I continue to paint publically. I either paint murals on public walls or will do plein air work on canvas. Both of theses types of public art allow me to speak with the public and promote patient advocacy in a one-to-one format.
I continue to paint jackets for brave people like Jen McCabe, with Contagion Health, whom wear them before audiences at medical and HIT conferences in order to promote the cause.
I write frequently on my Medical Advocacy Blog about the need for change in the system using occasional poetry and multiple pop-culture references in order to connect with the larger public who isn’t quite sure what HITECH stands for.
I speak publically at conferences and schools about the power of art advocacy and the many reasons why we need to adopt the concepts of participatory medicine and provide open and transparent access to the medical record.
My painting has been utilized by multiple organizations to depict the problems within the current Medical system. The paintings 73 Cents and Give Us Our Dammed Data cents have appeared in many blog posts. 73 Cents was the picture of the week in the BMJ in September 2009.
Recently, I had the pleasure of painting a jacket for Roni Zeiger with Google Health. He wore the jacket at the HHS Community Health Data Initiative Launch before Secretary Kathleen Sebelius and an audience of hundreds. At this point the event has had over 7,000 views on Youtube.
My blog is read internationally and has over 200 followers as well as 2,500 profile views. My writing is often posted on Twitter as well as picked up by other bloggers who re-post or create a new post adding their vision to my work. My work is joining theirs an amazing web of advocacy.
What will it take for your project to be successful over the next three years? Please address each year separately, if possible.
As we go deeper into stage two and three of Meaningful Use, it is very important for advocates to continue to keep pressure the government and medical establishment for increased access to the HER/EMR and increased adoption of HIT. As we enter the stage of a fully functional HIE, we must encourage greater communication between HIT venders, medical facilities and patients. This has been done in banking; it is surely possible in medicine.
I will continue to make more contacts within the patient safety movement and try to better align our causes. We need to create a national and easily searchable database of patient advocate speakers. Every panel at every medical conference should include the patient voice and in order to do that, we will need better resources than we currently have so we can utilize all the wonderful speakers who are available.
I am writing a book about our family’s experiences so I to reach an even larger group of people and explain why we so desperately need to change our current model of medicine.
I will consult with more HIT groups and hospital systems and try to place paintings internally as well as paint the facilities themselves in a plein air format.
I will endeavor in everyway to create more visualization within medicine, be it, encouraging picture avatars as part of you EMR or promoting the incorporation of art within medical blogs. We are visual thinkers in a text-based system; this must change. We must open more avenues of communication and thereby heal the body and mind.
What would prevent your project from being a success?
The beauty of 73 Cents is that is a painting and a movement. The murals are permanent installations and my blog is part of a virtual eternity floating in the data cloud. If I were to die tomorrow this work would live on in minds and on walls. That being said, I hope to live to see a glorious outcome. I hope to have many tweets to many tweeps in my future. I do hope to get more funding for this work. I currently support my family and my work out of my personal savings. More financial support would be nice, but nothing will stop me on this path or stay my brush filled hand.
I am very thankful the consequential strangers in my life and their cognitive surplus. They help me and they spread the word. I am thankful that I have the presence of God in my life and he sustains me in my grief. I thankful for this competition form which allows me to clarify my goals. What would prevent me for reaching my goals? Nothing will stop me. As my friend Christine Kraft once said, I have become radicalized. I will not stop. I will not be silent; until patients are treated with appropriate dignity and respect throughout this nation and we all have the right to access our own medical record.