Boys and Girls with HIV in Colombia: A Model for Life, Development and Social Inclusion
Up to two decades ago the survival time among children with HIV in Colombia did not exceed 5 years of age, Fundamor care model has evolved to an alternative structure that could be replicated, which emphasizes integrity, self management and access to services as the road that leads to improvements in health status of children and adolescents with HIV.
Our initiative will help the first generation of young people with HIV who are approaching adulthood in Colombia to participate in a training process that will allow them to star in the construction of their projects of life as human beings and productive citizens capable of assuming their diagnosis responsibly.
About You
About You
First Name
Guillermo
Last Name
Garrido Sardi
Facebook Profile
About Your Organization
Organization Name
Fundación Dar Amor Fundamor
Organization Website
Organization Phone
(57) 5557685
Organization Address
Calles 19 y 20 con Carreras 148 y 154
Organization Country
Colombia, VDC
Country where this project is creating social impact
Colombia
Is your organization a
Non‐profit/NGO/citizen sector organization
How long has your organization been operating?
More than 5 years
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Innovation
Entry Form title
Boys and Girls with HIV in Colombia: A Model for Life, Development and Social Inclusion
What change do you want to bring to the world?
Up to two decades ago the survival time among children with HIV in Colombia did not exceed 5 years of age, Fundamor care model has evolved to an alternative structure that could be replicated, which emphasizes integrity, self management and access to services as the road that leads to improvements in health status of children and adolescents with HIV.
Our initiative will help the first generation of young people with HIV who are approaching adulthood in Colombia to participate in a training process that will allow them to star in the construction of their projects of life as human beings and productive citizens capable of assuming their diagnosis responsibly.
What are the primary activities of your project?
Girls and boys entering Fundamor arrive in critical health conditions that threaten their survival and activate a comprehensive model for the restoration and protection of their violated rights through their membership of the health system management and direct provision of pediatric infectious diseases, nutrition, dentistry and daily care, articulated speech therapy services, physiotherapy and occupational therapy when there are mental health, communication or mobility disorders.
Once their health is stabilized, the children began a process of values formation, self-care, sexual education, abuse prevention and prevention of psychoactive substance use, in the context of programs to promote health and prevention. Depending on their level of education, children can enter the therapeutic preschool Fundamor or or participate in an open process of school inclusion in primary and secondary institutions in the city.
Teens in turn, participate in a pre vocational program that facilitates their access to technical education institutions and higher education for their integration into working life after graduating from protection, with support from a psychosocial team responsible for monitoring the discharge and care of families.
Additionally Fundamor develops prevention workshops and health brigades for the community, as well as open spaces of practice and national and international volunteering.
What is innovative about your initiative? How is it a new contribution to the field?
According to Colombian law, the guarantee of fundamental rights in early childhood should be a priority for the government sector, private enterprise and civil society share responsibility for their protection through a comprehensive health care and education, however, the breakdown of the sectors mentioned and a number of of political, economic and social development variables constitute a barrier to enforcement.
In this scenario, the model of care of Fundamor si able to articulate and mobilize local capacity, public and private organizations to ensure comprehensive health care, shelter, education, recreation, human development and nutrition that responds to the reality and needs of the population of children and adolescents with HIV in a vulnerable situation in Colombia.
Our initiative seeks health promotion and disease prevention located in the primary health care as a strategy to overcome the difficulties of the social security system in our country in terms of access, continuity and follow the evolution health of its users.
Besides excellent physical and emotional health, one of the greatest contributions of Fundamor care model is its contribution to the population of children and adolescents with HIV get to achieve, accept and assume responsibility for diagnosis, enabling them to increase their years of potentially productive lives and build their personal life projects from a rights perspective.
What stage is your project in?
Operating for more than 5 years
Tell us about the community that you engage? eg. economic conditions, political structures, norms and values, demographic trends, history, and experience with engagement efforts.
Fundamor has served an average of 623 children and adolescents aged 0 to 17 years from rural and urban sectors in all regions, ethnicities and cultures of Colombia after losing one or both parents due to HIV who have been reported in situations of violation and / or adopted by the Colombian Family Welfare Institute due to the disregard of their fundamental rights and be at high risk of growing up in environments with unsatisfied basic needs in health, education and housing.
A high percentage of the population of treated children admitted in critical health and nutrition, with cognitive, motor and communicative disorders and developmental delays.
However, after entering a Fundamor the population has shown great resilience and resilience to face adversity, managed to transform HIV into a chance at life and personal development.
Additionally, Fundamor provides health, guidance and advice to an annual average of 100 children and adolescents affected by HIV, involving their families in order to raise awareness and prevent the spread of the disease.
Additionally, it provides training and workshops on awareness and prevention against HIV to more than 2230 people a year between teachers, students, volunteers, businesses and the general community of the city.
Share the story of the founder and what inspired the founder to start this project
After working for years in the Chamber of Commerce of Cali, the engineer Guillermo Garrido performance was interrupted by a seizure after which he decided to devote his life to social work. For some time, a growing need to transcend to a field of action had awakened in him and his wife to be translated into works of transformation through love that exceed the individual level.
