School of Patients
The School of Patients project is a participation network addressed to oncology treatment users, caregivers and health workers. An educational process on the emotional problems that come along with cancer based on three pillars: body like a territory, holistic health and support network, art like discourse.
A propos de vous
Section 1: You
Prénom
fernando
Nom
paredes
Adresse électronique
Website URL
Organization
recorrido 33
Pays
Argentine, C
Section 2: Your Organization
Nom
recorrido 33
Site Web
Téléphone
1567617849
Adresse
HUMAHUACA 4059 9A
Votre organisation est-elle une
Pas inscrit
Pays
Argentine, C
Your idea
Name Your Project
School of Patients
Country and state your work focuses on
Argentine, C
Describe Your Idea
The School of Patients project is a participation network addressed to oncology treatment users, caregivers and health workers. An educational process on the emotional problems that come along with cancer based on three pillars: body like a territory, holistic health and support network, art like discourse.
Website URL
Innovation
What makes your idea unique?
School of patients is a pedagogical proposal on health that seeks to develop strategies aimed at collective changes within oncology treatments, both in the population group of patients, family and caregivers as well as health workers.
In Buenos Aires the tendency is that oncologists provide assistance based in the hegemonic medical model. A top-down management of the health-disease dialectical pairs.A model that does not consider the person as a social subject. By leaving the person in an asymmetric position compared to physicians. And above all a model that has a biologic vision about the problem. Whenever a person suffers from cancer, he/she also suffers from an emotional and social disorder in addition to the organic pathology. Said disorder is increased by the fact of contracting a taboo disease and by the feeling of a threat to life itself. Contracting cancer produces a break in the daily life of both the person who suffers from it as well as his/her environment. Our proposal is innovative because it seeks to legitimize the voice of oncology treatment users, by means of a solidarity and democratic proccess that approaches treatmet user as a subject/citizen, a spokesman of discourse and rights. School of Patients
proposes actions aimed at guaranteeing opportunities and resources so that people can reach a maximum health potential, either in the stage of diagnosis, treatment, end of treatment or palliative care, from psychological and social aspects that are not addressed by the treatment.
Do you have a patent for this idea?
Impact
This Entry is about (Issues)
What impact have you had?
The direct impact observed is the request to participate in health, mental health and human rights seminars, advice and congresses.Since 2008 our organization has been generating exhibitions, seminars and events where we express in different ways that it is necessary to implement an emotional treatment in health centers addressed to people living with cancer. In this manner we also believe that practices such as Art and music therapy would be highly useful in awakening resillience centers to favor an active participation of treatment users. With the conviction that an active participation will reduce anxiety thus increasing ego capacities to face death related anxieties. At present we were requested to provide advice in an Hospice in Buenos Aires aimed at training staff on artistic resources, generating art and music teraphy spaces. We advice volunteer staff through our film season and palliative cares.which was requested by a nursing school in Spain. This year we were formally invited by the University's IX Congress on Mental Health and Human Rights to participate with art and health training sessions. We participated in the Art and Health International Congress as main representatives of a new approach to treatments.
Problem
School of Patients seeks to provide practical solutions to the problems of those living with cancer.Solutions to the treatment and to the disease. A disease that means a breakpoint in the everyday life of individuals generating difficulties in family, emotional, physical, educational, labor and social aspects.
Actions
a) At present our work is aimed at implementing communication strategies that enable us to transmit aspects related to the quality of life within the treatment or recovery processes both to users and health workers.To this purpose we created a blog with links to other sites and social networks.
b) At Marie Curie Hospital we developed the project called "waiting room"; an space with images inside a public hospital inviting users to play an "active" role, to revive sensations and motivation generating interest and meaning.A space which will afterwards become into a communication space.
c) We also carried out two art exhibitions called Oncology Inpatients and 33 Mannequins which seek to provide visibility to the subjective aspects of treatments aimed at taking these aspects into account.
Results
a) To achieve a site for communication, information and search of users, relatives and health workers, a technological network, understanding that participation positively influences the results. Changing the role of patient into user with full rights to a psychological and social health service in addition to medical assistance.
b) To generate a movement in the health field, by implementing the "waiting room" project in a physical space within a public hospital of the Autonomous City of Buenos Aires. By developing an operation mode starting from emerging aspects and change through art, taking into account all those individuals who have access to it.
c) To intervene the social imaginary on oncology treatments by means of art. With the purpose of achieving a bill which stipulates practices such as psycho-oncology, music therapy, occupational therapy and arts among others within oncology treatments.
What will it take for your project to be successful over the next three years? Please address each year separately, if possible.
2010
The corresponding registration of the team as a Proyecto Reccorido civil society.(in process).
A team of seven members of the association and a number of volunteers of about five people.
The incorporation of the project in one of the Oncology Public Hospitalsof this city.
Fund allocation covering materials, transport and fees for the project's coordinators.
Strategic partnerships with trade commercial entrepreneurs that enable us to carry out exhibitions to express this problems at social level.
