eDOTS : obtenir des résultats fiables pour le traitement contre la tuberculose

Competition Finalist

This entry has been selected as a finalist in the
Making More Health: Achieving Individual, Family and Community Well-Being competition.

Il n'existe pas de méthode dans le programme DOTS de l’OMS pour vérifier la fiabilité de l'observance au traitement contre la tuberculose d'un établissement médical. Pour y remédier, DOTS utilise des appareils biométriques pour contrôler au quotidien l’observance des patients en les inscrivant numériquement dans une clinique OpASHA. En fin de journée, chaque clinique envoie une fiche de présence par SMS à un serveur central. Lorsqu'un patient ne s'inscrit pas à un centre DOTS, une notification est envoyée et un conseiller vient directement lui livrer les médicaments en l’informant davantage sur la tuberculose. Grâce à ce système, les patients peuvent être rapidement identifiés et informés sur les dangers que représente la tuberculose pharmacorésistante.

A propos de vous

Organisation: Operation ASHA Visit websiteplus ↓↑ cacher↑ cacher

A propos de vous

Prénom

sandeep

Nom

ahuja

Twitter

@OperationASHA

A propos de votre organisation

Nom

Operation ASHA

Téléphone

09310298004

Adresse

D-156, first floor Sarita Vihar

Pays

Inde, DL

Pays dans lesquels ce projet crée un impact social

Inde

Votre organisation est-elle une

organisation à but non lucratif

Depuis combien de temps votre organisation opère-t-elle ?

Plus 5 années

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Innovation

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Titre du formulaire de participation

eDOTS : obtenir des résultats fiables pour le traitement contre la tuberculose

Quels changements pensez-vous apporter ?

Il n'existe pas de méthode dans le programme DOTS de l’OMS pour vérifier la fiabilité de l'observance au traitement contre la tuberculose d'un établissement médical. Pour y remédier, DOTS utilise des appareils biométriques pour contrôler au quotidien l’observance des patients en les inscrivant numériquement dans une clinique OpASHA. En fin de journée, chaque clinique envoie une fiche de présence par SMS à un serveur central. Lorsqu'un patient ne s'inscrit pas à un centre DOTS, une notification est envoyée et un conseiller vient directement lui livrer les médicaments en l’informant davantage sur la tuberculose. Grâce à ce système, les patients peuvent être rapidement identifiés et informés sur les dangers que représente la tuberculose pharmacorésistante.

Quelles sont les principales activités mises en place par le projet ?

The primary objective of eDOTS is to completely halt the incidence of drug-resistant tuberculosis. eDOTS uses biometric devices to monitor patients’ drug adherence on a daily basis by digitally logging a patient’s attendance at an OpASHA clinic. At the end of each day, every terminal will send its attendance record through SMS to a central server, where the information is synchronized. When a patient fails to register at a DOTS center, a notification is sent to multiple levels of the organization, and a counselor delivers the medicines directly to the patient’s home with supplementary TB education. As every missed dose is immediately followed with counseling, the adoption of eDOTS can produce near 100% adherence to medications.

En quoi votre initiative est-elle innovante ? Dans quelle mesure apporte-elle une contribution originale dans son domaine ?

Operation ASHA’s eDOTS program enhances the existing DOTS program with reliable and up-to-date biometric data. No other TB control system has proved that it can eliminate drug default, especially in poor areas. In addition, eDOTS only uses “off-the-shelf” components: a fingerprint reader, a notebook computer, and a simple cellphone, making it an easily replicable and cost effective method of fighting drug resistant TB.

Each time a patient visits one of OpASHA’s centers, the patient is required to confirm the visit on the terminal’s fingerprint reader. At the end of the day, each terminal will send the attendance log to an online server, where the data is imported into OpASHA’s Electronic Medical Record. Each time a dose is missed, the device sends a text message notifying the counselor, program manager, and office server that a patient follow-up is required within 48 hours. Since the counselor must acquire the patient’s fingerprint during the follow-up, drug default can be reliably prevented.

Because the system alerts OpASHA to defaulting patients, tuberculosis consultation is targeted and individualized to the patients who need it the most. Since the records and reports are automatically generated, the system eliminates the chance of human error in data collection (both accidental and purposeful). This digitization has also freed up the time of OpASHA’s counselors, who can reallocate that time to finding new patients and spreading TB awareness.

