Miraclefeet: Prevenindo deficiências desnecessárias ao redor do mundo causadas pela falta de tratamento para pé torto
Esta inscrição foi selecionada como finalista no desafio
Making More Health: Achieving Individual, Family and Community Well-Being.
A mudança que trazemos é a de assegurar que as crianças nascidas com pé torto possam caminhar, correr, ir à escola e ter vidas saudáveis e produtivas. Pé torto é a deficiência congênita de nascença mais comum em todo o mundo, afetando uma em cada 750 crianças. Sem tratamento, crianças nascidas com pé torto nunca poderão andar corretamente e terão de lidar com a dor e constrangimento de uma deficiência física grave. Através do estabelecimento de uma rede de clínicas que oferecem tratamento gratuito não-cirúrgico aprovado pela OMS – o método Ponseti – a Miraclefeet está prevenindo a deficiência desnecessária ao longo da vida. Nossos parceiros contam com médicos e hospitais locais para estabelecer clínicas de pé torto dentro de cada país a fim de criar uma solução sustentável de longo prazo.
Sobre Você
Sobre Você
Nome
Chesca
Sobrenome
Colloredo-Mansfeld
http://twitter.com/#!/miraclefeet
Perfil no Facebook
Sobre Sua Organização
Nome da Organização
miraclefeet
Página da organização na internet
Telefone da organização
: +1 800 785 6605 ext 205
Endereço da organização
PO Box 9985 · Chapel Hill, NC 27515
País da organização
Estados Unidos , NC, Orange County
Países onde este projeto vem gerando impacto social
Estados Unidos
Sua organização é
OSCIP/ONG
Há quanto tempo sua organização está em operação?
Entre 1 e 5 anos
As informações que você fornecer aqui serão usadas para preencher todas as partes do seu perfil deixadas em branco, como interesses, informação da organização e website. Nenhuma informação do contato será tornada pública. Por favor, desmarque aqui se você não deseja que isso aconteça..
INOVAÇÃO
Nome Projeto/Inovação
Miraclefeet: Prevenindo deficiências desnecessárias ao redor do mundo causadas pela falta de tratamento para pé torto
Qual a mudança que você quer trazer para o mundo?
A mudança que trazemos é a de assegurar que as crianças nascidas com pé torto possam caminhar, correr, ir à escola e ter vidas saudáveis e produtivas. Pé torto é a deficiência congênita de nascença mais comum em todo o mundo, afetando uma em cada 750 crianças. Sem tratamento, crianças nascidas com pé torto nunca poderão andar corretamente e terão de lidar com a dor e constrangimento de uma deficiência física grave. Através do estabelecimento de uma rede de clínicas que oferecem tratamento gratuito não-cirúrgico aprovado pela OMS – o método Ponseti – a Miraclefeet está prevenindo a deficiência desnecessária ao longo da vida. Nossos parceiros contam com médicos e hospitais locais para estabelecer clínicas de pé torto dentro de cada país a fim de criar uma solução sustentável de longo prazo.
Quais são as principais atividades do seu projeto?
miraclefeet partners with orthopedic surgeons working in large public hospitals to increase access to proper clubfoot treatment. We work with them to set up Ponseti Treatment clubfoot clinics within their hospitals, providing organizational guidance, training and all of the supplies necessary to treat children for free. miraclefeet works with the hospital administration and with national and state policy makers to push for change in the way clubfoot is treated, so that the work miraclefeet does becomes an integrated sustainable solution to clubfoot in the long term.
miraclefeet provides a model for how to establish a highly functioning Ponseti clinic that can easily be replicated in different countries with minimal adaptation, making it possible to scale quickly and maximize reach and impact.
miraclefeet is currently working in Sao Paulo and Belo Horizonte, Brazil, Guadalajara, Mexico, Managua, Nicaragua and in Maharashtra State, India. miraclefeet plans to launch an 8 clinic national program in Mexico in November, as well as converting the Brazil and Nicaragua initiatives into national programs in 2012.
O que é inovador sobre a seu projeto? De que forma ele é uma nova contribuição para esse campo de atuação?
While there are a few programs that address clubfoot, nobody else is attempting to address the issue on a global scale. Existing programs are focused on individual countries and/or tied to faith-based organizations which have several agendas. There are a number of aspects that make miraclefeet's work innovative and different:
1. Use of a national clubfoot program model. miraclefeet provides a complete roadmap or system for establishing a clubfoot clinic in a public hospital. This includes the organization, the expertise, admin and educational support and the supplies. This makes it possible to establish high quality programs in many countries.
2. Local partnerships. miraclefeet partner with local clubfoot champions, medical establishments and policy makers to ensure that clinics are integrated into the existing public health infrastructure. miraclefeet will only work once a strong group of supportive partners is formed to drive the project forward within the country.
