Ending the eczema and allergy epidemic, without drugs or expensive interventions
This project also has a Changeshop where you can read more about its latest progress.
Go to Changeshop: Ending eczema, w/o drugs or costly interventions.
SolveEczema.org is about helping families problem solve and eliminate their children's eczema, without drugs or treatment of any kind.
URL en Twitter
URL en Facebook
Sobre tu organización
Nombre de la organización
Sitio web de la organización
País de la organización
Estados Unidos, CA, Moffett Field, Santa Clara County
Países en donde este proyecto está creando impacto social
Tu organización es
¿Cuánto tiempo ha estado operando la organización?
Más de 5 años
¿Tu organización ha recibido premios y/u honores? Cuéntanos sobre ellos.
It would be an overstatement to represent this work as from an organization of many people, it has been grassroots work by myself and my husband.
Nevertheless, in 2006, an allergy magazine with over 100,000 circulation did a cover article, stepping outside their usual focus of just interpreting medical research for the public.
Referencias – Por favor provee dos referencias con una biografía de dos renglones y una dirección de e-mail para cada una.
5:32pm PST, I am removing these, I thought personal and contact information would be confidential. Please contact me directly for references.
La información que brindes aquí será usada para llenar las partes de tu perfil que hayan sido dejadas en blanco, como intereses, organización, y sitio web. Ninguna información de contacto será hecha pública. Por favor desmarca esta casilla si no deseas que esto suceda..
Selecciona la fase que describa mejor el momento en el que se encuentra tu emprendimiento
Crecimiento (tu iniciativa piloto ya se está aplicando y se empieza a expandir)
¿Cuánto tiempo se lleva poniendo en práctica tu iniciativa?
Operando más de 5 años
¿Cuál de las siguientes describe mejor la(s) barrera(s)s a la que da respuesta tu innovación? Elige hasta dos.
La necesidad: ¿Cuál es el problema que tratas de solucionar?
Pediatric eczema and allergies are a rising global epidemic. Many researchers acknowledge the problem is primarily environmental, yet research efforts focus on treatment. For over seven years, SolveEczema.org has been helping parents from all over the world to end their children's eczema and allergies, without medications or treatment at all; if parents are given the information to understand the environmental cause, they can give their children normal lives simply by eliminating the cause from their home environment. The greatest barrier is funding to demonstrate this through medical research and publication, in order to change the paradigm of thinking about allergies and eczema. Parents in rural and third-world countries can protect their families without dependence on interventions.
La solución: ¿Cuál es tu solución? Sé específico.
The SolveEczema.org solution gets to the cause of skin barrier disruption at the root of eczema, shows parents how to identify and understand it to give their children normal skin and lives without treatment. The problem comes down to how modern detergents - ubiquitous in homes across the world today in cleaning and personal care - impact the skin barrier and increase membrane permeability and allergic sensitization. The SolveEczema solutions gives families the information to identify how they may be affected, and how they can use simple, readily available alternatives. A medical study is needed to put the information in the hands of medical practitioners.
El Modelo: Muéstranos a través de un ejemplo específico cómo tu solución hace una diferencia, incluye tus actividades primarias
I receive email from families all over the world whose children suffer immensely. Many of these children haven't slept a single night through in their lives from the itching, or have been in the hospital because of infections, or ostracized because of their broken, oozing skin.
I met a little boy recently whose mom used the site to solve his eczema when he was about 18 months old. He's now 7. Eczema doesn't usually scar, but this boy's eczema had been so bad, he has a scarred area along the side of his face and neck. I realized, if his mom hadn't stumbled across my website one late night, this child would have at the very least been disfigured for the rest of his life. Instead, he's a beautiful, bright, sweet child with normal skin. His mom thanked me back then for allowing them to parent normally. Their whole world had been about his misery, bleeding skin, and infections.
Everyone thinks this is something wrong about the children. Imagine what that does to a child in the developing world, for the family to believe the child is weak or "defective". This problem has a genetic component, so not every child expresses the eczema. But it is fundamentally an environmental one, and unnecessary for most of these children to ever suffer.
