticables a través de I+D con centros de investigación, desarrollar nuevas funcionalidades en la aplicación y mejoras técnicas.
A partir del 2015 comenzaremos a dar soluciones a otros actores como centros médicos, investigadores neurológicos, farmacéuticas, compañías de salud, sistemas públicos de salud ... y la internacionalización, comenzando por Latinoamérica y Europa.

We are trying to help the kids who are seeking our services since the last five to six years. The kids are now in their adolescence and very soon will become adults. Our aim to help them as they grow and make them independent rather than turn them away saying that we don't have the facilities to help them. Instead we would create a set up to help them and many many more who need help and are at home and their parents are constantly thinking of what happens to them when they are no more. We wish to change this depressing picture and give a quality life to parents and their adult individuals with Autism!

We have started pre-vocational training centre for the adolescents. We also have frequent sleep overs where the kids and adolescents stay with us for one or two days. We have no vacations in our set up so that we don't break the structure the kids need.
Aim is to now have a fully efficient vocational centre for adults on Autism spectrum. Make the sleep overs happen every alternate week rather than once in three months. And gradually have the sleepovers for three-four days rather than fewer days.
We need more training on how to deal with this scenario from places where this is happening very well!

My vision is to have a respite and residential setup for adults with Autism in Mumbai which adds quality to their life. Residential set up will start after successful completion of three years of respite care
My objective is that parents of adults with Autism are stress free and not worried about their kids when they are no more.

Respite care is a set up where clients with Autism will stay with us for two days in a week and residential facility is a set up where they will stay with us and work with us forever.

To begin with the respite care centre for 10 clients four times in a month -each time for two days.

Individuals with Autism who are from 15 years and beyond.

We have been working with Autism for last 12 years and families of kids with Autism know us. We also have a website and a Facebook page by which we reach to our clients and update them. We also attend conferences and workshops on regular basis and meet with professionals in our field and update them with happenings at our center.

We mainly provide 4 services. One in which kids comes to us for individual therapy once, twice or thrice depending on their requirement. In the second form of service, kids come to us everyday for two hours and three and half hours. In the third form of service, kids come in a group once in a week for development of social skills. In the fourth form of service we provide training and education to parents and professionals.

Many child development centers and early intervention centers are our peers and competitors. None of the child development centers or centers who deal with Autism have the concept of sleepovers, respite care and residential setup for adults with Autism. Everyone is trying to work out this model and most others are not very keen to work with adults since handling them is difficult.

The main challenge that we are currently facing is lack of space - we are operating out of a rented premise and thus we have to shift every time the lease expires.
We have approached corporates, rotary clubs, hospitals and other charitable organizations who have their own space and trying to work out opportunities to get space on long term lease of 25 to 50 years.

In the beginning when we start off the project there would be 10 individuals with Autism in respite care. After every three months one new client will be added to the respite care.

There are ten lakhs people with Autism spectrum in Mumbai. Out of these, around two to three lakhs are adults. Most of them and their families are waiting for a setup that we are proposing and it is the need of the hour not just in Mumbai but India at large.

My key growth objectives are to be able to provide a model of service to adults with Autism where they live with respect and dignity and get value added to their life. They will be engaged in activities that provides them an opportunity to sustain themselves. Another major objective is to relieve the stress on the part of their parents as to what will happen to their kids when they are no more.

My short term goals are to be able to provide this service model to 10 individuals with Autism in the respite care. Gradually have the service extended to 18 in the respite set up by the end of one year. In the second year and third,we will continue with the same number of individuals. We will shift the individuals from respite to residential care in the beginning of the fourth year.

we need to look at core causes and transform them into solutions. Our medical world loves pills that do nothing but ignore causes - ignored causes grow affecting us all

how we perceive reality is causing social problems. We can all admit we live in systems and all systems are dysfunctional. Insanity is doing the same thing over and over expecting a different outcome. What's different is actually recognizing flaws and introduce solutions. to see something wrong is to know what is right - so we do have all answers if we can make a complaint. We will never introduce social change if we don't fix all flaws in the systems we live in. Working within flawed systems to cause change is doing the same thing we've done since time began - it doesn't work.

