eDOTS: Exigiendo resultados confiables en los tratamientos de tuberculosis
Esta presentción ha sido seleccionada como finalista del desafío
Making More Health: Achieving Individual, Family and Community Well-Being .
En el estado actual del programa DOTS de la OMS, no existe un método para verificar la confiabilidad de la adherencia de medicamentos para la tuberculosis de una institución. Para corregir esta situación eDOTS utiliza dispositivos biométricos para monitorear diariamente dicha adherencia mediante el registro digital de los pacientes en una clínica de OpASHA. Todos los días cada clínica envía su registro mediante SMS a un servidor central. Cuando un paciente no se registra, se envía una notificación a múltiples niveles de la organización y un consejero lleva la medicación a la casa del paciente. A través de este sistema, los pacientes que no cumplen con el tratamiento se detectan fácilmente y se los educa sobre los peligros de la tuberculosis resistente a los medicamentos.
Sobre ti
Sobre ti
Nombre
sandeep
Apellido
ahuja
URL de Twitter
@OperationASHA
URL de Facebook
Sobre tu organización
Nombre de la organización
Operation ASHA
Sitio web de la organización
Teléfono de la organización
09310298004
Dirección de la organización
D-156, first floor Sarita Vihar
País de la organización
India, DL
Países en donde este proyecto está creando impacto social
India
Tu organización es
OSC/ONG
¿Cuánto tiempo ha estado operando la organización?
Más de 5 años
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Innovación
Título del Formulario de Inscripción
eDOTS: Exigiendo resultados confiables en los tratamientos de tuberculosis
¿Qué cambios quieres traer al mundo?
En el estado actual del programa DOTS de la OMS, no existe un método para verificar la confiabilidad de la adherencia de medicamentos para la tuberculosis de una institución. Para corregir esta situación eDOTS utiliza dispositivos biométricos para monitorear diariamente dicha adherencia mediante el registro digital de los pacientes en una clínica de OpASHA. Todos los días cada clínica envía su registro mediante SMS a un servidor central. Cuando un paciente no se registra, se envía una notificación a múltiples niveles de la organización y un consejero lleva la medicación a la casa del paciente. A través de este sistema, los pacientes que no cumplen con el tratamiento se detectan fácilmente y se los educa sobre los peligros de la tuberculosis resistente a los medicamentos.
¿Cuáles son las actividades principales de tu proyecto?
The primary objective of eDOTS is to completely halt the incidence of drug-resistant tuberculosis. eDOTS uses biometric devices to monitor patients’ drug adherence on a daily basis by digitally logging a patient’s attendance at an OpASHA clinic. At the end of each day, every terminal will send its attendance record through SMS to a central server, where the information is synchronized. When a patient fails to register at a DOTS center, a notification is sent to multiple levels of the organization, and a counselor delivers the medicines directly to the patient’s home with supplementary TB education. As every missed dose is immediately followed with counseling, the adoption of eDOTS can produce near 100% adherence to medications.
¿Qué es innovador acerca de tu iniciativa? ¿Cómo es que es un nuevo aporte al campo?
Operation ASHA’s eDOTS program enhances the existing DOTS program with reliable and up-to-date biometric data. No other TB control system has proved that it can eliminate drug default, especially in poor areas. In addition, eDOTS only uses “off-the-shelf” components: a fingerprint reader, a notebook computer, and a simple cellphone, making it an easily replicable and cost effective method of fighting drug resistant TB.
Each time a patient visits one of OpASHA’s centers, the patient is required to confirm the visit on the terminal’s fingerprint reader. At the end of the day, each terminal will send the attendance log to an online server, where the data is imported into OpASHA’s Electronic Medical Record. Each time a dose is missed, the device sends a text message notifying the counselor, program manager, and office server that a patient follow-up is required within 48 hours. Since the counselor must acquire the patient’s fingerprint during the follow-up, drug default can be reliably prevented.
Because the system alerts OpASHA to defaulting patients, tuberculosis consultation is targeted and individualized to the patients who need it the most. Since the records and reports are automatically generated, the system eliminates the chance of human error in data collection (both accidental and purposeful). This digitization has also freed up the time of OpASHA’s counselors, who can reallocate that time to finding new patients and spreading TB awareness.
¿En qué fase está el proyecto?
