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*Y.C.* Lerato Care – Love and Care

South Africa still has one of the highest maternal, child and infant morbidity and mortality. The fight to eradicate HIV and AIDS in Africa has been one of the longest and most urgent battles we have had in the history of health care.

As the former president, Nelson Mandela, said, “We are facing a challenge of unprecedented proportions, our response therefore must be unprecedented.” In South Africa many people are infected but we are all affected by HIV. One of the ways in which maternal health can be tackled and improved is by the following:

Identifying the problem: Prevention of mother to child transmission (PMTCT) of HIV relies on identification of HIV-positive pregnant women. The government has improved policy guidelines to ensure that HIV testing is routinely done during antenatal care. According to these guidelines HIV positive women have been made one of the priority groups for antiretroviral drug initiation according to set criteria (CD4 count < 350). In SA more than 90 % women attend antenatal care while more than 72% make more than four visit (“Every Death Counts” and “Saving Mothers Report”). However there are women that are diagnosed as HIV-positive only at the time of delivery. More than 90% of women are delivered in the health facility. This provides a perfect scenario for PMTCT. A huge challenge in monitoring success and ensuring ongoing maternal and child care is the fact that there is a significant loss to follow-up after delivery. Unless good measures and links are developed for both support and monitoring, this is going to have an impact on various outcomes (mortality, drug resistance, etc) since more women are going to be initiated on drugs during pregnancy.

Describing the idea: A good follow up plan of monitoring and support for such patients has to be in place. The plan should link to maternity, primary health and community elements. In South Africa midwives render a range of sexual reproductive health services in all levels of care. This puts them in position to provide a perfect link for this plan. Pregnancy offers an important opportunity to enroll women at risk of AIDS into lifelong care. It also creates an entry point for the partner’s involvement and possibility of making this a family intervention programme. PMTCT should not just be focused on antenatal and birth care but require ongoing monitoring and support from the healthcare workers particularly midwives, family and community members in order for maternal and child morbidity and mortality to be reduced.

The strengthening of these systems is the foundation of this idea. Practically the following interventions will be created or strengthened. Some interventions are already occurring on a small scale but there is a lack of coordination on a regional/provincial level.

•Development of well structured simple to use monitoring program for midwives
•Communication between clinics and staff by means of either implementing a database if there is none yet or strengthening the existing structure. This database will
oProvide weekly statistics
oFacilitate mother/child pair tracking and follow-up
 Monitor attendance
 Trigger tracing of women, children and families lost to follow-up
 Link with other relevant services such as paediatric and adult services to track mortality or morbidity of infants and women who should have attended routine follow-up
•Using cellular phone technology to communicate with mothers and track their follow-up
o Cell-phone technology is being implemented in pilot sites and the success of these projects will be monitored and applied based on their outcomes
•Introduction of community members as mentors (e.g. HIV positive mothers or elders, etc) in the organization who will do home visits when mothers/infants do not return for care.
•Monitoring and evaluation team to assist with data analyses and feedback and liaise with the “Saving Mothers Saving Babies” project as well as government statistics
•Create support group in communities for mothers who are struggling to attend or who are ill.

Conclusion: The highest mortality and morbidity rate can be seen in mothers and infants who do not attend recommended care. In order for us to build a stronger society we need to track HIV-positive mothers to discover what their needs are and assist them to access the care that is available. South Africa has a strong programme of care but the mortality figures show that not enough mothers and babies are reaching the care. This project aims to close the gap within various levels of services, between the community and the services that are available.

Sobre ti

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Sección 1: Sobre ti

Nombre

Hellen

Apellido

Kotlolo

Website

Organization

Country

Sudáfrica, GT

Are you an individual between the ages of 18 and 35 who would like to apply for a nine month Young Champions Program mentored by an Ashoka Fellow?