Enlightening and demonstrating this would have a profound global impact. Demonstrating this solution with eczema would also highlight the benefits of the problem-solving approach used to come to this solution, potentially leading to further simple solutions for other diseases currently deemed intractable.
El mercado: ¿Quiénes son tus pares y competidores? Identifica a otros que también estén trabajando para dar respuesta a las necesidades que tú abordas y en qué te diferencias de ellos. ¿Cuáles son los desafíos que estos jugadores podrían representar para tu éxito o crecimiento?
I only wish there were competitors. I read the medical literature and see a lot of sincere effort and billions spent on research. I see study after study of eczema quality of life, quality of life in infants, adults, families, proposed measurement instruments for measuring quality of life, comparing measurement instruments, measurement instruments for eczema severity and prevalence, comparing and reviewing measurement instruments for severity and prevalence, etc. But I don't see empirical problem-solving.
The biggest challenge is old myths and beliefs about what causes eczema and allergy. It's difficult for anyone to accept that the answer is simple (although not obvious). I'm not associated with an academic institution, so I do have to publish to be taken as a peer.
Esta presentación se trata de
Historia de la fundación: Queremos saber acerca del momento en el que hiciste "¡Ajá!". Comparte la historia de dónde y cuándo el/los fundador(es) vio (vieron) el potencial de esta solución para cambiar el mundo.
When my baby developed severe eczema, I did everything I was supposed to, and it only got worse. I'd been through my own chronic health problems, and I couldn't bear for my child to go through something like that. So my husband and I systematically went about solving it. The Aha! moment came at the end, when we had cleared up the eczema entirely and realized the common thread. When other moms began asking for help, I published a few articles, then after hundreds of emails from people asking for more information, put up the web site. I've spoken with surfactant chemists, microbiologists, doctors, naturopaths, allergists, and hundreds of parents over the years, and read extensively about eczema in medical literature. Other people are not only able to end the eczema, but they're able to in the way the underlying basis would predict. I've even heard from my share of doctors who have used the site professionally or for their own children.
Por favor, describe el objetivo de tu iniciativa: un resumen de lo que están tratando de lograr
I'd like no less than to shed light on the cause of the rise in eczema, allergies, and asthma in the latter half of the 20th century, and demonstrate how to end it for millions of families across the globe. The goal is to publish the ideas, fund and complete a medical study, and disseminate the results in the medical community and to the public. At the same time, the goal is also to improve the website/develop better educational tools so that families don't have to wait for the results of a medical study to see the problem, understand, and get results for their children, as the website has been doing on a smaller basis for seven years.
Obviously, I can't conduct a medical study for $10,000. But a grant from RWJ would allow me to take giant steps forward.
¿Cuál ha sido el impacto de la solución hasta la fecha?
SolveEczema provides web-based information, with over 2,000 unique users per month. I can only judge the impact by the many letters I regularly receive from families, describing their journeys and their gratitude to have answers and relief for their children. I've witnessed it first-hand in helping families in my own community. Families who endured all the problems of pediatric eczema - lack of sleep, intense itching, broken, bleeding, or even oozing skin, infections, stress from all of the above - go on, relatively quickly, to lead normal lives.
I also often hear that families are able to mitigate or eliminate asthma and allergies of other family members when they implement the strategies for a child with eczema, consistent with the underlying basis. I've heard from families whose children were in the hospital regularly for asthma, who no longer needed intervention. (Atopic children are most likely helped by this solution.)
Cuál es tu impacto proyectado para los próximos 5 años?
Families frequently use the word "shocked" for how quickly and profoundly their child's skin changes when they find and implement the answer. Publication, dissemination in medical journals and popular press, and significant reductions in worldwide eczema and asthma rates within a short period of time thereafter are projected impact. Once demonstrated for infants with eczema, strategies for preventing eczema even more simply by educating pregnant women could be established and disseminated.
¿Qué barreras pueden dificultar el éxito de tu proyecto? ¿Cómo planean superarlas?
The barriers to success are (in this order):
1) Tightly held beliefs that eczema has many causes and is too difficult to solve simply. (Eczema has many triggers; in my experience helping people eliminate it, it has only a few seemingly disparate causes that can be tied together with an underlying biological basis. If the cause is removed, children can be around the triggers and not get eczema.)