Operando entre 1-5 años
Háblanos de la comunidad con la que estás trabajando, por ejemplo, sus condiciones económicas, las estructuras políticas, normas y valores, las tendencias demográficas, la historia y la experiencia con los esfuerzos de compromiso.
OpASHA currently serves a population of 4.5 million slum dwellers in India, and approximately 50,000 in Cambodia. India is home to 25% of the world’s TB patients, many of whom live in highly populated areas as rickshaw pullers, rag pickers, sex workers, street children, or beggars. Their habitats consist of simple concrete or sheet metal walls and a roof, if anything at all. Additionally, these houses or apartments generally are not equipped with sanitary facilities or windows for sunlight, which kills the TB bacteria, allowing it to fester and grow. Because of the high population density and miserable living conditions in India, these individuals are especially vulnerable to contracting tuberculosis.
Once contracted, their disease is often hidden or ignored. Firstly, it is hidden due to the lack of education about the disease highly prevalent in these areas and subsequent social stigma attached to it. Secondly, it is ignored due to the need to continue to earn wages, which precludes them from travelling to a clinic every other day to receive treatment.
If they decide to seek treatment, clinics are scarce in these regions, and because DOTS requires patients to take their medicines in front of a health worker, they must often travel long distances. Because of various reasons such as TB ignorance, unbearable drug side effects or missed wages, individuals often default on medicines. To solve this gap, OpASHA has hired local counselors to run informal treatment centers in established locations such as homes, businesses, and temples.
Compartir la historia del fundador y lo que inspiró al fundador para iniciar este proyecto
During a healthcare conference Dr. Batra discovered that the government of India was destroying millions of expired TB medications due to the lack of the proper channels for getting the medicine properly to the patients. Alongside her fundraising partner and today’s OpASHA CEO, Sandeep Ahuja, she conceived the idea of addressing India’s biggest problem in TB treatment: going the last mile by opening treatment centers directly in the slums to enable access to the patients within walking distance. From this conception in 2005, operations began with the first TB treatment center in 2006.
Sandeep and Shelly quickly found that a large amount of DOTS patients were defaulting on their regimen, and even institutions with good adherence records had been falsifying their reports. To combat this, they started the biometric initiative in 2010, which guaranteed accurate data. Microsoft Research and Innovators in Health joined the project and designed the software pro-bono. The pilot project launched by the end of the year, and by 2011, 17 eDOTS centers were operating in South Delhi.
Impacto social
Esta presentación se trata de
Describa cómo tu proyecto ha tenido éxito y la forma en que éste mide.
Although there are many indirect benefits to the eDOTS program, its primary measure of success is the ability to reduce the number of TB drug defaults (defined as two months of consecutive missed doses) and the actual number of missed doses. In areas that the project has been implemented, missed doses have been dramatically reduced and defaults have been completely eliminated. This rate is substantially lower than the 7% default rate published in the Government of India’s 2009 RNTCP Status Report.
The success of further eDOTS expansion will be measured by an independent study, which will compare the number of pre-implementation missed doses to the number of post-implementation missed doses. OpASHA’s preliminary data has shown that the introduction of eDOTS correlates with an initial spike in missed doses, which can be explained by the increased data reliability or the difficulties in training counselors to use the system. After this initial jump, the number of missed doses sharply declined, dropping below pre-implementation rates.
While a direct comparison is the best method to measure the effectiveness of eDOTS, the program has been successful in reducing the workload of health workers and focusing TB consultations to patients who have repeatedly missed doses. Because eDOTS utilizes technology, patients have felt confident in the quality of treatment they are receiving.
¿Cuántas personas han sido afectadas por el proyecto?
1.001- 10.000
¿Cuántas personas podrían verse afectadas por el proyecto en los próximos tres años?
Más de 10,000
Las iniciativas ganadoras presentan un plan sólido sobre cómo lograrán el crecimiento. Identifica tus objetivos a seis meses para hacer crecer tu impacto.
The first six-month will focus on the expansion of eDOTS to OpASHA’s existing centers. Integrating new terminals and training counselors to use biometrics will be the primary activity.
Tarea 1
Biometric terminals will be delivered to Operation ASHA’s TB treatment centers and its counselors will be trained to use the system. This training is estimated to take 2-4 hours.
Tarea 2
The next step will be implementing the systems in the field. Coordination between TB counselors and database management staff will be the key obstacle in this phase.