I am at the stage of producing video on all the research I've done. it would have more impact if done professionally with amazing graphics and special effects.

How can you put a value on social change? I can say this solution would generate enough funds to unfold all Global changes needed. This not only provides new information but new information can generate funding for new ideas -

anyone who is dying, suffering from illness, aging or wanting to find solutions to any problems experienced

because this concept involves some deep, complex sciences, it requires an educational film. anything short of this would bring misunderstanding and miss beliefs as to it's potential. the claims are to big for most to believe

developing animation using zero funds- using what I have to make things grow

I have no competitors as this is something completely new

since this information unfolds solutions, all challenges offer more solutions. I have no obstacles other then the belief in myself

once I have uploaded a completed video, I've achieved my personal success. From there I examine how others relate and make improvements based on that. If I can't explain it, then I work on my personal communication skills

being at the very bottom provides nothing but growth. The more society recognizes social problems the more motivated people will be in learning new ways. If everything is wrong, that provides opportunity for everything that is right.

to produce video's that make people question and think about possibilities.

produce video, examine perceptions and constantly making improvements until it's well understood.

El problema determinado en este caso es la poca atención que brinda el estado Colombiano a estos municipios alejados de la civilización que en muchos casos mueren y otros casos no se les da un diagnostico preciso de su falencia ya que el medico general que en muchos municipios solo cuentan con 1 persona para atender las necesidades de miles y que el medico no tiene la especialidad para intervenirlo. pero que gracias a la tecnología y su cobertura en estos sectores podemos ayudar a prevenir, detectar y realizar una intervención quirúrgica por intermedio de un equipo con las características necesarias para operarlo desde el consultorio de un medico especializado.

operar remotamente por intermedio de una webcam la atención en ciertos casos que el medico de la unidad no pueda atender y serán remitidos a una consulta por este medio, directamente con un especialista en determinado lugar que pueda diagnosticar una enfermedad con la ayuda del medico en el centro hospitalario que sera el enlace: paciente-medico rural-especialista. la vídeo medicina no es una técnica nueva ya se ha usado en varios casos donde médicos especializados interactuan con el paciente ubicado a miles de kilómetros y en algunos de estos casos han realizado procedimientos quirúrgicas , indicándole al cirujano todo el procedimiento en tiempo real.

nuestra visión es darle prioridad a los casos mas complejos que se presentan a diario en estas unidades llegando a mas pacientes y mejorando su estilo de vida empezando por la salud física. nuestro proposito es llegar a la mayor cantidad de población vulnerable existente en los distintos municipios del departamento del atlántico.

nuestra propuesta de valor consta de lo siguiente:
equipo de Médicos especializados en distintas ramas; los cuales desde su consultorio atenderán los casos.
Tecnología: utilizamos un equipo con las características necesarias para el desarrollo del programa.
Reducción de costos: tener un medico especializado en cada municipio resulta muy costoso para el estado por eso estos municipios solo cuentan con un medico general nuestros médicos se les pagara por servicio prestado desde su consultorio evitando así desplazarse hasta el lugar.
Atención múltiple de casos: Ya que contamos con un listado amplio de especialistas el medico rural puede dirigirse a cualquiera de ellos y así atender varios casos.
Novedad: En el Atlantico no se cuenta con estas ventajas.
Calidad: Especialistas medico

Población vulnerable de entre 1 y 90 años que se encuentran aislados por distintos motivos y los cuales les resulta imposible acceder a un diagnostico claro de su enfermedad o condición. Esta población se encuentra en los municipios alejados del departamento del atlántico.

Cada municipio de estos cuenta con una unidad de cuidados intensivos, que es la única opción con la que cuentan nuestros pacientes, esto nos da a nosotros la ventaja de que ya los beneficiarios necesitan nuestra atención.