Sección 2: Sobre tu organización

Nombre de la organización

Sitio web de la organización

Teléfono de la organización

Dirección de la organización

País de la organización

n/a

La información que brindes aquí será usada para llenar las partes de tu perfil que hayan sido dejadas en blanco, como intereses, organización, y sitio web. Ninguna información de contacto será hecha pública. Por favor desmarca esta casilla si no deseas que esto suceda..

tu idea

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Name Your Project

*Y.C.* Lerato Care – Love and Care

Country your work focuses on

Sudáfrica, GT

Describe Your Idea

South Africa still has one of the highest maternal, child and infant morbidity and mortality. The fight to eradicate HIV and AIDS in Africa has been one of the longest and most urgent battles we have had in the history of health care.
As the former president, Nelson Mandela, said, “We are facing a challenge of unprecedented proportions, our response therefore must be unprecedented.” In South Africa many people are infected but we are all affected by HIV. One of the ways in which maternal health can be tackled and improved is by the following:
Identifying the problem: Prevention of mother to child transmission (PMTCT) of HIV relies on identification of HIV-positive pregnant women. The government has improved policy guidelines to ensure that HIV testing is routinely done during antenatal care. According to these guidelines HIV positive women have been made one of the priority groups for antiretroviral drug initiation according to set criteria (CD4 count < 350). In SA more than 90 % women attend antenatal care while more than 72% make more than four visit (“Every Death Counts” and “Saving Mothers Report”). However there are women that are diagnosed as HIV-positive only at the time of delivery. More than 90% of women are delivered in the health facility. This provides a perfect scenario for PMTCT. A huge challenge in monitoring success and ensuring ongoing maternal and child care is the fact that there is a significant loss to follow-up after delivery. Unless good measures and links are developed for both support and monitoring, this is going to have an impact on various outcomes (mortality, drug resistance, etc) since more women are going to be initiated on drugs during pregnancy.
Describing the idea: A good follow up plan of monitoring and support for such patients has to be in place. The plan should link to maternity, primary health and community elements. In South Africa midwives render a range of sexual reproductive health services in all levels of care. This puts them in position to provide a perfect link for this plan. Pregnancy offers an important opportunity to enroll women at risk of AIDS into lifelong care. It also creates an entry point for the partner’s involvement and possibility of making this a family intervention programme. PMTCT should not just be focused on antenatal and birth care but require ongoing monitoring and support from the healthcare workers particularly midwives, family and community members in order for maternal and child morbidity and mortality to be reduced.
The strengthening of these systems is the foundation of this idea. Practically the following interventions will be created or strengthened. Some interventions are already occurring on a small scale but there is a lack of coordination on a regional/provincial level.
•Development of well structured simple to use monitoring program for midwives
•Communication between clinics and staff by means of either implementing a database if there is none yet or strengthening the existing structure. This database will
oProvide weekly statistics
oFacilitate mother/child pair tracking and follow-up
 Monitor attendance
 Trigger tracing of women, children and families lost to follow-up
 Link with other relevant services such as paediatric and adult services to track mortality or morbidity of infants and women who should have attended routine follow-up
•Using cellular phone technology to communicate with mothers and track their follow-up
o Cell-phone technology is being implemented in pilot sites and the success of these projects will be monitored and applied based on their outcomes
•Introduction of community members as mentors (e.g. HIV positive mothers or elders, etc) in the organization who will do home visits when mothers/infants do not return for care.
•Monitoring and evaluation team to assist with data analyses and feedback and liaise with the “Saving Mothers Saving Babies” project as well as government statistics
•Create support group in communities for mothers who are struggling to attend or who are ill.
Conclusion: The highest mortality and morbidity rate can be seen in mothers and infants who do not attend recommended care. In order for us to build a stronger society we need to track HIV-positive mothers to discover what their needs are and assist them to access the care that is available. South Africa has a strong programme of care but the mortality figures show that not enough mothers and babies are reaching the care. This project aims to close the gap within various levels of services, between the community and the services that are available.

Website URL

Innovación

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What makes your idea unique?

It focuses on maternal wellbeing by supporting existing programmes and creating new methods to save a vulnerable generation. It is unique project that will be coordinated by midwives passionate about saving the mother, the child and the family. The mother needs to be healthy in order for her to care for a healthy baby and this can be achieved through this project/idea.

Do you have a patent for this idea?

Impacto

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What impact have you had?

I have just qualified a two years ago, within this period I have made two presentations at the annual South African Congress of Midwives in 2008 and 2009. The titles: The Accuracy of a Verbal versus a Documented HIV-NEGATIVE Status in the Postnatal Ward And Peripartum Identification of HIV-positive Women and the Importance of Infant Follow-up which resulted from an operational research project (Masters of Science project – Dr KG Technau) and I have done educational talks with HIV positive pregnant women in the antenatal and postnatal wards of the hospital.