3. Use of an on-line patient database. miraclefeet provides an online patient database into which all clinics have to enter their patient records. This allows miraclefeet to monitor the quality of care, identify problems quickly, and track outcomes in a way that nobody has ever done.
4. Development of a low-cost, high-performance brace. miraclefeet is creating a $10 brace (versus the US $350+ brace) to lower the cost of treatment and increase brace compliance rates. Bracing is an essential part of the Ponseti Method treatment.
5. Focus: Our only agenda is helping kids with clubfoot.
Em que estágio está seu projeto?
Em execução entre 1 e 5 anos
Conte-nos sobre a comunidade em que atua. Por exemplo, as condições econômicas, as estruturas políticas, normas e valores, as tendências demográficas, história e experiência com as tentativas de mobilização.
Our programs provide free treatment to any child born with clubfoot, but especially those who have limited resources. We partner with hospitals that provide care to low income children, primarily through large public and charitable hospitals located in large metropolitan areas. We have focused initially on urban areas, since this is where the largest referral hospitals are located and where we can reach the largest number of children.
We work with local maternity hospitals and other maternal and child initiatives, e.g.in Sao Paulo with the Mae Paulistana program, to identify babies born with clubfoot so they can be quickly referred to a clubfoot clinic for proper treatment. In many countries, doctors, nurses and midwives are unfamiliar with clubfoot so education of the health care community is important.
Since the Ponseti Method requires the parents to bring their child to the clinic for a series of casts over a 5-8 week period and to ensure the child wears a brace at night for the next 4 years, parent education is very important. Various design elements are built into the program to support this, such as the one-day clinic approach, parent education and the provision of free braces.
Compartilhe a história do(a) fundador(a) e o que o(a) inspirou a iniciar este projeto
miraclefeet has several founders. We were all inspired by the fact that we could completely turn lives around for $250/child by providing early, effective treatment to children born with clubfoot. Having seen what SmileTrain and others have done for cleft palate, we believed we could do something similar for children born with clubfoot (albeit with a different model due to differences in the way the two conditions are treated).
The initial impetus came from three parents who had successfully treated clubfoot children. These parents were horrified to learn that the treatment that allowed their children to live normal lives was largely unavailable to the majority of children born with clubfoot around the world. They persuaded their children’s orthopedic surgeons to create an organization to increase access to the Ponseti Method.
My connection to clubfoot came from time spent working at the University of Iowa, where I learned about the Ponseti Method and the fact that it was a cheap and effective solution to a problem I had seen first-hand in many developing countries.
We all joined forces to start miraclefeet to prevent the debilitating disability caused by untreated clubfoot and give clubfoot children the chance to live healthy productive lives.
IMPACTO SOCIAL
Temas relacionados à inscrição
Por favor, descreva como o projeto tem sido bem sucedido e como esse sucesso é medido.
In the first year of operation, miraclefeet has managed to establish 4 clubfoot clinics in Sao Paulo and Belo Horizonte, Brazil, in Guadalajara, Mexico and in Managua, Nicaragua. In addition, miraclefeet has partnered to fund a CURE program working in 4 clinics in Maharashtra State,India.Although these are all just pilot programs, they will form the foundation for national (state in the case of India)programs that will provide a network of clinics across the country.
Over 150 children have been treated in the first year. We have data and photographs detailing the successful treatment of each child, plus the anecdotal stories of how life transforming treatment has been for many.
These pilot projects have proved the concept and allowed us to raise additional funding. On the basis of this early success we have secured over $.5M for next year's operations.
Quantas pessoas foram impactadas por seu projeto?
101-1,000
Quantas pessoas poderão ser impactadas por seu projeto nos próximos três anos?
1,001-10,000
Em desafios anteriores, participantes bem sucedidos apresentaram um plano sólido detalhando como farão para crescer. Informe os principais marcos de crescimento do seu impacto previstos para os próximos seis meses .
The 6 month milestone, will be converting the Mexico program into a national program with the launch of 5 additional clinics, national and regional training, and broad educational campaigns.
Atividade 1
Launch clinics in 5 additional public hospitals spread throughout Mexico. These will provide free Ponseti treatment to 6 regions in Mexico as the start of a national network blanketing the country.
Atividade 2
Deliver a national training, plus 3 regional trainings at hospital sites. This will ensure at least three doctors from each partenr hospital are fully trained in the Ponseti Method.
Atividade 3
Start to inform the public and the healthcare community that clubfoot is treatable for free at the 6 initial miraclefeet clinics.
Informe os principais marcos de impacto previstos para os próximos 12 meses.
Our 12 month milestone, will be raising the funds and putting together the consortium of partners to launch additional national programs in Brazil, Nicaragua and Ecuador for launch by the end of 2012.
Atividade 1
Finalize partners in Brazil. Hopefully, secure a contract with the Hospital Samaritano Foundation to fund and manage the Brazil program.