2) My own lack of medical credentials
The proof is in the putting. I feel I can already publish short of a medical study and am working on a paper now. I'm working on a book as well, to be finished this spring, for which I have crowdfunding support. Publishing will get the ideas in the medical arena The ideas are consistent with the literature, it's just a different perspective.
Las iniciativas ganadoras presentan un plan fuerte de cómo van a alcanzar y realizar un seguimiento del crecimiento. Identifica tus metas a seis meses para el crecimiento de tu impacto
Scientific publication in a respected medical journal; science reporting in major outlets; ten-fold website traffic increase
Identifica tres grandes tareas que tendrás que completar para llegar a las metas de seis meses.
Convince RWJF to consider my proposal as it appears I will be an hour late submitting it (~4:20pm PST, not EST)!
Finish writing and submitting a scientific paper on the solution and novel theory on the rise of eczema and allergies worldwide.
Revamp the website to support community, so families can interact and help each other. Translate site to French and Mandarin.
¡Ahora piensa en grande! Identifica tu meta de impacto a 12 meses.
This solution - change of paradigm - in the hands of every pediatric practitioner and public health official of affected nations
Identifica tres grandes tareas que tendrás que completar para llegar a tu meta de impacto a 12 meses
After publishing, reach out to science reporters and media.
Find a medical partner and funding for a small prospective study or survey that can be done in a relatively short time frame.
Reach out to the most affected, environmentally aware nations, such as Sweden, to help them make dramatic changes quickly.
Cuéntanos sobre tus alianzas.
I have no existing partnerships. If I decide to go social business, I have a commitment from a successful area businessman (whose family benefitted from the solution) that he will put together a group of investors if I give him a business plan. I have been getting small business counseling through SCORE.
I am highly connected in a very educated community; developing appropriate partnerships when the time comes isn't a barrier.
¿Actualmente te estás dirigiendo a otras poblaciones, lugares o los mercados para tu innovación? Si es así, ¿dónde y por qué?
It depends on what this means. The ideas from this solution have broad implications to environmental science, to skin, lung, and gut cancers, to pollution in aquatic environments and as an unrecognized factor in the decline of frog and bat populations worldwide. Proving it first with pediatric eczema would allow further dissemination of the ideas.
I hope to demonstrate the value of the problem-solving approach used to find this solution, to benefit other medical problem solving.
Products developed for the eczema solution could be marketed to green consumers, not just those with eczema.
¿Qué tipo de sistema operativo y factores internos de la organización hacen que tu innovación sea un éxito?
It's been successful so far because the website brings a solution directly to families who need it. I've been operating just as a volunteer with a passion to help people until recently. There have been no organizational barriers because there has been no organization!
Por favor, pon en claro las necesidades u ofertas que hayas mencionado anteriormente y/o sugiere categorías de apoyo que no están especificadas en la lista
Since I am not a medical professional, publishing must be my entree. A mentor and a relationship with a local medical center, not predicated on my first providing them financial support, would be tremendously helpful. (But not essential.)
|61 weeks ago Cecile k said: Anne's approach to solving kids' eczema helped our family immensely and must have saved our child countless days or weeks of miserable ... about this Competition Entry. - leer más >|
|61 weeks ago Christina Cary said: Doctors, pediatricians, and dermatologists need to know about this solution. It's an uphill climb because there's no money in it! ... about this Competition Entry. - leer más >|
|61 weeks ago mary pei said: My nephews suffer from eczema and it was heartbreaking to see them so uncomfortable. It was only after we were told that detergents ... about this Competition Entry. - leer más >|
|62 weeks ago Laura Stone said: There are many worthy causes out there, and I'm sure eczema doesn't sound like the most urgent health problem--if you haven't ... about this Competition Entry. - leer más >|
|62 weeks ago Geena Cheng said: There's no if, and's, and or but's here. This information NEEDS to get out there as soon as possible. Even if there is only one person ... about this Competition Entry. - leer más >|
|66 weeks ago A.J. Lumsdaine updated this Competition Entry.|
|66 weeks ago A.J. Lumsdaine submitted this idea.|