Tarea 3
Towards the end of the six-month time frame, each eDOTS center should become completely self-reliant. Any new biometric training will be handled by the program manager.
Identifica tus objetivos a doce meses.
Expansion of eDOTS will continue throughout OpASHA’s existing centers. Control trials will assess biometric effectiveness in areas where eDOTS has been implemented.
Tarea 1
Biometric terminals and training will be delivered to new areas where OpASHA works. An assessment will first measure the improvements in centers that were opened in the first six months.
Tarea 2
Second phase of biometric terminals will be implemented in the field. The assessment of the first phase will begin to compare project results with pre-project data.
Tarea 3
The second phase of biometric terminals will become self-reliant, and its program assessment will begin. Results from the first study will be published and used to acquire more funding.
¿Cómo va a evolucionar tu proyecto durante los próximos tres años?
1. All text will be removed from the biometric software to allow eDOTS to be adopted in illiterate areas. Although patient’s names will remain in the system, they will be identified by a unique symbol, which will correspond with the patient’s medicine box.
2. The biometric software will be modified so that a missed dose will send a text notification to the patient as well as the counselor, program manager, and office server.
3. When a counselor currently travels to a patient’s house to follow up on a missed dose, he or she must carry the laptop terminal. To make this process easier, the biometric software can be converted into an application for a smartphone.
4. The eDOTS program will be expanded to cover other regularly scheduled treatments such as immunizations, HIV ART, etc.
Sostenibilidad
¿Qué barreras pueden dificultar el éxito de tu proyecto y cómo piensa resolverlas?
Since the primary objective of eDOTS is to ensure the reliability of data, unauthorized access to the system has been a major concern. In order to prevent unwanted registration or editing of events on the clinic’s netbook when the counselor is not present, the terminal requests that a counselor (or program manager) scan their fingerprint when registering new patients or editing patient data. Because the time and date of the access will be monitored, individuals who tamper with the data during off-hours can be tracked and confronted.
One hurdle of introducing eDOTS to new areas is the re-training of staff members. During the first months of the project, there may be some difficulties in the adoption of the terminals. Because of this, OpASHA will send a senior program manager to its centers to ensure proper training and implementation of the biometric system. When designing the software, OpASHA and Microsoft Research made a special effort to use a minimal amount of text so that the system was easy to use in illiterate areas.
Another potential problem is the fingerprint recognition software’s failure to recognize a patient, and thus failing to register their attendance. Impoverished populations are particularly prone to have cracked or calloused hands due to the large amount of physical labor. Operation ASHA plans to overcome this barrier in two ways. First, a wet pad is made available to all patients, which improves the chance that the fingerprint is recognized. If this fails, counselors have the option of scanning the left hand backup finger.
Cuéntanos sobre tus alianzas.
The biometrics system behind eDOTS was co-developed with Microsoft Research and Innovators in Health. Their pro-bono work with Operation ASHA is valued at over $200,000, and has been essential to the eDOTS program’s success. They have also made the software open source so that it can be freely adopted by other TB organizations.
Another important partner has been MIT’s Poverty Action Lab, which has been conducting control trials with Operation ASHA to measure and improve its impact. After their work has been completed, a second study is planned to assess the effect of eDOTS in comparison to pre-biometric performance.
Other partners have been LGT Venture Philanthropy, who has given OpASHA considerable grants and has paid for highly qualified personnel; The Michael & Susan Dell Foundation; The Marshall Foundation; and the Sahayak Foundation. Many other organizations have provided additional financial and technical support.
The Government of India has also been an essential partner with OpASHA. Grants through the Revised National TB Programme have provided funding for recurring operational expenses in addition to the free medication, lab tests, etc. This scheme has been pivotal in OpASHA’s long-term sustainability.
Actual presupuesto anual en dólares americanos.
$250,001‐500,000
Explica tu selección.
Two years after Operation ASHA cures a patient of TB, it is awarded a small grant from the Government of India. The lag time means that outside funding must be acquired to start-up each clinic. However, after two years of operations, the clinic becomes fully sustainable through the grant. The initial start-up costs are funded by individuals, foundations, and businesses as a one-time expenditure.
The eDOTS program supplements Operation ASHA’s existing procedures, and is primarily funded by private donations and grants. Implementing biometrics costs about $2.50 per patient, which is a small fraction of the estimated $900 it costs for the overall TB treatment. Because eDOTS also increases the productivity of OpASHA’s health workers, counselors can cover more patients in the same amount of time. Thus, a portion of the government grant can act as a secondary support for biometrics.
