The Dum Spiro-Spero Oncological Foundation

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The Dum Spiro-Spero Oncological Foundation

Poland
Organization type: 
nonprofit/ngo/citizen sector
Budget: 
< $1,000
Project Summary
Elevator Pitch

Concise Summary: Help us pitch this solution! Provide an explanation within 3-4 short sentences.

Improvement of:
Social awareness of patients' rights
Equal access to new treatment methods and medical research
The trust and positive communication between the dotor and the patient
Making aware of the quality of life during cancer treatment

About Project

Problem: What problem is this project trying to address?

Diagnosing a cancer is itself a traumatic experience for the patient. After leaving the doctor's room, the patient is left alone, with numerous questions and in fear of the treatment. The amount of time, that the doctor can spend on talking to patients is still too little. The patient himself also does not know, what questions should he ask the oncologist. The Foundation provides a communication platform - the oncological forum - as a method of passing on knowledge of the newest treatment methods, the ways of informing the patient and his family about the diagnosis, enables the exchange of experiences and gives psychological support. The social need exceeds the capacity of the forum overseers (about 1000 visits per day), we need financial aid, which will enable us to hire more more doctors of different specialties to act as Forum Experts. We want the oncological patient to be able to use a doctor’s advice without having to wait for his next visit in the clinic.

Solution: What is the proposed solution? Please be specific!

The polish-speaking part of the Internet lacked the possibility of an on-line discussion about cancer and all its aspects, an open discussion, that was backed up with thorough medical knowledge based on conventional rules of malignant tumour treatment and abiding the rule, that these discussions should not differ from the academic medicine methods. We dreamt, that an oncological patient, or his relative, had a place where they could ask the questions that they lose sleep over, and where they can receive a reliable and exhaustive answer. So that the interlocutor could spend enough time to answer, so the person who asked - satisfied by the amount of information gained - would not search further, deeply disappointed and lost, and would not succumb to the pressure of the people who try to sell different types of methods that supposedly possess “miraculous healing properties”. A polish oncologist, having certain working conditions - resulting from many systemic limitations - is mostly unable to devote enough time to help his patient understand the nature of the disease and the sense of the particular stages of treatment. The primary issue then - for which there is a need in our society - in the need to gain INFORMATION. Information that possesses the proper quality and form of the message. And that way, a portal named: 'DUM SPIRO SPERO Oncological Forum' was founded, by private persons. The currently registered foundation is a natural consequence of our year and a half experiences and gained proof about the sense and the high value of this project. It also is a chance to for further development of the forum, and thus the possibility of aiding a larger number of recipients.
Impact: How does it Work

Example: Walk us through a specific example(s) of how this solution makes a difference; include its primary activities.

Answering the questions of 1700 people registered in the Forum.
About You
Organization:
Dum Spiro-Spero
Section 1: You
First Name

Magdalena

Last Name

Lubińska

Website URL
Organization

Dum Spiro-Spero Foundation

Country

, PM

Section 2: Your Organization
Organization Name

Dum Spiro-Spero

Organization Phone

+48 665052016

Organization Address

80-462 Gdańsk, Al. Jana Pawła II 4a / 9

Organization Country

, PM

Your idea
Country and state your work focuses on

, XX

Innovation
Do you have a patent for this idea?

Impact
Actions

Not uncommonly, knowing the history of a patient described on the forum - from diagnostics, through the treatment, to recovery or hospice care, we educate and aid the sick through explaining medical complexities, lab results, how different medicaments work, the way of soothing different aliments with new medicinal products available on the market.
Because we have a more frequent contact with the patient than doctors, we are able to notice and react to the problem depression that may be developed by the patient.
We also notice when the patients quality of life deteriorates drastically during oncological treatment, we inform of the need of consultation with the doctor responsible for the treatment when the side effects become a danger to life.
We show the centres of pain treatment, hospice care, help lines.
We consult the results with oncological centres both in Poland and abroad.
The exchange of experiences is priceless for the sick. over 1900 citizens uses our advice.

Results

With our work and actions we have gained the trust of both patients and doctors.
We are invited to oncological conferences: ‘After ASCO’ and of The Polish Society of Clinical Oncology.
Each of our actions is in accordance with the recommendations of the Polish Union of Oncology. We also carefully follow all of the worlds' latest oncological reports, which we attempt to present in a clear and accessible way to the the ones it concerns the most - the patients.