Atividade 2
Raise funding to launch an Ecuador national program. Get final sign off on the proposal that is in front of a group of Ecuadorian partners so detailed operational planning can begin.
Atividade 3
Start the process of determining how the national model can be adapted to a country with very few orthopedic doctors and functioning hospitals by leveraging the group of physical therapists.
Como seu projeto se expandirá ao longo dos próximos três anos?
We hope to be in 33 countries (or states in the case of very large countries like India and China) treating over 6,000 children a year. This will require us to scale our staff and to build our fundraising capability to enable us to raise up to $4.5M a year. All of these programs will be launched as national programs and will involve extensive local partnerships so that the programs become integrated into the public health infrastructure. By year three, miraclefeet should be seeing some policy change and some indications of local ownership of the programs indicating that our goal of creating sustainbale,long term solutions is playing out.
SUSTENTABILIDADE
Quais são as barreiras que podem dificultar o sucesso de seu projeto e como pretende superá-las?
1. Fundraising. Our biggest barrier to success is our ability to raise funding. We have just been given a pledge that will cover our administrative and fundraising costs for the next three years, including hiring a Director of Development. We are developing a comprehensive fundraising strategy to attract a broad base of small donors, inspired to give the gift of walking for a $250 donation, as well as continuing to focus on high net worth individuals and foundations.
2. Resistance to change. Orthopedic surgeons like doing surgery. Even when they are given strong evidence that a non-surgical technique provides a better outcome, there can be resistance. In addition, there are often institutional and structural impediments such as higher reimbursements for surgery and the prestige that doing surgery bestows on doctors. miraclefeet works with a local medical director, usually someone who has already become a Ponseti disciple, and partners with local medical establishments, such as the national orthopedic societies or the government agencies that oversee prevention of disability. These partners act as influencers and can persuade local colleagues and institutions to change.
Por favor, explique de que forma o estabelecimento de parcerias é importante para o sucesso de sua inovação
miraclefeet’s model depends on partnerships at every level.
Each national program is created from national, state and local partnerships with doctors, public and charitable hospitals, medical associations, Ministries of Health, NGOs, and parent’s groups. miraclefeet pulls together a consortium of partners based on local interest and conditions, from the Mexican Society of Pediatric Orthopedics and Office of the Vice President of Ecuador, to the local Rotary club in Nicaragua. In all locations miraclefeet depends on partnerships with dedicated local doctors and hospitals. It is through these multiple partnerships that a network of clubfoot clinics is created to form a national clubfoot programs.
miraclefeet also partners with other NGOs to collaborate and integrate clubfoot initiatives. Ponseti International Association (PIA) provides training for miraclefeet’s programs to ensure we are delivering the latest and highest quality medical expertise to our clinics. miraclefeet works with CURE International in India, and is in discussions to develop joint programs with STEPS in South Africa and HRDC Hospital in Nepal.
miraclefeet is partnering with PIA, CURE and University of Iowa’s Biomedical informatics department to develop a global clubfoot patient database, and with North Designs and Objet who are providing pro-bono design services to create low-cost clubfoot brace.
Orçamento anual atual do projeto em US$:
$250.001‐500.000
Detalhe as suas escolhas acima
Initial funds came from board members and personal friends and family. These early donations allowed miraclefeet to launch pilot programs in Sao Paulo, Brazil. After the initial proof of concept, miraclefeet was able to attract funding from high net worth individuals, especially those affected by clubfoot, and from small family foundations who were interested investing in a new, focused organization to target a problem that is largely unaddressed. Since then miraclefeet has been able to attract some small corporate donations, Rotary club funding and additional funding from a major foundation, The Oak Foundation, who has a strong interest in prevention of childhood disability.
Recently, miraclefeet has been pledged a very significant anonymous donation that will allow the organization to cover administrative and fundraising costs for the next 3 years. miraclefeet has secured funding from a corporate/family foundation for the Mexico national program.
Hospital Samaritano Foundation in Brazil is considering fully funding the Brazil National program. In addition, the Draper Richards Foundation is currently considering miraclefeet as a potential Draper Richards fellow which would provide additional funding over the next 3 years.
De que forma você planeja fortalecer financeiramente seu projeto ao longo dos próximos três anos?
While miraclefeet expects to rely on high net worth individuals and family foundations in the short term, it also believes that can replicate SmileTrain’s success in generating funds from small donors who want to change a child’s life. miraclefeet is focusing on developing a multi-channel approach that leverages new fundraising tools and star-power to engage with people, while also depending upon the more traditional direct mail and event approaches to create a broad donor base of individuals. We believe we can generate interest from a broad spectrum of people from families affected by clubfoot in the US, to youth soccer teams (Mia Hamm and Steve Gerrard, captain of England soccer, both born with clubfoot), and young people eager to help other kids. This can now be done much more cost effectively by leveraging the internet and social media. This will probably start to generate significant funding in the 1-2 year time frame.
miraclefeet is also actively courting very large funding sources such as USAID and the Gates Foundation, with the expectation that the concept of tackling a childhood health issue on a global scale will appeal once miraclefeet developed a stronger track record in the 3 year time frame.