As previously mentioned, Microsoft Research and Innovators in Health have played a major role in developing and maintaining the biometric system. Their assistance has made eDOTS a reality.
¿Cómo se va a fortalecer tu proyecto durante los próximos tres años?
The eDOTS project will be further developed (see 3-year plan in Development & Prosperity), but geographic expansion will be the primary method that the program is strengthened. Biometric systems will be introduced to all of OpASHA’s centers, and proper effectiveness assessments will be carried out.
However, geographic expansion does not necessarily mean the expansion of Operation ASHA. eDOTS can be replicated by other TB control institutions, and so educating other organizations to utilize biometrics with Directly Observed Therapy will be an important method of expansion.
Biometric tracking can also be used by non-TB institutions. To show its true capabilities, OpASHA will help develop its software to compliment other lines of work, such as neo-natal care and vaccinations.
Desafíos
¿Qué barreras a la salud y el bienestar aborda la innovación?
Por favor, seleccione un máximo de tres por orden de relevancia para el proyecto (de mayor relevancia se recibe un "1" y menor, un "3").
PRIMARIO
Falta de acceso físico a cuidados/falta de instalaciones de salud
SECUNDARIA
La falta de acceso a la información específica de la salud y la educación
TERCIARIA
Capital humano limitado (médicos, enfermeras, etc.)
Por favor, describe cómo la innovación específicamente aborda las barreras mencionadas anteriormente.
Operation ASHA brings tuberculosis treatment to areas that have no access to government care. It overcomes this gap by establishing treatment centers within established community institutions (homes, businesses, temples, etc.) Because there are few health workers in these areas, OpASHA hires individuals from each community and trains them to specialize in TB care.
The eDOTS program specifically targets the absence of proper health information by digitizing patient records and treatment attendance. Since the system also ensures the presence of the counselor, the innovation prevents health worker absenteeism.
¿Cómo estás haciendo crecer el impacto de tu organización o iniciativa?
Por favor, selecciona un máximo de tres posibilidades en orden de relevancia para ti (la más alta relevancia recibiría un "1" y la más baja, un "3").
PRIMARIO
Hacer crecer el alcance geográfico: Dentro de los países de acogida
SECUNDARIA
Influencia de otras organizaciones e instituciones a través de la difusión de mejores prácticas
TERCIARIA
Hacer crecer el alcance geográfico: Multipaíses
Por favor, describe cuál de las actividades para crecer están en curso o previstas para el futuro inmediato.
Operation ASHA currently provides TB treatment to over 4.5 million individuals in six different Indian states. Already, it has begun operations in Cambodia with plans to expand to other Asian and African countries. eDOTS, however, was designed to be replicable and scalable, and so educating other organizations to adopt the model is a high priority. Biometric monitoring should become standard practice for all tuberculosis control programs.
Colaboras con algunos de los siguientes organismos: (Indica todos los que corrrespondan)
Entidad del gobierno, Proveedores de tecnología, ONGs/organizaciones sin fines de lucro, Empresas, Academia/Universidades.
De ser así, ¿estas colaboraciones han ayudado a que tu innovación tenga éxito?
Government TB programs have been the sustainable backbone of Operation ASHA by providing grant money for each patient cured. It is not OpASHA’s goal to replace these programs, but to provide treatment in areas that they cannot properly reach.
Without the pro-bono work of Microsoft Research and Innovators in Health, eDOTS would have never made it past the concept stage of an innovation. Their continued maintenance and improvements to the system have been invaluable.
Funding from NGOs and for-profit companies has guided the project through its pilot phase, and towards expansion. These funds have been guided by external academic institutions, which have evaluated and contributed to OpASHA’s model and innovations.
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Comentarios
As a recovered patient of Tuberculosis this really interests me. Compliance and segregation are the two biggest issues in TB control.
Can this be replicated for other programs which require compliance example- psychiatric conditions?
My doubts about this idea are that the patient has to trek to the care centre everyday to take his/her medication? Is this feasible? What about transport costs which have been significantly increasing in India? Or is the health worker going everyday to every patient’s house from morning to evening to administer the medication? If the patient finds the worker coming to his/her home why should he/she be motivated to come to the clinic? How will you address this issue?