In early 1992 with the intention of "doing something" the founder went to a depressed area of downtown Cali, where he found an environment of drug addiction, sex, violence and hate where by coincidence he met a family who was helping a resident of the street to move to the city of Bogotá. The unusual event was that Don Guillermo wonder why street people move from Cali to Bogota? Given the reply that the man was taken to a house in Bogota in which they clandestinely took care of people who died of AIDS. Faced with this reality and willing to act, then came up with the support of his wife and could help in Cali people with HIV / AIDS without need for them to be taken to Bogota. However, knocking on doors of many institutions that provide health services, the responses were negative. However, Guillermo continued and took on the task of raising the necessary funds to start a job that joined volunteers and others wanting to help.
Social Impact
This Entry is about (Issues)
Please describe how your project has been successful and how that success is measured
Of 34 million people with HIV worldwide, 16.6 million live in developing countries and of these only 36% have access to treatment. The global mortality in children under 18 years is of 10.4% annually, while school exclusion in Latin America and the Caribbean is 44%.
According to figures from UNAIDS and UNICEF, of 45,660 HIV cases reported in Colombia, 15,937 were younger than 18 who require urgent action to address weaknesses in support systems and access to services through the restoration of rights, integration of primary health care and job training.
In this context, the success of our initiative can be measured against the world situation and our substantial gains in quality of life of the population served, highlighting the 100% coverage and health system affiliation, a mortality of 1.1% between 2004 and 2011, a 83% reduction in viral load and 65% of population with undetectable viral load are reflected in a favorable clinical outcome of 82% and a positive nutritional evolution of 90%. We have achieved a coverage of 100% in preschool, primary and secondary starring in the first process of open and successful school inclusion of children with HIV in public and private educational institutions in Colombia and the total family population, we have made 88% of successful withdrawals.
Additionally, our model of care has earned the highest rating scores by the Colombian Family Welfare Institute.
Regional Consolidated Analysis UNGASS reports submitted by 17 countries of Latin America 2010
http://www.onusida-latina.org/index.php?item=2&content=article&id=18
Basic statistics and indicators of HIV in Colombia estimated http://www.unicef.org/spanish/infobycountry/colombia_statistics.html
HIV in the world and Latin America and the Caribbean
http://www.unicef.org/lac/infanciadolescencia.pdf
How many people have been impacted by your project?
More than 10,000
How many people could be impacted by your project in the next three years?
More than 10,000
Winning entries present a strong plan for how they will achieve growth. Identify your six-month milestone for growing your impact
Increase coverage to 34 girls, children, adolescents and young adults with HIV protection by opening home arrangements and home discharge.
Task 1
Obtain a technical guarantee for the functioning of the arrangements for home and home discharge according to the standards of the National Family Welfare System
Task 2
Establish inter-agency partnerships and the management of technical and economic resources to achieve the professional, staffing, furniture and the adjustments required
Task 3
Putting the homes into operation in which the pilot will develop the modalities of group home care and home discharge
Identify your 12-month impact milestone
Increase coverage from 34 to 58 girls, children, adolescents and young adults with HIV through the opening of the arrangements for home and a discharge home
Task 1
Ensuring sustainability of care through the mobilization of public and private capacities to the continuity of agreements and projects
Task 2
Analyze the successes and the preliminary impact of the modalities of attention from investment, coverage, benefits and social returns criteria
Task 3
Perform opening and operation of two new homes, expanding coverage in 24 children and adolescents after the first year.
How will your project evolve over the next three years?
In its institutional strengthening plan, Fundamor works in the adjustment to its organizational structure, strengthening partnerships and resource management to increase their coverage and social impact through the development and operation of the arrangements for home and home care home discharge; We understand the need to move towards alternatives that contribute to girls and children with HIV with no chance of making restitution or refund their right to development in a family environment, not biological. As the urgency of moving toward a form that allows young people between 14 and 18 years to achieve the skills required for social inclusion during its transition to independent living.
Sustainability
What barriers might hinder the success of your project and how do you plan to overcome them?
The economic crisis and structural health in Colombia could be a barrier that has been worsening progressively delivering services Compulsory Health Plan and access through the authorization and delivery of antiretroviral drugs for HIV-affected population at the general level, including the children.
At this stage and placed in the constitution, we have come to rights enforcement mechanisms and judicial action as the most effective strategies for ensuring access to medicines as a fundamental right.
The social stigma and discrimination remains a barrier that will face the first generation of young people with HIV who are graduating from the protection program since they have reached adulthood. In this regard, we continue taking action to raise awareness to a community that contributes to the development of responsible citizens of their life projects in terms of social inclusion work that does not depend on your diagnosis, but their capabilities and skills.
Economic sustainability is always a challenge, especially when taking into account the costs for care of a high impact disease such as HIV and the limited economic contribution of the state. To meet this challenge, we will continue to manage resources through the development of self-sustaining programs which currently generate about 40% of operating income with the challenge of increasing this percentage and expand coverage in the short and medium term.