What will it take for your project to be successful over the next three years? Please address each year separately, if possible.

The first year:
The employment of doctors and medical staff in the form of on-line aid. Keeping the essential aid for the patient on the highest international level. Passing the idea and the goals of the Dum Spiro-Spero Foundation to other Societies and Foundations, joint campaigns for the education of prophylaxis, diagnosis and treatment of the oncological patient. Informational campaigns about the pain in cancer and the ways of counteracting it.
The second year:
Creating a communication platform in the Internet with the information about the availability of new research on new medicaments and treatment methods, both fot the patients and the doctors. The liquidation of the problem of the lack of information about the research conducted in particular clinics - establishment of cooperation between the doctors responsible for treatments and the doctors conducting research for the particular types of cancer.
The third year:
The continuation of current actions. Constant increase of knowledge about cancer, prophylaxis and treatment for both the patients and the healthy citizens.

What would prevent your project from being a success?

Financial aid is the key for our continued actions. Working time, phones, meetings and the expenditures on the promotion are not able without financial resources.

How many people will your project serve annually?

1001‐10,000

What is the average monthly household income in your target community, in US Dollars?

$100 ‐ 1000

Does your project seek to have an impact on public policy?

Yes

Sustainability
What stage is your project in?

Operating for 1‐5 years

In what country?

, XX

Is your initiative connected to an established organization?

Yes

If yes, provide organization name.

Fundacja Onkologiczna Dum Spiro-Spero

How long has this organization been operating?

Less than a year

Does your organization have a Board of Directors or an Advisory Board?

Yes

Does your organization have any non-monetary partnerships with NGOs?

Yes

Does your organization have any non-monetary partnerships with businesses?

No

Does your organization have any non-monetary partnerships with government?

Yes

Please tell us more about how these partnerships are critical to the success of your innovation.

The development of cooperation with other non-governmental organisations and turn the attention of the government towards the matter of educating young medical personnel and the academic environments in Medical Academies about the correct relation between the patient and the doctor, and the access to the latest treatment methods and the improvement of the patients’ quality of life during treatment.

What are the three most important actions needed to grow your initiative or organization?

First of all we need to find resources to recruit doctors on the largest communications platform in Poland.
Conducting informational campaigns about the aid provided on-line.
Counteracting the non-academic, ‘miraculous’ methods of cancer treatment and preventing the cancelling of oncological treatment to start false ‘miraculous’ treatment methods, which have no right of existence, nor any chances of success.

The Story
What was the defining moment that led you to this innovation?

Everything really started one and a half years ago.
The polish-speaking part of the Internet lacked the possibility of an on-line discussion about cancer and all its aspects, an open discussion, that was backed up with thorough medical knowledge based on conventional rules of malignant tumour treatment and abiding the rule, that these discussions should not differ from the academic medicine methods.
We dreamt, that an oncological patient, or his relative, had a place where they could ask the questions that they lose sleep over, and where they can receive a reliable and exhaustive answer. So that the interlocutor could spend enough time to answer, so the person who asked - satisfied by the amount of information gained - would not search further, deeply disappointed and lost, and would not succumb to the pressure of the people who try to sell different types of methods that supposedly possess “miraculous healing properties”.
A polish oncologist, having certain working conditions - resulting from many systemic limitations - is mostly unable to devote enough time to help his patient understand the nature of the disease and the sense of the particular stages of treatment.
The primary issue then - for which there is a need in our society - in the need to gain INFORMATION. Information that possesses the proper quality and form of the message.
And that way, a portal named: 'DUM SPIRO SPERO Oncological Forum' was founded, by private persons.
The currently registered foundation is a natural consequence of our year and a half experiences and gained proof about the sense and the high value of this project. It also is a chance to for further development of the forum, and thus the possibility of aiding a larger number of recipients.

Tell us about the social innovator behind this idea.

Magdalena Kręczkowska has actively participated in aiding oncological patients on different oncological forums for the past few years.
In 2008 she decided to create her own Forum Dum Spiro-Spero, where the aid would be held on the highest essential level.
Oncological knowledge is her passion, with which she shares by helping others.

How did you first hear about Changemakers?

Newsletter from Changemakers

If through another, please provide the name of the organization or company

none