Laboratory testing information for those who need it the most

Laboratory testing information for those who need it the most: Lab Tests Online – Patient-centric, Non-commercial, Peer-reviewed Resource for Limited Resource Settings

United Kingdom
Project Stage:
Established
Project Summary
Elevator Pitch

Concise Summary: Help us pitch this solution! Provide an explanation within 3-4 short sentences.

Lab Tests Online is an information resource created for patients and care givers to help understand laboratory tests. Available in 14 languages in 17 countries worldwide, including 12 websites in Europe, the content is also available as an app in three countries and in book form in China, where it is used to reach areas where access to technology may not be available. Importantly, the content is patient-centric and peer-reviewed.

About Project

Problem: What problem is this project trying to address?

There are two problems Lab Tests Online is trying to solve:
 1) Laboratory tests play a vital role in healthcare but the patient is rarely given insight into why a particular test is important or what the results might mean. As patients are asked to take on more responsibility for their care, it is now essential that they understand their tests.
 2) At a time technological advances are literally putting the ability to self-administer tests in the palm of our hands, it is more important than ever that the patient understand the accuracy and reliability of the information provided, and the many ways in which a home test may be improperly managed and interpreted.

Solution: What is the proposed solution? Please be specific!

Keeping these problems in mind, the American Association for Clinical Chemistry created Lab Tests Online and, together with EDMA (which is the in vitro diagnostics industry association in Europe) and the scientific societies in the 17 countries, has translated and adapted Lab Tests Online to local policy and practice. The primary objective is to help patients and care givers understand laboratory testing in their native language. Importantly, the resource was created such that the information provided is patient-centric (in easy-to-understand language), is peer-reviewed (ensuring the content's accuracy and reliability) and non-commercial (eliminating commercial intent).
Impact: How does it Work

Example: Walk us through a specific example(s) of how this solution makes a difference; include its primary activities.

Ana is an OB-GYN in Romania. Her next patient is Sylvia - a very nervous immigrant from Spain who is pregnant. After many attempts to explain prenatal testing to Sylvia, Ana is distraught that she cannot get through this very important information. Ana visits www.labtestsonline.ro and clicks on Spain's flag, which takes her to the prenatal testing information in Spanish. Ana is thrilled and so is Sylvia who now knows exactly whats going on and that she is in good hands.

Spread Strategies: Moving forward, what are the main strategies for scaling impact?

Currently, we are working with the World Health Organisation and the European Commission for their endorsement and support to roll-out the sites and the books in countries that need it the most.
Sustainability

Marketplace: Who else is addressing the problem outlined here? How does the proposed project differ from these approaches?

While a number of sites provide information on lab tests, none offer the kind of evidence-based information that has been filtered through the practical experience of laboratory professionals and approved by those same professionals - the people who actually do the testing.
Team

Team

A devoted team of lab enthusiasts combined with those who are convinced of the role of diagnostics in healthcare as well as supranational organisations who identify the public healthcare needs in various countries around the world are key. Corporations and the social-mission organisation's top management main goal is to ensure that the partnership or the co-creation scheme works and continues to remain a credible brand. The team at AACC plays a more strategic role where content planning, strategic oversight are key responsibilities. Corporate partners such as EDMA in conjunction with its national association members in 12 countries actively engage in ensuring that the project receives the exposure it deserves, The scientific societies ensure that the content remains accurate, reliable and is updated regularly.
About the Lead Co-Creation Partners
Organization:
American Association for Clinical Chemistry (AACC)
Visit website
LEAD SOCIAL-MISSION ORGANIZATION
Type of organization (e.g. NGO, association, not-for-profit, foundation, social enterprise)

not-for-profit

Total Number of Full-Time Employees

10

Lead Contact First Name

Shweta

Lead Contact Last Name

Kulkarni

Title

Communications Manager

Country

Belgium

Facebook URL
LEAD CORPORATE PARTNER
Organization Name

American Association for Clinical Chemistry (AACC)

Total Number of Full-Time Employees
Lead Contact First Name

George

Lead Contact Last Name

Linzer

Title

Executive Producer

Country

USA

Organization Website

labtestsonline.org

Basic Info
Project Starting Year

2001

Primary European Country where this Project is creating social impact
Additional European countries where this Project is creating social impact

Spain, Poland, Italy, France, Germany, Hungary, Greece, Portugal, Czech Republic, Romania

Select the category that best fits the type of your project:

New products & services: Entries in this category develop and offer essentials product and services that address needs currently unmet.

What awards or honors has the project received?