A quel étape votre projet en est-il ?

En place depuis 1 à 5 ans

Comment décririez-vous la population auprès de laquelle vous travaillez ? Parlez-nous, par exemple, de la situation économique, des structures politiques, des normes et des valeurs, de l'évolution démographique, de l'histoire ou des précédentes expériences d'engagement communautaire.

OpASHA currently serves a population of 4.5 million slum dwellers in India, and approximately 50,000 in Cambodia. India is home to 25% of the world’s TB patients, many of whom live in highly populated areas as rickshaw pullers, rag pickers, sex workers, street children, or beggars. Their habitats consist of simple concrete or sheet metal walls and a roof, if anything at all. Additionally, these houses or apartments generally are not equipped with sanitary facilities or windows for sunlight, which kills the TB bacteria, allowing it to fester and grow. Because of the high population density and miserable living conditions in India, these individuals are especially vulnerable to contracting tuberculosis.

Once contracted, their disease is often hidden or ignored. Firstly, it is hidden due to the lack of education about the disease highly prevalent in these areas and subsequent social stigma attached to it. Secondly, it is ignored due to the need to continue to earn wages, which precludes them from travelling to a clinic every other day to receive treatment.

If they decide to seek treatment, clinics are scarce in these regions, and because DOTS requires patients to take their medicines in front of a health worker, they must often travel long distances. Because of various reasons such as TB ignorance, unbearable drug side effects or missed wages, individuals often default on medicines. To solve this gap, OpASHA has hired local counselors to run informal treatment centers in established locations such as homes, businesses, and temples.

Racontez l'histoire du fondateur et ce qui l'a inspiré à démarrer ce projet

During a healthcare conference Dr. Batra discovered that the government of India was destroying millions of expired TB medications due to the lack of the proper channels for getting the medicine properly to the patients. Alongside her fundraising partner and today’s OpASHA CEO, Sandeep Ahuja, she conceived the idea of addressing India’s biggest problem in TB treatment: going the last mile by opening treatment centers directly in the slums to enable access to the patients within walking distance. From this conception in 2005, operations began with the first TB treatment center in 2006.

Sandeep and Shelly quickly found that a large amount of DOTS patients were defaulting on their regimen, and even institutions with good adherence records had been falsifying their reports. To combat this, they started the biometric initiative in 2010, which guaranteed accurate data. Microsoft Research and Innovators in Health joined the project and designed the software pro-bono. The pilot project launched by the end of the year, and by 2011, 17 eDOTS centers were operating in South Delhi.

Impact social

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Décrivez les résultats positifs obtenus par votre projet ainsi que la façon dont ils sont mesurés.

Although there are many indirect benefits to the eDOTS program, its primary measure of success is the ability to reduce the number of TB drug defaults (defined as two months of consecutive missed doses) and the actual number of missed doses. In areas that the project has been implemented, missed doses have been dramatically reduced and defaults have been completely eliminated. This rate is substantially lower than the 7% default rate published in the Government of India’s 2009 RNTCP Status Report.

The success of further eDOTS expansion will be measured by an independent study, which will compare the number of pre-implementation missed doses to the number of post-implementation missed doses. OpASHA’s preliminary data has shown that the introduction of eDOTS correlates with an initial spike in missed doses, which can be explained by the increased data reliability or the difficulties in training counselors to use the system. After this initial jump, the number of missed doses sharply declined, dropping below pre-implementation rates.

While a direct comparison is the best method to measure the effectiveness of eDOTS, the program has been successful in reducing the workload of health workers and focusing TB consultations to patients who have repeatedly missed doses. Because eDOTS utilizes technology, patients have felt confident in the quality of treatment they are receiving.

Combien de personnes ont été touchées par votre projet ?

Entre 1 001 et 10 000

Combien de personnes pourraient être touchées par votre projet au cours des trois prochaines années ?

Plus de 10,000

Les projets gagnants possèdent un programme solide indiquant leurs prévisions de croissance. Identifiez l’objectif à atteindre au bout de six mois pour accroître vos résultats.

The first six-month will focus on the expansion of eDOTS to OpASHA’s existing centers. Integrating new terminals and training counselors to use biometrics will be the primary activity.