Tell us about your partnerships
Tell us about your partnerships
Aware of the importance and the need to go to entities that provide support in addressing those issues and processes that are outside of our range of action, the success of our model of care depends largely on the direct and indirect organizations and entities such as the Colombian Family Welfare Institute through its support and supervision; the valuable technical and financial support to Children of the Andes, the support of the Ministry of Health for access to services in the pediatric infectious Disease Clinic at Hospital Universitario de Cali, the technical and financial support from Unicef Colombia, the development of agreements and partnerships with the Foundation Si Mujer, asociación Vida, Health and Welfare, and Profamilia and Caminos Corporation for the development of training in habits and healthy lifestyle, sexual and reproductive health, self care, prevention of psychoactive substance use, prevention of mistreatment and abuse, rights and duties in health, the support of the Municipal education Secretariat to facilitate access to education in educational institutions city officials, as well as the signing of agreements for job training provided by the SENA National Learning Service.
Additionally, Fundamor has signed agreements with the Universidad del Valle, Santiago de Cali University and the Autonomous University of the West for linking students practice in the humanities, advertising, dentistry and human rehabilitation.
Current annual budget of project, in US dollars
More than $1 million
Explain your selections
To co-finance its care model, Fundamor mobilize human, technical and economical resources from all actors of society.
The foundation manages resources and input from the Colombian Family Welfare Institute, develops social projects in health, education and human development presented to the municipal education secretaries and department for co-financing, it goes to private enterprises to manage financial and in kind donations to obtaining supplies, materials, furniture and technical assistance for operations and institutional strengthening interagency partnerships, it established agreements and cooperation with foundations and organizations at the national and international levels.
Among self-sustaining programs of greater relevance today of the Foundation are: Recycling, Cookie Day (through volunteering or donations in cash), Cards for all occasions, the Plan Sponsor, Bonds for Life, Making events, Almacencito Fundamor, selling bracelets and accessories and Cookies dispensers.
The Foundation has 12 years of work on an organic farm with which we have achieved our pantry self-sufficient, obtaining resources through the sale of surplus and provide healthy food to our children. Fundamor was filed in 2001 in Budapest, as one of four innovative cases of civil sector organizations that have successful self-financing activities in the world.
How do you plan to strengthen your project in the next three years?
Strengthening Fundamor care model necessarily implies the search for new allies that allow us to continue to ensure the development of projects in the short and medium term.
As part of its plan goals for organizational strengthening, human resources of the Foundation will perform a conceptual design and detailed design of the processes that feed into the institutional map of processes.
In the same direction, adjustments are made to Institutional Care Plan as a result of a restructuring program that aims to decentralize the creation of interdependent units of health, education and protection.
Similarly, taking the necessary steps to expand our production capacity and increase coverage to new populations in northern Cauca department.
Additionally, as part of the development of new forms of group home care and discharge home, we hope to develop a process of systematic evaluation and feedback from experience in order to make the adjustments needed to ensure success and sustainability.
The next year, on the occasion of his 20 years of work, we will conduct a series of events that will be the opportunity to continue to project our actions towards the community and to present some publications about health care products and tools developed by the Foundation.
Challenges
Which barriers to health and well-being does your innovation address?
Please select up to three in order of relevancy to your project.
PRIMARY
Lack of access to targeted health information and education
SECONDARY
Lack of physical access to care/lack of facilities
TERTIARY
Restrictive cultural norms
Please describe how your innovation specifically tackles the barriers listed above.
In the absence of references of care among children with HIV, we have pioneered the systematization of our processes to share experiences with organizations and multilateral agencies through organizing and conducting the first National Forum on Children and Adolescents and HIV in Colombia.
Our model favors the proper care and health education from the earliest possible time, integrating open participation and self-management mechanisms for the access of children and their families, empowering them to assume the role of "USERS" of a system which must be protagonists of the mobilization of resources and services must provide the state. Additionally mobilize the community to put HIV in the national public agenda.
How are you growing the impact of your organization or initiative?
Please select up to three potential pathways in order of relevancy to you.
PRIMARY
Enhanced existing impact through addition of complementary services
SECONDARY
Influenced other organizations and institutions through the spread of best practices
TERTIARY
Grown geographic reach: Within host country
Please describe which of your growth activities are current or planned for the immediate future.
Currently, the program Fundamor rehabilitation works on the development of Neuro rehabilitation program to meet the care needs of the population of children with neurological disorders.
We are working on the development of videos and animations to be used as audiovisual strategies to prevent HIV created by high school students for other students of the city.
Fundamor is working to develop a tool for addressing the disclosure of diagnosis to be an opportunity to share best practices and successful experiences through a process of collective construction in partnership with Unicef. Additionally, the foundation opened a new office in the department of Cauca.
Do you collaborate with any of the following: (Check all that apply)
NGOs/Nonprofits, For profit companies, Academia/universities.
If yes, how have these collaborations helped your innovation to succeed?
The collaboration and exchange of knowledge and resources has been the basis for sustainability and continued development of more and better care alternatives. The feedback we received has allowed us to expand our understanding of the problems we face to face and to provide feedback opportunities to improve our processes. Good inter-relationships have become the best mechanism for developing innovative programs and services for the construction of new networks and partnerships that have helped us to improve our model of care.
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