Alianza Latina
Some years ago it was identified that several groups of patients with hematologic diseases existed in Latin America. Aiming to join efforts, knowledge and talent to strengthen organizations and assure more relevant results around the world we created the project Aliança Latino-Americana de Organizações de Apoio a Pessoas Convivendo com Doenças do Sangue - Alianza Latina (Alianza Latina – Latin American Alliance of Support Organization for People with Blood Diseases).
The network was founded in 2006 aiming to represent and educate support organization working with people with hematologic diseases in the continent. It works to all patients can have a better quality of life and the better treatment, one day. Today, 59 groups from 19 countries compose this alliance and it represents
About You
About You
First Name
Carolina
Last Name
Cohen
http://twitter.com/#!/abrale
Facebook Profile
About Your Organization
Organization Name
ABRALE - Associação Brasileira de Linfoma e Leucemia
Organization Website
Organization Phone
+55 11 31495190
Organization Address
Rua Pamplona, 518 - 5º andar, Jardim Paulista - São Paulo
Organization Country
Brazil, SP
Country where this project is creating social impact
Is your organization a
Non‐profit/NGO/citizen sector organization
How long has your organization been operating?
More than 5 years
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Innovation
Entry Form title
Alianza Latina
What change do you want to bring to the world?
Some years ago it was identified that several groups of patients with hematologic diseases existed in Latin America. Aiming to join efforts, knowledge and talent to strengthen organizations and assure more relevant results around the world we created the project Aliança Latino-Americana de Organizações de Apoio a Pessoas Convivendo com Doenças do Sangue - Alianza Latina (Alianza Latina – Latin American Alliance of Support Organization for People with Blood Diseases).
The network was founded in 2006 aiming to represent and educate support organization working with people with hematologic diseases in the continent. It works to all patients can have a better quality of life and the better treatment, one day. Today, 59 groups from 19 countries compose this alliance and it represents
What are the primary activities of your project?
Pursuing its mission of building capacity, promoting professionalization and cooperation among patient support organizations, the network of Alianza Latina promotes several activities such as:
• Annual forum for Latin-American organizations - that share the same ideals and that have similar missions – to receive management training, exchange information and share experience;
• Events of common interest among all the members;
• Trainings focused in improving management, capacity building and professionalization of member organizations;
• Participation in international and Latin-American events;
• Development of a Latin-America initiative of a hematology register to map the real needs of patients in the region;
• Identify new members aiming to represent all hematologic and onco-hematologic pathologies in all Latin American countries;
• Mentoring Program: a consultant visits member organizations to help them to develop or to improve their management and, more specifically, the fundraising skills of each organization;
• Monthly chat on subjects that interest the patient support groups allowing participants to clarify doubts with the best specialist in the field;
• Website - www.alianzalatinahemo.org - weekely updated with news and information on health and citizen sector;
• Participation in social networks (facebook and twitter).
What is innovative about your initiative? How is it a new contribution to the field?
As Alianza Latina aims to represent and train organizations that offer support to people with hematologic and onco-hematologic diseases in the continent, it helps - in a sustainable way – groups to optimizes the activities they perform for their patients therefore contributing to achieve a future when all people with blood diseases can access a better quality of life and the better treatment available.
What stage is your project in?
Operating for more than 5 years
Tell us about the community that you engage? eg. economic conditions, political structures, norms and values, demographic trends, history, and experience with engagement efforts.
Alianza Latina aims to train and professionalize support organization working with people with hematologic diseases in Latin America as this region congregates developing countries with significant fragilities, especially in health.
According to PAHO – Pan-American Health Organization 200 million people lack access to health systems and hospital in the continent.
At the beginning of Alianza Latina, all the support organizations working with hematologic diseases in Latin America were mapped. These organizations received a project summary with an association form for the organizations interested in joining the network. At its launch the network involved 26 organizations from 15 Latin-American countries. By the end of 2010 there was 59 organizations from 17 Latin-American countries, Spain and USA.
Share the story of the founder and what inspired the founder to start this project
Merula Steagall is graduated in Business (Pontifícia Universidade Católica) and she has a diploma in Administration for Third Sector Organizations (Fundação Getulio Vargas). She is president of ABRASTA (Thalassemia Brazilian Association) and ABRALE (Brazilian Association of Lymphoma and Leukemia). She also participated in the board of international organizations as Lymphoma Coalition, from England.
Merula actively participates for years in negotiations with the government to improve Brazilian health policies and mobilizes partners from the private sector to make available the best treatment for patients with thalassemia and blood cancers.
During the first four years of ABRALE, Merula noticed that Latin-American support organizations had little international power. This motivated the joint creation of a project to allow these organizations to increase this participation as a strategy to strengthen their action and representation through the replication of successful models and actions as well as training and capacity building.
As a result, it was created Alianza Latina that aims to optimize Latin-American NGOs management to support patients therefore contributing to improve treatments and the quality of life of people living with hematologic and onco-hematologic diseases in Latin America.
Social Impact
This Entry is about (Issues)
Please describe how your project has been successful and how that success is measured
Results are monitored by research and quantitative reports regarding participation of the member organizations. The following success metrics are used:
• Implementation of theory and use of tools offered in Alianza Latina trainings;
• Number of participants in the Annual Forum;
• Number of participants in monthly chats;
• Implementation of priorities defined in the Mentoring;
• Number of new members;
• Proactivity and participation in activities promoted by Alianza Latina;
• Changes/improvements in management of member organization: increase of fundraising, hiring of professionals, volunteer retention, development of strategic planning and budget, project implementation, development of patient register, among others;
• Website access report;
• Participation in social networks.