How will you audit the misuse? Simply putting the biometric finger does not mean that patient has been administered or taken the medication.
Have you done a pilot at any of your centres with a biometric device? Have you seen any significant results on compliance that you can share with us? What is the cost of one biometric device? What is the impact? In terms of compliance rate and in terms of number of new TB cases per population?
What are your plans for expanding within India?
What is your current default rate below 7%.
Really, Really commend your project. Specially when TB is curable and compliance terms are not for ever.
Akila
Akila, thank you for your comment, we are glad to see a positive yet critical response from someone who has been involved with tuberculosis treatment.
Under standard DOTS treatment, a patient has to make the trek to a care center every time they take a dose (they already do this three times a week). This is done during the first two months of the intensive phase treatment. After this, they are only required to visit the center one a week for the remaining four months. While this is an inconvenience, Operation ASHA establishes treatment centers in existing locations such as homes, businesses, and pharmacies, which allows us to remain open during unconventional hours (before and after work). As a general rule, we try to ensure that our patients do not have to walk more than 2 kilometers.
We have implemented our eDOTS biometric devices in 17 of our centers in Delhi. This initial implementation has been used to find the problems in the system. In the last three months we have had less than 1% default. The cost of a single biometric device is about US $240 (Rs. 1900) and costs approximately US $1.50 (Rs. 70) per patient. Because OpASHA has essentially eliminated default through eDOTS, the system has the potential to halt the incidence of MDR-TB if widely accepted.
Biometric devices can only assure the attendance of the patient, which is why they are operated by a health worker. It is unlikely that a patient will walk all the way to an eDOTS center to register his or her fingerprint, only to refuse the medications. If this was the case, our health workers can refuse to scan the finger until after the patient has taken the medicine. Biometric tracking does not take the place of direct observation, but it verifies the presence of a patient at a eDOTS clinic.
It is also unlikely that patients will abuse the home visits because it comes with targeted counseling. Further, because the home visits take up the time of our health workers, the visits are likely to be less cordial if they are a repeated occurrence.
As far as the expansion of the eDOTS system, Operation ASHA has been working with some academic institutions to start a trial study using biometric tracking for immunizations. We believe that the system could be used for diabetic, HIV, and ante natal patients. Importing the eDOTS software onto a smartphone is also an innovation to expect in the near future. This would make eDOTS easily adoptable by other TB organizations. While our expansion will focus on India first, we encourage TB institutions across the world to adopt our system.
Congratulations on being selected a Finalist in the Making More Health competition. This looks like great technology for a huge and compelling problem. Can you explain better how you plan to become sustainable? What role with the Government of India play in your sustainability plan?
-From the BI Judges Panel
The Government of India plays a large role in the sustainability of Operation ASHA’s eDOTS program. We receive free medicines and access to diagnostic labs and physicians’ services free of cost. In addition, we awarded a grant. This grant allows eDOTS sustainable. However, there is a two year lag time before we receive the grant. This gap is bridged with funding from donors.
The system also provides for tracking of staff, which eliminates absenteeism and improves productivity. eDOTS increases productivity of field staff by 30%. The savings in the very first year cover the entire cost of hardware and the set up. Savings in subsequent years will reduced the cost of our core program. Given a three-year hardware lifespan, the social return on investment for eDOTS is over 30 times the initial investment. It also provides for inventory management.
Looking Ahead at Future Opportunities:
With enormous success of the eDOTS initiative, it has now developed a life of its own. We are already working on including the addition of audio tracks for illiterate users and a migration to smart phones. It is now evident, however, that the system is capable of much more. It can be used in any situation in which long-term tracking of beneficiaries is needed, as well as where accuracy and transparency is critical. That is, with the appropriate additions and developments, this system could revolutionize the way that services are provided, wherever payments are linked to presence.
The founders of Operation ASHA, along with key personnel who have been involved in the development of the biometrics system, propose to expand and dramatically improve the biometrics system with the goal of making it the world’s most effective technological solution to track patients/ staff and other beneficiaries. The project will be established as a private, for-profit company, and will be open to venture capital investors. Customers will be governments, public health systems and NGOs seeking solutions to the challenges inherent in providing health care in a low-resource setting, using community health workers, mobile phones and intuitive technology to ensure transparent, quality results. Profits from this company will partly meet the funding requirement of Operation ASHA, not just the eDOTS system.
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