Best Nursing website, Dorland's Best Healthcare website, Award for Outstanding Public Service, Award for Best Healthcare Content

Project Summary
Co-Creation Model: Tell us about your main strategic partners and how the partnership truly create value. For each Partner please include its type (business/social/public), its name, a short description, its key motivation to participate in the co-creation project, and the key contributions it is making in the co-creation project. Please follow the format displayed below:

-European Diagnostic Manufacturers Association (EDMA)
-Industry Association
-EDMA is an international, non-profit organisation representing the interests of the medical in vitro diagnostics (IVD) industry in Europe.
--Raise awareness of the vital nature of laboratory tests via patient education.

-Funding and partnership building between the industry and the scientific societies.

-American Association for Clinical Chemistry (AACC)
- International scientific/medical society
-AACC is an international scientific/medical society of clinical laboratory professionals, physicians, research scientists and other individuals involved with clinical chemistry and related disciplines.
-Increase the visibility of laboratory medicine and its vital role in patient care.

-Content originator, strategy planner, global collaborator.

-Scientific societies
- Local scientific society
-17 local scientific societies worldwide, which consists of clinical laboratory professionals, physicians, research scientists and other individuals involved with clinical chemistry and related disciplines.
-Increase the visibility of the laboratory profession.
-Contribution includes translating, reviewing, uploading and updating content.

Impact
Impact: What is the impact of the work to date? Also describe the projected future impact. Please specify using qualitative and quantitative data (e.g. # of indirect and direct beneficiaries); help us understand how this solution truly makes a difference.

Firstly, let look at a user's comment, “Thanks for explaining this test. I've suffered for several long months with persistent hypertension, sweating, and very rapid pulse - you've eased my mind knowing ‘why’ we were doing this test!”

Secondly, the sites have received endorsements from:
1) "One of the Smartest Health Sites on the Web" --Prevention magazine
2) "One of the best medical sites online" --NBC TV

Thirdly, Lab Tests Online sites educate more than 30-million visitors a year. The vital lab testing information is available in 14 different languages including French, English, Spanish, and Chinese. One-third of the world’s population can learn from the information resource in its national language. Additionally, Hungary has the highest penetration as a percentage of the national population.

Sustainability
Funding: How is your project financial supported? [select all that apply]

NGOs, Businesses, Regional government, National government.

Sustainability Plan: Has your project already reached financial sustainability? If not, what is this solutio’s plan to ensure financial sustainability? Do the main partners have enough stake to sustain the solution? If this project requires limited budget, how will other resources be secured to maintain or grow this work?

Financial sustainability varies among sites but in general, the global network of sites is on solid financial ground. However, as AACC shoulders a heavier financial burden in support of many of the sites, it has experienced a growing budget gap and has recently decided to implement advertising on the flagship site http://labtestsonline.org. Additionally, as demands to improve and upgrade sites grow, & with increasing interest from additional countries and decreasing budgets, particularly among those sites funded by their national government, several site leaders may have to rethink the use of advertising. While it is a route of last resort, AACC believes addition of advertising to US version of the site will have no impact on the content & only minimal impact on the user experience. In Europe, main partners have a strong vested interest & plan to sustain it through continued funding.

Team
Founding Story: Share a story about the "Aha!" moment that led the Partners to get started and/or to see the potential for this to succeed.

Back in the year 2000, when AACC sought advice from the American counterpart to EDMA about expanding a small print-based program to educate patients about laboratory tests, the message they heard was to do it on the Internet, and to not do it alone. Thus, a collaboration was born – first, among the many laboratory professionals societies in the US and Canada that develop the content with AACC, and then, among the lab associations around the world that understood the importance of educating patients and teaching the world about the important role of laboratory medicine.

About the Co-Creation
Barriers: What main barriers may you have encountered to co-create during the creation and implementation of the project and how did you try to overcome them?

One of the barriers that we encountered was the interest of the scientific societies in Europe wanting to create a European platform rather than a global one. This needed to be resolved with care as we did not want to upset the scientific societies who are instrumental to this project. A solution was derived where the European sites would be hosted on a separate platform than the non-European ones.

Governance: What is the type of the relationship between the partners? (e.g. joint venture, contractual relationship, joint project...)

It is a contractual relationship.

Interaction model: How is the project a transformative partnership? How is the interaction transforming the partnering organizations and their employees/ leadership in terms of creating a new vision, new management practices, new skills and new organizational structures? Please provide for concrete examples

It is a global collaboration project, which requires empathy and advance cooperative skills. The entire team keeps the main object of Lab Tests Online in mind, which is to empower the patients and care givers with the information they are looking for.

How did you find out about this competition?

Forbes article: Co-Creation: Moving Beyond CSR