Recursos físicos: tecnología, vehículos.
Recursos intelectuales: Grupo de médicos dispuestos a colaborar con sus conocimientos.
Recursos humanos
Recursos financieros: El estado, capital privado, capital semilla.
Solución de problemas

En la actualidad no existe competencia en el mercado respecto a la vídeo medicina.

después de abordar nuestros principales municipios del departamento del atlántico seguiremos con los departamentos del Magdalena y de Bolívar en los cuales también se ven estos fenómenos de pobreza extrema en algunos de sus municipios y los cuales necesitan intervención inmediata.

El acogimiento y desarrollo del programa en el primer municipio nos reflejara a nosotros el éxito y la aceptación que ha tenido VIDEOMEDICINE abriéndonos caminos y puertas para llegar a otras poblaciones de las muchas que Colombia tiene y que no poseen ninguna clase de ayuda medica.

Abordar toda la población vulnerable social mente que no puede acudir a un especialista por sus altos costos para el estado y para el paciente, nuestra estrategia es después de iniciar con uno o mas municipios del sector presentar un proyecto al estado en donde incluyan la VIDEOMEDICINE en el plan de salud de cada departamento, ahorrándole al estado mayores costos en su obligación de brindar salud

a corto plazo esperamos el crecimiento en menos de un año, para así llegar a nuestra meta a largo plazo que esperamos en 3 años ser pioneros en Colombia en el desarrollo de esta actividad y poder llegar a la mayor población posible atendiendo casos con expertos desde otros ciudades del mundo, que nos permita tener acceso ilimitado a cualquier especialista del mundo.

SE LOGRO ATENDER A 300 JOVENES DE 12 A 20 AÑOS DE EDAD, CONCIENTIZANDO ACERCA DE LA IMPORTANCIA DE CUIDARSE EN ASPECTOS DE LA SALUD Y DEJAR ALGUNA DROGA, SE LOGRO INFORMAR ADECUADAMENTE SOBRE LA SEXUALIDAD Y LO IMPORTANTE QUE ES PARA FORMAR UNA FAMILIA EN EL FUTURO, DEMOSTRANDO LOS PROS Y CONTRAS, ASI COMO LOGRAMOS FORMAR UN GRUPO DE JOVENES QUE QUIERE HACER CAMBIOS EN LA COMUNIDAD Y MUCHAS MAS.

LOS INDICES DE ALCOHOLISMO, DROGADICCION, EMBARAZOS PREMATUROS, SOBREPESO, VIOLENCIA DISMINUYERON, LOS JOVENES CREARON EMPRESAS QUE AYUDARON AL DESARROLLO COMUNITARIO, EL CENTRO DE CARIDAD COMUNITARIA ATIENDE A MUCHOS JOVENES CON PROBLEMAS SEXUALES, DISCAPACIDADES Y AYUDAS A LA COMUNIDAD EN GENERAL, CANALIZANDO CASOS FUERTES Y GRAVES A OTRAS INSTANCIAS.

REALIZANDO ENCUESTAS A LOS JOVENES EN GENERAL, NO SOLO A LOS ATNEDIDOS.
COMPARANDO CIFRAS ANTERIORES DE LAS ADICCIONES CON LA SECRETARIA DE SALUD.
ENTREVISTANDO A LAS FAMILIAS BENEFICIADAS.

TODO BASADO EN PORCENTAJES DE ACUERDO AL GRADO DE VULNERABILIDAD Y POBREZA DE LA COMUNIDAD.

MOTIVANDOLOS A PARTICIPAR, Y CREANDO MENTALIDADES DIFERENTES, QUE NO TODO ES SOLO TRABAJAR O MIGRAR A LOS EU. QUE NOSOTROS PODEMOS INNOVAR Y TRABAJAR Y AL MISMO TIEMPO AYUDAR. MOTIVAN DOLOS A QUE ATIENDAN EL CENTRO DE CARIDAD, Y QUE NOS PLANTEEN UN PROYECTO QUE A FUTURO PUEDAN ESTABLECER COMO NEGOCIO O EMPRESA PRODUCTIVA Y QUE NO AFECTE EL ENTORNO SOCIAL, CULTURAL Y AMBIENTAL.

