Ejemplo: Guíenos a través de un ejemplo/s específico/s de cómo esta solución hace la diferencia; incluya sus actividades principales.
Ana is frustrated patient with the health system in her country, the aid received to treat her disease has been minimal. She wants to find cheaper treatments and civil organizations that provide information and real support. Fernando want to establish partnerships with other organizations in the region to introduce the experience of other countries about the treatments they use and whether they are effective or not.
DATAFARMA partly contributes in solving a problem of public health and social security inclusion, then organizes and updates the information in maps, showing real and verifiable details of diseases, Civil Organization and generic medicines in a single platform.
Impacto: ¿Cuál ha sido el impacto del trabajo hasta ahora? Asimismo, describa el impacto previsto en el futuro para los próximos años.
If we analyze Hepatitis C, according to the World Health Organization, there exists an estimate of 150 million people infected with the VHC virus, and the annual death toll of Hepatitis C related diseases is between 300 and 500 thousand people.
In Colombia and Mexico there many ONG dedicates to dedicated to supporting patients with hepatitis C, but, they dont have a common space where they can share methodologies and generate a cooperative links. In addition, the patients doesn't know about this association and they doesn't have benefits
We have a contact with Antonio Oñate, director of Hepatos Aion Fundation member of World Hepatitis Alliance and part of the campaign Hablemos de Hepatitis C in Mexico, and contact with other Civil Organization in Colombia.
currently , we launched a crowdmap campaign and a blog, we projected a functional platform with verifiabledata for February 2016
Estrategias de Expansión: Avanzar, qué son los estrategias principales para ampliar su impacto?
The Civil Association should be organized and visible, metrics and data of the disease and share this information for the patients, other Civil Association and poblation.
The Civil asociation should have a common metodology and best practice manuals
The healt public institution should have credible and verificable indicators
We make relationship through:
Creating communities among patients and civil associations, Weekly publication of specialized newspapers, Management of social networks, Centralization of information related to the disease, Experiential workshops and show visual map .