Tâche 1

Biometric terminals will be delivered to Operation ASHA’s TB treatment centers and its counselors will be trained to use the system. This training is estimated to take 2-4 hours.

Tâche 2

The next step will be implementing the systems in the field. Coordination between TB counselors and database management staff will be the key obstacle in this phase.

Tâche 3

Towards the end of the six-month time frame, each eDOTS center should become completely self-reliant. Any new biometric training will be handled by the program manager.

Identifiez l’objectif à atteindre au bout de 12 mois.

Expansion of eDOTS will continue throughout OpASHA’s existing centers. Control trials will assess biometric effectiveness in areas where eDOTS has been implemented.

Tâche 1

Biometric terminals and training will be delivered to new areas where OpASHA works. An assessment will first measure the improvements in centers that were opened in the first six months.

Tâche 2

Second phase of biometric terminals will be implemented in the field. The assessment of the first phase will begin to compare project results with pre-project data.

Tâche 3

The second phase of biometric terminals will become self-reliant, and its program assessment will begin. Results from the first study will be published and used to acquire more funding.

Quelle va être l'évolution de votre projet lors des trois prochaines années ?

1. All text will be removed from the biometric software to allow eDOTS to be adopted in illiterate areas. Although patient’s names will remain in the system, they will be identified by a unique symbol, which will correspond with the patient’s medicine box.

2. The biometric software will be modified so that a missed dose will send a text notification to the patient as well as the counselor, program manager, and office server.

3. When a counselor currently travels to a patient’s house to follow up on a missed dose, he or she must carry the laptop terminal. To make this process easier, the biometric software can be converted into an application for a smartphone.

4. The eDOTS program will be expanded to cover other regularly scheduled treatments such as immunizations, HIV ART, etc.

Viabilité

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Quels sont les obstacles qui pourraient entraver la réussite de votre projet et comment comptez-vous les surmonter ?

Since the primary objective of eDOTS is to ensure the reliability of data, unauthorized access to the system has been a major concern. In order to prevent unwanted registration or editing of events on the clinic’s netbook when the counselor is not present, the terminal requests that a counselor (or program manager) scan their fingerprint when registering new patients or editing patient data. Because the time and date of the access will be monitored, individuals who tamper with the data during off-hours can be tracked and confronted.

One hurdle of introducing eDOTS to new areas is the re-training of staff members. During the first months of the project, there may be some difficulties in the adoption of the terminals. Because of this, OpASHA will send a senior program manager to its centers to ensure proper training and implementation of the biometric system. When designing the software, OpASHA and Microsoft Research made a special effort to use a minimal amount of text so that the system was easy to use in illiterate areas.

Another potential problem is the fingerprint recognition software’s failure to recognize a patient, and thus failing to register their attendance. Impoverished populations are particularly prone to have cracked or calloused hands due to the large amount of physical labor. Operation ASHA plans to overcome this barrier in two ways. First, a wet pad is made available to all patients, which improves the chance that the fingerprint is recognized. If this fails, counselors have the option of scanning the left hand backup finger.

Quels sont vos différents partenariats ?

The biometrics system behind eDOTS was co-developed with Microsoft Research and Innovators in Health. Their pro-bono work with Operation ASHA is valued at over $200,000, and has been essential to the eDOTS program’s success. They have also made the software open source so that it can be freely adopted by other TB organizations.

Another important partner has been MIT’s Poverty Action Lab, which has been conducting control trials with Operation ASHA to measure and improve its impact. After their work has been completed, a second study is planned to assess the effect of eDOTS in comparison to pre-biometric performance.

Other partners have been LGT Venture Philanthropy, who has given OpASHA considerable grants and has paid for highly qualified personnel; The Michael & Susan Dell Foundation; The Marshall Foundation; and the Sahayak Foundation. Many other organizations have provided additional financial and technical support.

The Government of India has also been an essential partner with OpASHA. Grants through the Revised National TB Programme have provided funding for recurring operational expenses in addition to the free medication, lab tests, etc. This scheme has been pivotal in OpASHA’s long-term sustainability.

Actuellement, quel est votre budget annuel (USD) ?

$250 001‐500 000

Expliquez vos choix.