By analyzing such number, we can notice a growing number of member participating in the network, as well as a growing engagement and participation of the groups in proposed activities.
How many people have been impacted by your project?
More than 10,000
How many people could be impacted by your project in the next three years?
More than 10,000
Winning entries present a strong plan for how they will achieve growth. Identify your six-month milestone for growing your impact
We hope to continue Alianza Latina’s activities by offering free services to members in order to improve their knowledge and access to management tools.
Task 1
Pursue Alianza Latina’s activities involving member in order to identify new challenges and needs.
Task 2
Perform new researches with members in order to measure efficiency and effectiveness of implemented projects.
Task 3
Optimize and boost activities aiming to increasingly involve all members
Identify your 12-month impact milestone
We intend to recycle and expand Alianza Latina thus amplifying it and implementing a virtual tool for controlling and evaluating member’s activities and attended classes.
Task 1
Writing new training projects for Alianza Latina’s members considering needs raised in researches and contacts.
Task 2
Creation of a virtual platform for controlling members’ participation and for evaluating members’ engagement and understanding of classes.
Task 3
Develop new researches with members to measure efficiency and effectiveness of implemented projects.
How will your project evolve over the next three years?
In the next three years we expect Alianza Latina to grow its representativeness and efficiency, improving management processes of groups in the network in order to impact and modify reality of patients as well as of health systems of countries represented in Alianza Latina.
Sustainability
What barriers might hinder the success of your project and how do you plan to overcome them?
Alianza Latina’s core is producing and publicizing information in order to train organization and people and communities, in consequence. So, the main challenge to faced is barriers to establish partnerships to support activities of the network both information exchange and its funding. Such challenges are faced by prior strategic planning involving stakeholders in advance so they can be aware of this project relevance and they can offer their support properly.
Tell us about your partnerships
The initiative and its concept are permeated by the idea of partnership as Alianza Latina is a network of non-for-profit organizations working to support people living with blood diseases in Latin America countries founded in 2006 aiming to train and promote cooperation among the groups.
In another level, the establishment of partnerships is fundamental to achieve the activities developed by the network, as it is necessary know-how and funds in they can be performed properly and in alignment to its mission.
Current annual budget of project, in US dollars
$100,000‐250,000
Explain your selections
Alianza Latina’s project, funded in 2006, was conceived and developed by ABRALE (Brazilian Association of Lymphoma and Leukemia) with the mission of promoting training, professionalization and cooperation among patient support organizations in order to continuously improve the quality of life of people that live with blood diseases in Latin American. Alianza Latina’s present structure includes a Directive Comitee with 7 representatives from member organizations.
ABRALE is one of these directive organizations and helps significantly to raise funds and recruit talents to implement projects and actions of the network.
Thus we can say that Alianza Latina is sustained by human resources for several NGOs and by funds raised through donation of companies interested in the focused causes.
How do you plan to strengthen your project in the next three years?
Alianza Latina is an example of an extremely important project in the health sector as it promotes organizations training, empowering its activities and positively impacting thousands of patients. By providing information strategic information and fundraising we hope that in the long term organizations can improve their performance in the sector therefore financially strengthening themselves and the network. Additionally, we hope to strengthen the project economically by fostering awareness of actors and decision-makers in supporting production of knowledge and in attracting new funders.
Challenges
Which barriers to health and well-being does your innovation address?
Please select up to three in order of relevancy to your project.
PRIMARY
Lack of access to targeted health information and education
SECONDARY
Lack of physical access to care/lack of facilities
TERTIARY
Health behavior change
Please describe how your innovation specifically tackles the barriers listed above.
As Alianza Latina is a network founded in order to represent and train non-for-profit organizations working to support people living with blood diseases in Latin America countries, it improves activities of members and in consequence impacts not only on the reality of patients but also on health systems of countries represented in Alianza Latina in order to increase access to information and facilities.
Additionally, the initiative provides a forum for debating and learning - in a sustainable and continuous way – for associations that share similar ideals and mission in Latin America. Therefore it contributes to their professionalization and, in consequence, to increase patients’ quality of life in Latin America.
How are you growing the impact of your organization or initiative?
Please select up to three potential pathways in order of relevancy to you.
PRIMARY
Grown geographic reach: Multi-country
SECONDARY
Leveraged technology
TERTIARY
Influenced other organizations and institutions through the spread of best practices
Please describe which of your growth activities are current or planned for the immediate future.
In the near future we intent to increase the number of Alianza Latina’s members as well as optimize its activities by using new information technologies in order to improve professionalization tools offered by the network to its members.
Do you collaborate with any of the following: (Check all that apply)
Technology providers, NGOs/Nonprofits, For profit companies, Academia/universities.
If yes, how have these collaborations helped your innovation to succeed?
The initiative and its concept are permeated by the idea of partnership as Alianza Latina is a network of non-for-profit organizations working to support people living with blood diseases in Latin America countries founded in 2006 aiming to train and promote cooperation among NGOs.
In another level, the establishment of partnerships is fundamental to achieve the activities developed by the network, as it is necessary know-how and funds in they can be performed properly and in alignment to its mission.
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