Programa Sobrevivir

Programa Sobrevivir

VenezuelaCaracas- Venezuela, Venezuela
Year Founded:
2011
Organization type: 
nonprofit/ngo/citizen sector
Budget: 
$100,000 - $250,000
Project Summary
Elevator Pitch

Concise Summary: Help us pitch this solution! Provide an explanation within 3-4 short sentences.

Approximately 50 words left (400 characters).

About Project

Problem: What problem is this project trying to address?

- Boys and girls’ families without proper information, regarding main care and other important topics during treatments. - Lack of alternative support programs to stimulate children with cancer in a psycho-neuroimmunology sense. - Lack of strong education support strategies during the treatment (which can be helpful for building a life project). - Lack of recreational activities tailored to boys and girls with cancer’s needs. - Few medical staff trained to assist these types of cases from a comprehensive approach.

Solution: What is the proposed solution? Please be specific!

The “Sobrevivir Program” aims to create a childhood cancer approaching methodology, which actively involves boys, girls and adolescents, as well as their parents and other relatives, in their treatment’s process. It would focus on empowering people to acquire knowledge about the disease, the best ways to lead the treatment and how to provide effective cares and maintain a positive mood, through recreational stimulating activities.
Impact: How does it Work

Example: Walk us through a specific example(s) of how this solution makes a difference; include its primary activities.

Vision: to be a pioneer organization in the psychosocial approach of childhood cancer, offering a platform of effective support for boys, girls and adolescents with cancer and their relatives. Goals: to create an approaching methodology for childhood cancer, that encourages the well being of patients and their families, contributing to the children survival.

Impact: What is the impact of the work to date? Also describe the projected future impact for the coming years.

None. However, the Business Plan sets up an impact on 250 boys and girls with cancer and their mothers and other relatives. Besides, this program aims to positive impact on the specialists working with the children’s treatment (specially the health professionals), for them to emphasize the importance of psychological and educational aspects and help developing the life projects of their patients.
Sustainability

Financial Sustainability Plan: What is this solution’s plan to ensure financial sustainability?

The growth plan, based on the designed Business Plan, has a first period of three (3) years; then, we foresee a shares growth of 80% in 5 years and 200% in 10 years.

Marketplace: Who else is addressing the problem outlined here? How does the proposed project differ from these approaches?

Peers: - Fundación Amigos del Niño con cáncer - Fundación Sana - Fundación Ideas - Productive sector (job listings)
Team

Founding Story

“Your child has cancer” is a painful phrse that no mother should hear, but in 2011 I had to listen to it. Having to experience my son’s disease brought me the idea of improving the quality of life of cancer patients and their relatives, providing them support in the treatments and actions they take.
Organization Name

AC Programa Sobrevivir

About You
About You
First Name

Adriana

Last Name

Ponte Guía

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Innovation
Explain what the "innovation" is about, e.g., is it the idea and/or the model you use to accomplish the idea, or your understanding of the target population, etc.?

The “I survived childhood cancer” initiative considers creating a program – The Sobreviví Program – for psychosocial support to boys, girls and adolescents, diagnosed with childhood cancer and their mothers and other relatives.
The program aims to develop a strategy of psychosocial support that leads to improve the quality of life of cancer patients and their families, based on the following premise: “… the mood of a cancer patient is essential to the development of the disease and, specially, to a better treatment’s response. The program encourages more effective and efficient treatments, better survival patients and families with better tools to face the disease and its circumstances.

Describe how your innovation model is distinct from any other organization in your field?

Most organizations working with childhood cancer focus on the medical assistance and economical support. The Sobrevivir Program, on the other hand, contributes with the process of “taking part of the treatment”, offering information and scientific tools for boys, girls and their families.

What type of operating environment and internal organizational factors make your innovation successful?

- It is an initiative based on experience.
- It is an initiative requested by groups of families with boys and girls diagnosed with childhood cancer
- There’s no other initiative offering the same services like this one.
- This initiative is based in the use of technologies for people’s well being.

How do you make sure you constantly innovate in light of (potential) external challenges, or your growth plan?

The growth plan involves a study, which measures the initiative’s impact in different countries. In two years, we expect to be present in at least 5 Latin American countries, especially in the main public hospitals.

Organization Country

, A, Caracas- Venezuela

Business Model
The systemic challenge you are trying to overcome (select one)

Realign the incentives in the public healthcare system in mature markets, or

Health area (target market) where the need is [select only one]

Chronic care

Categories along the health continuum you are covering [select all that apply]

Intervention, Follow-up, Long-term care, Social integration.

Stage that best applies to your solution [select only one]

Piloting (a pilot that has just begun operating)

Core strategies of your business model [select all that apply]

Patient-centered design, Unconventional partnerships (between traditional healthcare players and players outside healthcare).