DE ACUERDO A LA DEMOCRACIA, CUANDO LOS LIDERES QUE LLEGUEMOS A EDAD AVANZADA O ADULTA, YA NO PODREMOS FORMAR PARTE DEL PROYECTO, EN PRIMERA PORQUE LA ORGANIZACION ES DE JOVENES, Y SIEMPRE TIENE QUE ESTAR FRESCA DE IDEAS, Y FUERTE EN ENERGIAS. LOS JOVENES QUE ESTEN PARTICIPANDO EN EL MOMENTO QUE NOSOTROS TENGAMOS QUE SALIR TENDRAN QUE VOTAR POR LOS NOMINADOS O NOMINADAS, Y VER QUIEN TIENE LAS CARACTERISTICAS DE SER; HUMILDE, FUERTE, INNOVADOR, CREATIVO, GENEROSO, CON CAPACIDAD DE LIDERAZGO Y QUE NUNCA PIERDA LA ESPERANZA Y SENCILLEZ, QUE NOS CARACTERIZA COMO GRUPO.

CON LOS QUE NOSOTROS MIMOS AUTOGENEREMOS, TENEMOS PENSADO ARRANCAR UN PROYECTO PRODUCTIVO DE DULCES CASEROS, DONDE PODAMOS VENDERLOS Y AUTOFINANCIARNOS, ESTOS DULCES SON LIBRES DE TRANSGENICOS, COLORANTES Y CONSERVADORES, HECHOS CON RECURSOS 100% NATURALES Y QUE NO AFECTAN TU ALIMENTACION DIARIA, TAMBIEN VENDIENDO PRODUCTOS EOCLOGICOS QUE YA SABEMOS HACER, COMO LIBRETAS, FLORES DE PET, FLOREROS, ALCANCIAS, PORTAPAPELES. ETC.

De acuerdo con los indicadores sobre el número de reproducciones que los videos tengan, comprobaremos el impacto que éstos han tenido. Así mismo, a través de la difusión del video en redes sociales, y de acuerdo con los comentarios que los usuarios emitan, sabremos si el impacto de estos ha sido eficaz, y podremos proyectar el nivel de incidencia de los éstos. Obteniendo así un promedio de la población a la que ésta llegando el material y su impacto en la misma.

En la cantidad de ususarios que se sumen a nuestro proyecto, sea para la elaboración de nuevos materiales, o en la difusión de los videos en conferencias, o eventos organizados alrededor del impacto que nuestro material haya generado.

Nuestro indicador principal es el número de visitas que nuestro material tenga al ser publicado en internet, desprendiendose de éste los comentarios y likes que obtenga a través de su difusión en redes sociales. Otro de nuestros indicadores será el número de jóvenes inscritos en el foro de ayuda y los asistentes al grupo por medio del conocimiento de este material. A los seis meses de haber subido nuestro material a la red, se elaborará una campaña en puntos estratégicos donde concurre un mayor número de jóvenes, a través de un breve cuestionario sabremos si los materiales han tenido un impacto real entre dicha población, y aproveharemos, en caso de qué éste no sea de su conocimiento, para que lo vean y se propague con mayor amplitud.

Al subir nuestros materiales a la red, creaemos un sitio dedicado a nuestro proyecto, en el que la participación de los usurios será indirecta, considerndo a ésta a través de la simple difusión del video, o activa , es decir a quéllos que deseen unirse al proyecto, ya sea para la creación de nuevos materiales, o proyectos que giren en torno a estos.
Aprovecharemos la campaña para la evaluación del impacto de nuestro proyecto, como una estrategia más para sumar a jóvenes emprendedores.

En el momento en que los fundadores tengan a bien retirarse, se llevará a cabo una reunión de carácter extraordinario, a fin de elegir a los nuvos líderes que releven a los anteriores, de acuerdo a la participación activa que hayan tenido en el proyecto, y a laspropuestasque presente en su candidatura para ocupar dicho cargo. Dichas candidaturas se harán publicas en el sitio web del proyecto, ya que el voto de los usuarios se tomará en cuenta para la desición final.

Gracias a la difusión de nuestro material, es muy probable que encontremos entre los usuarios nuevos patrocinadores que se sumen a la difusión del proyecto.