Desafios
Quais desafios/obstáculos na área da saúde e bem estar seu projeto busca solucionar?
Por favor, selecione até três opções, em ordem de importância (a mais importante deve ser indicada como 1 e a menos como 3)
Primário
Ausência de assistência de baixo custo
SEGUNDO
Capital humano limitado (médicos, enfermeiras, etc.)
TERCEIRO
Limitação no diagnóstico/detecção de doenças
Por favor, descreva como a sua inovação aborda especificamente os obstáculos listados acima.
Currently there are very few clubfoot treatment centers available worldwide. Historically, clubfoot was treated with expensive surgery which produces very poor outcomes. miraclefeet is changing this by establishing and supporting free clinics, in major public hospitals, with trained Ponseti teams providing the proper treatment needed to address clubfoot. This makes treatment affordable and accessible, and increases the number of trained Ponseti practitioners. In parallel, miraclefeet works to communicate that clubfoot is treatable to health workers (maternity/pediatric nurses/doctors, midwives, rural health workers) so they can identify and refer babies born with the condition to a Ponseti clinic.
O que você está fazendo para ampliar o impacto de sua organização ou iniciativa?
Por favor, selecione até três estratégias abaixo, em ordem de importância (a mais importante deve ser indicada como 1 e a menos como 3).
primário
Alcance geográfico: No país de atuação
SEGUNDO
Alcance geográfico: Em vários Países
TERCEIRO
Influenciando outras organizações e instituições através da disseminação das melhores práticas
Por favor, descreva qual ou quais das atividades de seu crescimento estão em curso ou planejadas para o futuro imediato.
miraclefeet is adding 8-12 clinics in the four countries it is already in by 2012 and plans to add at least two additional countries next year. In addition, miraclefeet will continue to work with other local NGOs such as CURE and STEPS SA to extend the miraclefeet country model to their programs. Through these activities miraclefeet expects to treat over 1,000 children in 2012, up from 200 in 2011.
Você colabora ou faz parcerias com algum dos abaixo? (marque todas que se aplicam)
ONGs / entidades sem fins lucrativos, Academia / Universidades.
Se sim, como essas colaborações e parcerias vêm ajudando sua inovação a obter sucesso?
miraclefeet has been working with the University of Iowa, where the Ponseti Method was developed, to create a global clubfoot database which will be available to any organization treating clubfoot. This has allowed to develop a very secure patient database that enables us to monitor quality of care and to measure our success. Our investment and collaboration will be made available to anyone who wants to use it, so will have broad impact.
miraclefeet is also working with Ponseti International, a University of Iowa-based NGO,to deliver Ponseti -training to new clinics. This collaboration ensures that we are delivering high quality and up-to-date training on clubfoot treatment, endorsed by the world's clubfoot medical leaders.
| Anexo | Tamanho |
|---|---|
| yasmin1_600x800.jpg | 336.99 KB |
| yasmin2_600x800.jpg | 253.67 KB |
| yasmin_4_600x800.jpg | 276.04 KB |
| yasmin_5_596x800.jpg | 265.4 KB |
| danielandmotherbefore.jpg | 717.76 KB |
| danielandmotherafter.jpg | 731.23 KB |
| riquelme_1.jpg | 396.54 KB |
| riquelme_3.jpg | 124.9 KB |
| miraclefeet-sm.jpg | 148.52 KB |
| 77 semanas atrás Sylvia Penfield disse: Go miraclefeet!!!! Keep helping kids all around the world, what you guys are doing is great. sobre esse Competition Entry. - leia mais > | |
| 78 semanas atrás Chesca Colloredo-Mansfeld disse: I just reread the original question and wanted to add a little more on this very important topic. It is one we debate and discuss ... sobre esse Competition Entry. - leia mais > | |
| 78 semanas atrás Chesca Colloredo-Mansfeld disse: Thank you for your important question. All of our clinics are created in public or charitable hospitals and are run and managed by a ... sobre esse Competition Entry. - leia mais > | |
| 78 semanas atrás Jessi Wolz disse: Congratulations on being selected a Finalist in the Making More Health competition! Your innovation displays potential for ... sobre esse Competition Entry. - leia mais > | |
| 80 semanas atrás Miraclefeet: Previnindo deficiências desnecessárias ao redor do mundo causadas pela falta de tratamento para pé torto has been chosen as a finalist in Making More Health: Achieving Individual, Family and Community Well-Being. |