If other, specify here:
Most relevant tools you are using to implement the strategies outlined above [select only two]

Technology, New skills, Education/training.

If other, specify here:
What is your value proposition?

A new strategy to support childhood cancer’s treatment to improve its impact, the empowerment of the parents and the involvement of medical staff, in order to increase the impact on the boys and girls’ survival.

Who is your customer(s)?

The target population of the “I survived childhood cancer” Program consists of three groups:
1. Boys, girls and adolescents with childhood cancer diagnosis.
2. Their mothers and other relatives or carers and
3. Health and Social workers (doctors, oncologists, pediatricians, immunologists, teachers, educational psychologists, psychologists, social workers, etc.), working with cancer patients, especially with children.

What approaches to you use to reach your customers?

Face to face hospital intervention
Social networks
Internet
Mobile phones

What are your primary activities?

1. Editing five (5) Manuals for mothers and families who accompany the process of their children disease.
2. Designing a web site in Venezuela with relevant information about childhood cancer, chats, on line support groups, debate forums, videos, researches and reliable documented material.
3. Implementing the Mother and Families Support Project (Apóyame), through talks, support groups and job listings.
4. Implementing the Boys, Girls and Adolescents Support Project (Sobreviví), through psycho-immunology, special education, counseling, vacation plans, laughter therapy.
5. Creating a Professional Support Network for the Sobreviví Program, to encourage the health staff’s training in our particular approach.

What other challenges - individual, organizational, or environmental – are you currently facing or might hinder future success of your business, and how do you plan to overcome those?

The primary challenge is related with the impossibility of me leaving my actual job, to dedicate myself completely to this initiative. With Ashoka’s support I’d be able to focus on the initiative and strengthen the project activities.

Briefly describe your growth strategy going forward

Only in Venezuela, 1500 new childhood cancer cases are annually diagnosed, and more of 50% of them are economically underprivileged families. This demand will be met thanks to the initiative Business Plan’s fundraising, with several activities and an annual growth prospect of near 30% in incomes and assistant.

What dimensions for growth are you currently targeting for your innovation [select all that apply]

New customer group(s).

What makes your business "ready" for growth?

1. There is a demand to meet.
2. There are technical potentialities to meet the demand.
3. There is a Business and a Working Plan for the next three years.

What are your key growth objectives?

1. Assisting more children and their families
2. Recruiting more health professionals into the organization’s activities.
3. Shed light on other options to deal with childhood cancer and make them possible to work on other childhood chronic illness.

Organization's Country of Operation

, A

Social Impact
What methods for quantification of social impact are you applying (if at all)?

None at the moment, but the Program considers to conduct a survival study for the next 5, 10 and 15 years, for its beneficiaries.

Could your solution work in other geographies or regions? If so, where?

Yes. Initially it would work in the Latin America and Caribe region and then others. Nevertheless, the program can be replicated with other chronic diseases such as VIH, cystic fibrosis, etc.

What is your projected impact over the next 1-3 years?

1st year: 250 families and 200 health professionals
2nd year: 520 families and 500 health professionals
3rd year: 1500 families and 1000 health professionals

Sustainability
Elaborate on your current financing strategy

1. Revenue for services rendered (Workshops, Congress, Manuals’ and Program sales to the private sector).
2. Fundraising incomes (Concerts, Walking Programs, Scholarships, Donations and Sponsorships).

Share of revenue generation in total income of organization (in percent)
Direct sales to patients or other beneficiaries (in percent)

70

Of the possible sources of these sales listed below, check all that apply to your current strategy

Friends and family, Individuals, Patients, Caregivers, Private businesses, Other beneficiaries.

Licensing fees, e.g., for technology/franchise model (in percent)
Of the possible sources of these licensing opportunities listed below, check all that apply to your current strategy

Service contract with organizations, e.g., government, NGOs (in percent)

30

Of the possible sources of the service contracts listed below, check all that apply to your current strategy

Foundations, NGOs, Private businesses, Regional government, National government.

Explain your revenue generation strategy in more detail

Revenue generation strategy:
* Professional training workshops
* Childhood Oncology Annual Conference
* Fundraising Annual Concert
* “Nadie se rinde” Walking Program
* Scholarships Program
* Online Donations

Share of philanthropy in total income of organization (in percent)

100

Philanthrophy strategies you are using

Single strategy.

Explain your philanthropic approach in more detail

The core idea of the action is the assistance of boys and girls with cancer and their families.
Furthermore, we aim to focus on the health experts’ approach to optimize their performance in hospitals and clinics.

Expand on your selections; explain how you will sustain funding over the next 1-3 years.

The income generation strategy is the same for the first 3 years. Depending on the organization growth, more new strategies might be applied.

Years in Operation

Operating for less than a year

Has the organization received awards or honors? Please tell us about them

1st place as Social Entrepreneurship in the 2011 Concurso Ideas