Two years after Operation ASHA cures a patient of TB, it is awarded a small grant from the Government of India. The lag time means that outside funding must be acquired to start-up each clinic. However, after two years of operations, the clinic becomes fully sustainable through the grant. The initial start-up costs are funded by individuals, foundations, and businesses as a one-time expenditure.

The eDOTS program supplements Operation ASHA’s existing procedures, and is primarily funded by private donations and grants. Implementing biometrics costs about $2.50 per patient, which is a small fraction of the estimated $900 it costs for the overall TB treatment. Because eDOTS also increases the productivity of OpASHA’s health workers, counselors can cover more patients in the same amount of time. Thus, a portion of the government grant can act as a secondary support for biometrics.

As previously mentioned, Microsoft Research and Innovators in Health have played a major role in developing and maintaining the biometric system. Their assistance has made eDOTS a reality.

Comment pensez-vous pouvoir consolider votre projet au cours des trois prochaines années ?

The eDOTS project will be further developed (see 3-year plan in Development & Prosperity), but geographic expansion will be the primary method that the program is strengthened. Biometric systems will be introduced to all of OpASHA’s centers, and proper effectiveness assessments will be carried out.

However, geographic expansion does not necessarily mean the expansion of Operation ASHA. eDOTS can be replicated by other TB control institutions, and so educating other organizations to utilize biometrics with Directly Observed Therapy will be an important method of expansion.

Biometric tracking can also be used by non-TB institutions. To show its true capabilities, OpASHA will help develop its software to compliment other lines of work, such as neo-natal care and vaccinations.

Enjeux

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Quels problèmes liés à la santé et au bien-être votre projet tente-t-il de résoudre ?
Veuillez sélectionner trois réponses par ordre d'importance (notées de 1 à 3 par ordre de pertinence).

PRIMAIRE

Manque d'accès physique aux soins / manque d'infrastructures

SECONDAIRE

Accès limité à des informations et des formations sanitaires pertinentes

TERTIAIRE

Ressouces humaines limitées (médecins ou infirmiers qualifiés, etc.)

Veuillez décrire la façon dont votre projet s'attaque spécifiquement aux problèmes cités ci-dessus.

Operation ASHA brings tuberculosis treatment to areas that have no access to government care. It overcomes this gap by establishing treatment centers within established community institutions (homes, businesses, temples, etc.) Because there are few health workers in these areas, OpASHA hires individuals from each community and trains them to specialize in TB care.

The eDOTS program specifically targets the absence of proper health information by digitizing patient records and treatment attendance. Since the system also ensures the presence of the counselor, the innovation prevents health worker absenteeism.

De quelle façon faites-vous croître l'impact de votre organisation ou de votre projet ?
Veuillez sélectionner trois moyens potentiels par ordre d'importance (notés de 1 à 3 par ordre de pertinence).

PRIMAIRE

Croissance géographique: au sein du pays d'origine

SECONDAIRE

Influence sur d'autres organisations et institutions grâce à la diffusion de meilleures pratiques

TERTIAIRE

Croissance géographique: dans plusieurs pays

Veuillez indiquer les activités actuellement en place ou devant être mises en place dans un futur proche pour stimuler votre croissance.

Operation ASHA currently provides TB treatment to over 4.5 million individuals in six different Indian states. Already, it has begun operations in Cambodia with plans to expand to other Asian and African countries. eDOTS, however, was designed to be replicable and scalable, and so educating other organizations to adopt the model is a high priority. Biometric monitoring should become standard practice for all tuberculosis control programs.

Êtes-vous en collaboration avec : (plusieurs réponses possibles)

Organisme gouvernemental , un fournisseur de technologie, une ONG/organisation à but non lucratif, une entreprise à but lucratif, une université.

Si oui, dans quelle mesure ces partenariats ont-ils contribué à la réussite de votre projet ?

Government TB programs have been the sustainable backbone of Operation ASHA by providing grant money for each patient cured. It is not OpASHA’s goal to replace these programs, but to provide treatment in areas that they cannot properly reach.

Without the pro-bono work of Microsoft Research and Innovators in Health, eDOTS would have never made it past the concept stage of an innovation. Their continued maintenance and improvements to the system have been invaluable.

Funding from NGOs and for-profit companies has guided the project through its pilot phase, and towards expansion. These funds have been guided by external academic institutions, which have evaluated and contributed to OpASHA’s model and innovations.

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