I have done interviews and given advice on a national TV talk show aimed at mothers and pregnant women (“Great Expectations”) on World AIDS day on HV and infant feeding

I have joined the midwives Aids Alliance which is an alliance that is mobilizing midwives to be catalyst in HIV prevention, treatment and care. I did this because I realized based on statistics that HIV is one of the major leading cause of maternal and child death in South Africa. I have mobilized other midwives. We meet and discuss strategies that can be implemented in order. I am working with other professional and the above presentations are part of the work that I have been part of I have been doing with them.

I am acting as coordinator for young midwives which we have just established based on interest to develop a different kind of leadership in South African. I am working with Midwives Aid Alliance to establish the branches of midwives in all nine provinces. My role is to is to come with ideas that are appealing to young midwives and ways of accessing them. I have created a facebook group for young midwives of South Africa and the world to have discussions and exchange ideas and to advise each other on current issues in midwifery. I intend to use this to train my peers so that we can work together as young people and develop evidence based interventions.

Problem

• The lack of a provincial database or system that links antenatal care with postnatal care of mothers and their infants or families
• Poor involvement of midwives in HIV prevention, treatment and care yet this is highly affecting midwifery output
• Staff motivation is low with high attrition rates in settings with limited resources and high patient loads. Therefore midwives are not in a position to be involved in proactive health care. They always have to respond to emergencies.
• Stigmatization in the community acts as a barrier for pregnant women to access available services

Actions

• Liaising with existing projects, efforts and institutions as the aim of this idea is to coordinate existing services to strengthen weak points in order to improve maternal outcomes
• The Midwives AIDS Alliance (MAA) is providing for midwives to engage on the issues around HIV and midwifery and it will therefore be an important integral part of the project.

Results

• Improving communication between facilities
• Improvement in the follow-up of mothers both with regard to their infants as well as their own postnatal and HIV related health needs
• Reduction of maternal mortality and morbidity rate due to
o More counseling and support opportunities for midwives and counselors
o Ensuring continuation of maternal anti-retroviral treatment
o By repairing psychosocial impact that HIV has had on family norms (e.g. orphaning of children, loss of productive group of people)

What will it take for your project to be successful over the next three years? Please address each year separately, if possible.

First Year
• Adapting and adjustment of the pilot project that we are working on to make it simple an easy to use for midwives, based on the lessons learnt
• Approval from the provincial government for interacting with their data structures or setting them up if not present (Memorandum of Understanding)
• Hiring relevant staff
o Data coordinator/analyst
o Community members (may be voluntary)
• Involving community leaders and traditional healers
• Liaising with Department of Health or NGO staff currently working with related issues in order for the project to be seen as a tool to make a difference rather than more work
• Working out budget
• Implementing project after approval in a phased approach
Second Year
• Expanding the implementation to the whole target region or province
• Providing and assessing progress through quarterly reports that will be worked out by data analyst
• Provide feedback to health care providers, government and other reporting entities (e.g. “Saving Mothers Saving Babies”)
Third Year
• Expanding to national level
• Identifying further young champions that will run and manage the project in other provinces as a way of identifying leaders

What would prevent your project from being a success?

• Lack of community support
• Lack of political approval or will
• Lack of motivation from staff in existing institutions
• Poor communication with or support from other projects
• Change in migration and population movement of mothers/infants that are part of the target community

How many people will your project serve annually?

Más de 10,000

What is the average monthly household income in your target community, in US Dollars?

Less than $50

Does your project seek to have an impact on public policy?

Sustenibilidad

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¿En qué fase está el proyecto?

Fase de idea

Tu organización es

No registrada

Is your initiative connected to an established organization?

If yes, provide organization name.

How long has this organization been operating?

Seleccione

Does your organization have a Board of Directors or an Advisory Board?

Does your organization have a non-monetary partnerships with NGOs?

Does your organization have a non-monetary partnerships with businesses?

Does your organization have a non-monetary partnerships with government?

Please tell us more about how these partnerships are critical to the success of your innovation.