Volunteer work by an accountant and a lawyer, at present we work with a law firm called Bullo).
Finish the documentary work on art and cancer.
Rent an external location for the operation of the association.
2011
A team of seven permanent members of the civil association and a number of volunteers of about five people. Being the first group entitled to a salary and the second to transport fees.
Strengthen strategic partnerships with commercial and social entrepreneurs who enabled to spread the project.
Institutionalize Art and Health Sessions within the oncology hospital where the group works.
Rent an external location for the operation of the association.
Financing of materials, transport, fees, miscellaneous and service expenses.
To reach an agreement with companies under the patronage mode.
2012
To impulse the sale of productions, within the framework of corporate social responsibility.
Applications aimed at receiving external funds that allow us to cover rent expenses, materials, transport and fees etc.
What would prevent your project from being a success?
One of the barriers that may be faced by the project is economic, since up to date the project is financed with the contribution from companies which provided us with material for the exhibitions work and participation in seminars. Also the generosity of those who donated time corresponding to their paid job time and those who donated money from their personal endeavors.
The lack of payment to the seven people who manage the organization implies that the work is done during free time or in moments taken from other responsibilities, thus exhaustion is greater and it is increasingly complex to carry out the proposal.
Restrictions imposed by companies also make the task difficult, since companies only donate stationary and photographic production (paper, developing) material.
Although the economic aspect is one of the main barriers which may hamper us to move forward, we take into account that other obstacles may arise from the task itself like introducing a new model in the oncology treatment field. But we believe we can solve them by means of the practice itself.
How many people will your project serve annually?
101‐1000
What is the average monthly household income in your target community, in US Dollars?
$100 ‐ 1000
Does your project seek to have an impact on public policy?
Oui
Viabilité
A quel étape votre projet en est-il ?
En place depuis 1 à 5 ans
In what country?
Argentine, C
Is your initiative connected to an established organization?
Oui
If yes, provide organization name.
payamedicos, la colifata, donde quiero estar.
How long has this organization been operating?
1‐5 années
Does your organization have a Board of Directors or an Advisory Board?
Does your organization have any non-monetary partnerships with NGOs?
Oui
Does your organization have any non-monetary partnerships with businesses?
Oui
Does your organization have any non-monetary partnerships with government?
Oui
Please tell us more about how these partnerships are critical to the success of your innovation.
The project called Recorrido 33 – acted as a network during these years. In this manner the first
partnerships with commercial entrepreneurs enabled us to carry out all the exhibitions and seminars, which generated links with other organizations such as Payamedicos, La Colifata and Donde quiero Estar, Eloisa Cartonera; we carried out art and health exhibitions with all of them, by which we recovered part of the invested money. This enabled us to carry out other exhibitions with other companies which contacted us with health entities, such as the Ministry of Culture, Ministry of Health and Education through the Public University. Some of these links helped us to carry out the project in the waiting room of Marie Curie Oncology Hospital.
What are the three most important actions needed to grow your initiative or organization?
• Its incorporation within Marie Curie Hospital space.
• Media Communication spaces.
• Financing
The Story
What was the defining moment that led you to this innovation?
School of Patients was born from Recorrido 33; it was very difficult to accompany a family member through a cancer process and the traditional features of present oncology treatments. Treatments that are far from an holistic vision, these treatments provide assistance from a unique approach that is the medical model. Since the break produced by this disease was complete it was necessary to develop a social support network. Which brought us a set of resources we want to communicate now.
Tell us about the social innovator behind this idea.
Include a biography of the person behind this innovation.(no more than 400 words)
Fernando Paredes is music therapist, Argentine 33 years old, for years he has worked in different educational institutes in the early years of childhood and last years of secondary school and collage delivering music classes. In 1998 he started delivering workshops in addiction rehabilitation clinics. While teaching music to children in 2003 he travelled to Ecuador where he settled and delivered music classes at kindergarten and primary schools. His works in music therapy led him to work with adults and elder people groups. In 2005 he travelled to deliver classes in Border schools in Neuquen. Communitarian environments became his preference after his experience in t22 as coordinator. Radio la Colifata, the first radio broadcasted from a neuropsychiatric hospital. While he was living in Guayaquil making a radio program in a slum with children of the area. When he returned to Buenos Aires he published a magazine called Minga Revista Comunitaria, aimed at spreading communitarian experiences in Argentina and Latin America.
In 2007 jointly with Veronica Di Meglio he developed Recorrido 33, a assistance device through art addressed to people living with cancer.
How did you first hear about Changemakers?
Through another organization or company
If through another, please provide the name of the organization or company
50 words or fewer
 | 86 weeks agoHylton Sarcinelli Luz said: Fernando, Importante a sua proposta de fortalecer a lugar humano do sujeito doente de câncer, colaborando para estimular experiências ... about this Competition Entry. - lire plus > |
| 90 weeks agofernando paredes submitted this idea. |