Partnerships are essential in the healthcare field of work. Without agreement and support from government, any venture cannot be rolled out or expanded, nor can it thrive for many years.
Without partnerships with the community, there will not be the support of staff interacting with vulnerable populations.
Without funding and support from donors it will be difficult to start off a new venture

What are the three most important actions needed to grow your initiative or organization?

1) Planning the interventions and budget, and establishing partnership with existing services, government and communities. Creating a central work environment (office and communication) from which the project can be coordinated
2) Action Phase/Implementation: by starting to strengthen and report on links between clinics and services
3) Monitoring and evaluation with feedback mechanisms and improvement programmes

La historia

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What was the defining moment that you led to this innovation?

Through the encouragement of colleagues, friends that I had met while attending conferences and presenting abstracts they had put me in touch with Ashoka and Changemakers and this led to my realisation that I have already contributed and could contribute much more effectively. My work background and experience with mothers and newborns has triggered the specifics of my idea.

Tell us about the social innovator behind this idea.

Approximately 300 words left (2400 characters).

How did you first hear about Changemakers?

Friend or family member

If through another, please provide the name of the organization or company

Comentarios

Lun, 03/15/2010 - 17:41

I think the idea captures the essence of systems improvement which is so important when it comes to improving the impact of services that are already in place,
good luck for the entry, I believe it deserves recognition

Mar, 03/16/2010 - 12:13

Hellen,
Your idea of monitoring more closely the cases of HIV+ mothers is a great idea and I believe deserves attention. I just have a few questions. One, who will be processing and analyzing the information received and once that is received, what will they do to not only monitor but reduce the spread of HIV? How will the project be sustainable and what sources of funding are planned for the project? Remember that any answers to my questions should be added also to the main idea to ensure that the judges are able to see your expansion and improvements. Thank you so much!

Hellen Kotlolo profile img
Lun, 03/22/2010 - 08:21

Dear Amy, thank you for your question

I have tried to split up the answers slightly:

1) who will be processing and analyzing the information received?

Flow of Data: registers will be completed by counselors and professional nurses. One person per facility will be responcible to collect and either enter or depending size of facility send to central datacollector –
Data capturer enters data on database and oversees the process of sending data to places where patients are to be seen
Datacapturers also check database for follow-up, e.g. check infant visits and correlate with mothers and births
Follow-up of mothers is checked against adult treatment sites

As this network requires collaboration between a bigger and bigger net as it expands, there will initially be focus on each region in a province – and the establishment of a network in that region by finding out which clinics and services need to be linked.
The focus is maternal and child health – i.e. ensuring that HIV-positive mothers are adequately accessing care as well as their infants. Using the mother child unit as a starting point, the family can be accessed and encouraged to attend care.

2) what will they do to not only monitor but reduce the spread of HIV?

The problem of loss to followup is not always linked to patients not returning but a lack of awareness amongst facilities that the patient they are treating accessed care elsewhere and therefore is still in the system. As facilities are not linked enough, the dynamics of patient movement translate into loss to followup.
By offering more wholistic and continuous care, it will assist with reducing disease by the following: a woman treated in an HIV treatment centre is also a mother who has not yet brought her infant for testing – simply by knowing that the woman is a mother, the healthcare worker can at least encourage care of the infant if not do it him/herself by calling the baby with the mother. A new mother with a low CD4 count can access ART which can prevent further morbidity or even mortality.
The issue of feedback of statistics is a crucial one. A lot of staff despondency and attrition relates to lack of encouragement and praise. If a clinic provides antenatal care but never has the chance to hear what the transmission rate of mother to child for its clients is later because the same midwives do not test the babies. By sharing the statistics and interpreting them as well as using them to improve services and encourage good practice a lot can be done for staff morale and therefore better service which will then result in reduction of disease.

3) How will the project be sustainable and how will it be funded
The project will require its own funding which we will need to motivate for in the form of grants and possibly collaboration with established NGOs, but its main success will depend on the follwing two points:
• Engagement with doh services and support – as these services are under tremendous pressure and require assistance, the nature of the project to assist with data flow will
• Support from communities – this project needs to both get support from community structures (for example provision of facility/office, access to community and home visits, opportunity to present to community the activity and progress

Kind regards
Hellen